Posts - MPN Voice | HealthUnlocked

MPN Voice

10,516 members • 14,515 posts

All posts for November 2020

my first 30 days.on 500mg of HU.Had increased shortness of breath. Took break. Restarted. Have brain fog & fatigue.

Will I get used to it eventually ?

Wewo01

•4 years ago

30 Replies

Masks Work. Really. We’ll Show You How

https://www.nytimes.com/interactive/2020/10/30/science/wear-mask-covid-particles-ul.html?referringSource=articleShare

https://www.nytimes.com/interactive/2020/10/30/science/wear-mask-covid-particles...

Manouche

•4 years ago

2 Replies

Ruxolitinib

Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on Hydroxycarbamide and aspirin. Thanks

Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me p...

Big-Ted

•4 years ago

19 Replies

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Vitamin D

Hi guys, I’ve had my Flu jab today. The first time by a GP. Afterwards he spoke about taking 1000 units a day of vitamin D until spring returns. This is to...

Hi guys, I’ve had my Flu jab today. The first time by a GP. Afterwards he spoke ...

Vtr1000

•4 years ago

12 Replies

Hydroxycarbamide side effects?

Hi I’m new to this site and was reading your questions and answers. I have ET, diagnosed two years ago. Can I ask as the doctors want to put me on...

Hi I’m new to this site and was reading your questions and answers. I have ET,...

Waterwoman

•4 years ago

22 Replies

Hand Sanitizers and Disinfectants

Hello, I am wondering if anyone has any knowledge or opinion on the use of hand sanitizers or disinfectants by mpn'ers during this time of Covid. I have read...

Hello, I am wondering if anyone has any knowledge or opinion on the use of hand ...

Meatloaf9

•4 years ago

9 Replies

Interesting Aspirin Covid Study

Encouraging research https://www.healthline.com/health-news/aspirin-may-help-prevent-serious-covid-19-complications-heres-why Reuters is reporting that at...

Encouraging research https://www.healthline.com/health-news/aspirin-may-help-p...

Dovme

•4 years ago

1 Reply

Husband in hospital update.

My husband was discharged this morning, so pleased to pick him up. Had to throw my dummy out the pram Wednesday. It's been arranged by husband consultant that...

My husband was discharged this morning, so pleased to pick him up. Had to throw ...

Jean24

•4 years ago

56 Replies

Stress effect on platelets

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3782187/#!po=0.617284

Anag

•4 years ago

9 Replies

Low MCH MCV?

Just a question to anyone else with ET who has dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given...

Just a question to anyone else with ET who has dropping MCH & MCV levels, they w...

Melaniem59

•4 years ago

1 Reply

Shielding again

Evening all Has anyone else had the same?? I was advised to go home today from my company as they had received the new government guidelines regarding those...

Evening all Has anyone else had the same?? I was advised to go home today fro...

Gunner73

•4 years ago

12 Replies

1st Hematology Appt Next Week

Hello all, this is my first post and full disclosure I am literally brand new to all things MPN related - before this week I could not have even told you what...

Hello all, this is my first post and full disclosure I am literally brand new to...

Hidden

•4 years ago

13 Replies

Monocytes increase

I haven’t written for awhile although I read posts every day. I have ET with MPL mutation. I take Hydroxyurea. Does it increase monocytes percentage? I had...

I haven’t written for awhile although I read posts every day. I have ET with MP...

Cookiebaker

•4 years ago

11 Replies

Pre-clinical Expression of MPN?

Question for you all, I was catching up with my cardiologist yesterday as I had an MI (heart attack) 4 yrs ago. Back then we can see that my blood numbers...

Question for you all, I was catching up with my cardiologist yesterday as I had ...

JT_Marlin

•4 years ago

Be the first to reply

Department of health and social care

Hi all Has anyone else had their letter from the department of health and social care? Signed off by Matt Hancock?

Hi all Has anyone else had their letter from the department of health and socia...

Dazakella2010

•4 years ago

30 Replies

A poem

A PORTABLE PARADISE by Roger Robinson And if I speak of Paradise, then I’m speaking of my grandmother who told me to carry it always on my person, concealed,...

A PORTABLE PARADISE by Roger Robinson And if I speak of Paradise, then I’m spea...

Mostew

•4 years ago

2 Replies

Life expectancy of MPN at 34 years old

I just found out that I have MPN. My platelet count is elevated at 1,235. Way too high! I will be having a bone marrow biopsy to identify what I have. Very...

I just found out that I have MPN. My platelet count is elevated at 1,235. Way to...

margaritampn

•4 years ago

16 Replies

CANCER GENES & HEREDITY (?)

Post by MPN-MATE Admin » Thu Nov 05, 2020 12:18 pm Afternoon all... :D I have touched on this Topic in the past, and I am aware that my late father did have...

