Alternative to vaccine if we can't have it?

[Otterfield]

This could be relevant to at least some of us

bbc.co.uk/news/health-55022288

Jennie

[DJK12]

I'm glad you've highlighted this. I only heard the end of an interview with the Manchester doctor this morning and then later saw the online article which explained it. Having been told I was immuno compromised after a very rare covid like reaction to Pegasys 5 years ago and now on Ruxolitinib I did wonder if the other vaccines would be suitable, which was somewhat depressing.

So good news work is in progress if it becomes apparent some of us need a different vaccine though patience and discussions with our haematologists in due course will be necessary. The doctor said, sadly, they had enough volunteers as it would have been good to participate even if one got the placebo.

[Dovme]

I read about this very interesting. It’s amazing how much has been accomplished in such a short time!

[Cja1956]

Very interesting article. This is my first time hearing this. Thanks so much for posting it.

[katiewalsh]

Thanks for posting. I have Common Variable Immune Deficiency which basically means no immune system, so this is really encouraging. Katie

[Wyebird in reply to katiewalsh]

Please feel free not to answer but is this due to your MPN?

[katiewalsh in reply to Wyebird]

Hi. No I don’t think it’s related to my MPN. Although I know there are others with MPNS & my type of immune deficiency I don’t believe they’ve found a link yet. I’m able to get vaccines that aren’t live but it’s a waste of time & money because my body won’t develop any antibodies in response to vaccines. Take care. Katie

[Wyebird in reply to katiewalsh]

Oh how awful sending hugs

[beetle]

I wonder if that applies to us? There are folk who regularly have immunoglobulin infusions to support their immune systems for whom this might be applicable but I for one have been given flu vaccine and pneumococcal vaccine also. The Pfizer vaccine might seem to be more risky for us as it relies on t-cells to fight the vaccine and produce immunity. If we have very low white counts as I do I wonder if this would be appropriate. However my understanding is that the Oxford vaccine is an altered form of a virus that affects chimpanzees and is not live. This might well be the one for us. Please feel free to correct me if I have got any of this wrong and I will be discussing it with my haematologist at my next appointment. As yet it appears that Prof Claire Harrison has not given us all a definitive answer as all the facts are not yet on the table. It will be interesting to get her advice when she feels able to give it

[Otterfield in reply to beetle]

It might apply to some of us at least but it's too early to know. It does seem like a hopeful development, if, for example, those of us on Ruxolitinib are found to be unsuitable for the "normal" vaccine. I'm just happy to know other options are being looked into.

[beetle in reply to Otterfield]

Yes, me too!

[Wyebird]

Than you I haven’t heard that mentioned on the news

[amalekh]

I wonder, why we would be worried if the majority are going to be vaccinated.and no more chance for COVID to spread!