Hi all. Been a while and hope you’re well. Just read the vaccine guidelines for who gets it and euphoria replaced with disillusionment as vulnerable under 65 are quite low on the list for a vaccine. Plus suggestions those with immunosuppresion disorders may not be able to have it. Trying to be positive but a bit of a knock given most of us have shielded since February. Surely those who are most vulnerable should be higher up the priority list - I’m not seeing an end to this. Jx
Can we have the Pfizer vaccine: Hi all. Been a... - MPN Voice
Can we have the Pfizer vaccine
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I think healthcare workers working with covid patients and those over 80 or in care homes will probably get it first as they are most vulnerable and that will also reduce the death figures. But it will take time as every country wants a share of the global distribution
Here we are being told it will be well into 2022 by the time everyone who wants it receives it and that’s probably optimistic
Hopefully the other vaccines will be ready to go soon
I have the same concerns regarding our immune status and believe that this particular solution will not be for us. I also think that the Oxford Astrazeneca candidate will be unsuitable, but the Sinovac candidate, being inactivated, might be OK. (if it ever becomes available in the UK). There's a sort of delightful irony in that!
This is a question that Maz might feel appropriate to run past Prof Harrison.
Andy
Hi friend of piglet Hope you are keeping well. Maz is having a well deserved week off, so I’m looking after things this week. I’m part of the Management and Fundraising Team. I have ET, so have been part of MPN Voice for years.
For all of us the news of a possible vaccine is amazing. Hopefully it will be like the flu and pneumonia vaccines and we will be able to have it. I will pass your query on to Prof Claire Harrison and get back to you with her response. Have a wonderful Tuesday. Keep well and safe Marilyn
I am here in NZ, and have been told it will be available next year. Health care workers which I am will be in line to have the vaccine offered to us. I have ET so also I do wonder if we will be suitable for it? A bit like shingles vaccine, some say yes and some say No. so who knows?. Be very interested what Drs in UK have to say. Watch this space.
Hi Lindiloo3 My name is Marilyn, I’m on the MPN Voice Team (Maz is having a well deserved week off). I’ve spoken with Prof Claire Harrison and she has just confirmed that the Pfizer vaccine is NOT a live vaccine. In the U.K. she believes all decisions regarding MPN Patients having the Pfizer vaccine will be taken bearing in mind individual risk. Vaccine v Disease.
Hope this helps. Keep well and safe Marilyn
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Hi I’ve had a splenectomy and on 1500 mg daily for E/T does this mean I can’t have the Pfizer vaccine?
Thanks
Phil
Hi Phil from what Prof Harrison has said, all decisions will be taken bearing in mind relative risk... vaccine v. Disease. So it will probably be that our Consultants will assess our individual risk. The good new on the Pfizer vaccine and some of the others being trialled, is that it is NOT live.
Hope this helps.
Keep well and safe Marilyn
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Hi Marilyn
Thanks so much for your reply really appreciate that fingers crossed I’ll be ok for this vaccine then
Thanks again
PhilX
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Many thanks.
I was feeling a little optimistic but like you am somewhat disillusioned again Anxiety and depression has not lifted for me but trying hard to carry on as normal as is possible but feeling caged in Let’s hope good news will come soon. Take care
Hello Jlah I’ve had a response from Prof Claire Harrison, who states that, ‘all of these decisions will be taken bearing in mind relative risk. Vaccine v Disease. She also states that not all of the vaccines currently on trial, are live’.
These drugs still have a way to go before definitely being given the all clear. Fingers crossed.
Have a lovely evening. Marilyn
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Thanks for checking with Professor Harrison, Marilyn. Appreciate the quick response.
Kim
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Thanks Marilyn. At least it was not an outright no! Jx
I've read that the sample size for testing was very small, 100 people. Doesn't sound ready for prime time yet.
I believe there were 100 cases of COVID (most in the ones who didn't get the vaccine which is why they're concluding that at the moment the efficacy is in the range of 90%), but the number of people getting the vaccine was much higher. "The Phase 3 clinical trial of BNT162b2 began on July 27 and has enrolled 43,538 participants to date, 38,955 of whom have received a second dose of the vaccine candidate as of November 8, 2020." pfizer.com/news/press-relea...
From what I have been able to read about the Pfizer vaccine, it is unclear yet (without input from our Hem/Onc specialists) as to whether we can risk taking the vaccine or not. None of us are supposed to have live vaccines. This vaccine while different that any vaccines previously made and based on RNA does contain a strand of the virus. Don't know yet whether having it onboard would hurt our compromised immune systems. I'll be checking with my specialist regularly as news comes out about the vaccines available.
We have been told that here in Berlin that five centers will distribute the vaccines
Each doing 4000 a day. The vaccine has to be stored at extra low temperatures in special refrigeration The vaccine will be administered by doctors only. Guess they will determine with the referring doctor how safe depending on patients history.Am unsure if the biotech Pfizer is live. Been reading lots about the amazing couple who invented it
I had a yellow fever vaccine 18 months ago that was live and administered by specialist. I was fine no side effects
Other Covid vaccines ie Oxford are probably not to far behind