Post by MPN-MATE Admin » Thu Nov 05, 2020 12:18 pm Afternoon all... :D I have...

socrates_8

•4 years ago

10 Replies

UPDATE FOR PEOPLE WHO ARE CLINICALLY EXTREMELY VULNERABLE – new shielding measures under the new national restrictions in England

Starting on Thursday 5th November 2020 The government has issued new information and guidance for everyone in England who has been identified as...

Starting on Thursday 5th November 2020 The government has issued new information...

Mazcd

Partner•4 years ago

15 Replies

Lowering platelets

Afternoon Guys Hope someone can advise or has had the same issue to assist? I have ET and have been stable on Peg interferon for a few years now but my last...

Afternoon Guys Hope someone can advise or has had the same issue to assist? I ...

Gunner73

•4 years ago

3 Replies

Ibs

Hi I tried the kefir probiotics for ibs but making my symptoms worse tummy pains wind etc, I was on mebervine for years but they seem to have stopped working I...

Hi I tried the kefir probiotics for ibs but making my symptoms worse tummy pains...

BECCA8

•4 years ago

12 Replies

Paintings that fellow member jillydabrat did for me

Hello. As you may already know from Jill's post I asked her to do a painting of both of my dogs. She did a phenomenal job and I recommend her to anybody...

Hello. As you may already know from Jill's post I asked her to do a painting of ...

clubdino

•4 years ago

20 Replies

First charity donation and I am buzzing

I posted a while ago that I was going to use my new found passion of painting dogs to raise money for the MacMillan Nurses who cared for my mum before she...

I posted a while ago that I was going to use my new found passion of painting do...

jillydabrat

•4 years ago

14 Replies

Having PV Can you drink ? And how long can you live for ?

Hey everyone I have PV its super scary I am a dad.

Miamistandup2020

•4 years ago

5 Replies

Switching to pegasys

If moving from hydroxycarbamide to pegasys, are they taken in combination initially until the effect of pegasys is known?

If moving from hydroxycarbamide to pegasys, are they taken in combination initia...

muriell

•4 years ago

3 Replies

MF

Had PV and now MF. Anybody else have the same?

Bobbyrun262

•4 years ago

5 Replies

Husband in hospital

Thank you for all your lovely returning comments. It is so nice that you all are so caring. Thank you all. Xx

Thank you for all your lovely returning comments. It is so nice that you all are...

Jean24

•4 years ago

1 Reply

33 yr old with ET, not sure if I should get married or start a family. Guidance appreciated :)

Hi, I’m a 33 yr old with ET, Jak 2 positive, no symptoms. I got diagnosed during a routine checkup few months back. Before the diagnosis, I was hoping to get...

Hi, I’m a 33 yr old with ET, Jak 2 positive, no symptoms. I got diagnosed durin...

Max_k

•4 years ago

11 Replies

COVID-19 Guidance UPDATE - New national restrictions in England starting Thursday 5th November 2020

The government has announced new national restrictions for ENGLAND from Thursday 5th November until Wednesday 2nd December 2020, these measures are...

The government has announced new national restrictions for ENGLAND from Thursday...

Mazcd

Partner•4 years ago

6 Replies

Question for those taking PEG Interferon

I started on PEG Interferon at start of the year injecting 135mcg (it’s been slow at reducing levels) to treat my JAK2 PV. Have noticed that recently, I have...

I started on PEG Interferon at start of the year injecting 135mcg (it’s been slo...

Tylerdog1

•4 years ago

8 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for November 2020

my first 30 days.on 500mg of HU.Had increased shortness of breath. Took break. Restarted. Have brain fog & fatigue.

Masks Work. Really. We’ll Show You How

Ruxolitinib

Vitamin D

Hydroxycarbamide side effects?

Hand Sanitizers and Disinfectants

Interesting Aspirin Covid Study

Husband in hospital update.

Stress effect on platelets

Low MCH MCV?

Shielding again

1st Hematology Appt Next Week

Monocytes increase

Pre-clinical Expression of MPN?

Department of health and social care

A poem

Life expectancy of MPN at 34 years old

CANCER GENES & HEREDITY (?)

UPDATE FOR PEOPLE WHO ARE CLINICALLY EXTREMELY VULNERABLE – new shielding measures under the new national restrictions in England

Lowering platelets

Ibs

Paintings that fellow member jillydabrat did for me

First charity donation and I am buzzing

Having PV Can you drink ? And how long can you live for ?

Switching to pegasys

MF

Husband in hospital

33 yr old with ET, not sure if I should get married or start a family. Guidance appreciated :)

COVID-19 Guidance UPDATE - New national restrictions in England starting Thursday 5th November 2020

Question for those taking PEG Interferon

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