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MPN Voice

10,445 members • 14,398 posts

All posts for April 2020

CHANGE OF DATE for the webinar for MPN patients relating to government guidance on COVID-19

CHANGE OF DATE for the Webinar for MPN patients relating to government guidance on COVID-19 The date of the webinar has been changed to Wednesday 29th...

CHANGE OF DATE for the Webinar for MPN patients relating to government guidance...

Mazcd

Partner•4 years ago

39 Replies

Blood in urine?

Last night I started having blood in my urine, I took a sample in to the doctors (easier said than done) I’ve had a message to say there’s no sign of infection...

Last night I started having blood in my urine, I took a sample in to the doctors...

lizzziep

•4 years ago

21 Replies

Switching Meds is making me CRAZY!!!

How did u feel when you started taking anagrelide? I was on it for 3 years straight with no issues. Kept my levels stable. A few months ago it was hard for me...

How did u feel when you started taking anagrelide? I was on it for 3 years stra...

Tiasia

•4 years ago

6 Replies

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And here he is

A little tired after his walk.

Jlah

•4 years ago

6 Replies

Yippee ok to walk Bertie

Hi all I had my three monthly check up today- bloods all fine. I asked my consultant about total shielding - her response was that the 12 week rule stood but...

Hi all I had my three monthly check up today- bloods all fine. I asked my consul...

Jlah

•4 years ago

5 Replies

Miss Aime!

Our three legged, ageing puss can put her only front paw into the plastic box my hubby has cut out to keep hedgehog food from getting munched! She then hooks...

Our three legged, ageing puss can put her only front paw into the plastic box my...

Aime

•4 years ago

2 Replies

Covid 19

Maz, I am seeing a lot in reports that for a % of Covid patients there seems to be a problem with it causing blood clots. As I have ET and a history of clots I...

Maz, I am seeing a lot in reports that for a % of Covid patients there seems to ...

eastwood1932

•4 years ago

6 Replies

Biopsy for Dx essential thrombocytomia

Just Dx with ET and went for second opinion. Jak 2 positive, platelets between 485-550 (currently) 515, I’m in my 7O’s. 1st dr wanted to schedule biopsy, 2nd...

Just Dx with ET and went for second opinion. Jak 2 positive, platelets between 4...

Doggy555

•4 years ago

8 Replies

Are we allowed to take vitamin D supplements alongside medications such as warfarin and hydroxycarbamide?

It seems Vitamin D is being recommended and I wondered if it's safe to take them alongside existing medications? https://www.bbc.co.uk/news/health-52371688

It seems Vitamin D is being recommended and I wondered if it's safe to take them...

MarkD6701

•4 years ago

7 Replies

My campions

These are my two boys, Milo and Smithy. Although they are not brothers Milo adores Smithy never go far from each other. When I go in the garden they follow me...

These are my two boys, Milo and Smithy. Although they are not brothers Milo ador...

Superwoman

•4 years ago

7 Replies

A lovely poem

This is a lovely poem by Harry Baker. ‘When this is over.’ It totally sums up my feelings about being unable to hug my nearest and dearest at this time....

This is a lovely poem by Harry Baker. ‘When this is over.’ It totally sums up m...

piggie50

•4 years ago

17 Replies

Join The 2.6 Challenge – a fundraising challenge that everyone can be involved in

All of us at MPN Voice hope that as the lockdown continues, you and your families are keeping well. We would like to invite you to take part in the 2.6...

All of us at MPN Voice hope that as the lockdown continues, you and your familie...

Mazcd

Partner•4 years ago

7 Replies

More info on blood clots and Covid

Interesting article. https://www.washingtonpost.com/health/2020/04/22/coronavirus-blood-clots/

Interesting article. https://www.washingtonpost.com/health/2020/04/22/coronaviru...

clubdino

•4 years ago

13 Replies

Essential thrombocytopenia

Does anyone have ridges on fingernails, or thumbnail separating from nail base? Also, excessively dry, flaky skin eczema-like? It’s not the medication as I...

Does anyone have ridges on fingernails, or thumbnail separating from nail base? ...

Doggy555

•4 years ago

18 Replies

Essential thrombocytopenia

Are Dx of essential tremors another symptom of essential thrombocytopenia?

Doggy555

•4 years ago

1 Reply

Miss Aime

I thought I may as well put Miss Aime's photo up too and not leave her out. She lost a front leg after being hit by a car about 10 years ago but shes never...

I thought I may as well put Miss Aime's photo up too and not leave her out. She...

Aime

•4 years ago

12 Replies

Crafts

Here’s my contribution to what I’m doing to keep busy. I saw these in a craft show so I went thru my cabinets and got the crystal/glass ware haven’t used in...

Here’s my contribution to what I’m doing to keep busy. I saw these in a craft sh...

Scrollernut

•4 years ago

2 Replies

Trouble getting blood test appointment

Hi everyone, hope you are all managing ok being in isolation. I was wondering if anyone else is having difficulties with getting a blood test appointment. I...

Hi everyone, hope you are all managing ok being in isolation. I was wondering i...

Yvette49

•4 years ago

26 Replies

Apparently not at all vulnerable

I have just got off the phone from a consultation with a doctor I've not seen before but who went back to my usual consultant with some queries. I have just...

I have just got off the phone from a consultation with a doctor I've not seen be...

nodmeister

•4 years ago

56 Replies

Animals

A robin to cheer you all up

EleanorPV

•4 years ago

7 Replies

Spoilt birds!

Blackbird thinks hes the boss and demands sultanas by sitting at the open kitchen door. If you go out when hes eating, he flies away screeching. He wasnt too...

Blackbird thinks hes the boss and demands sultanas by sitting at the open kitche...

Aime

•4 years ago

11 Replies

Received letter telling me to shield, after working on front line!

I've been slightly reeling after receiving a letter from haematology yesterday, stating that I am at risk of severe illness if I catch covid 19. I'm a nurse...

I've been slightly reeling after receiving a letter from haematology yesterday, ...

LRH1977

•4 years ago

34 Replies

Neighbours

Hi I posted last week regarding my neighbours who live in six households who visit the lady next door there auntie and sister We have a narrow shared drive and...

Hi I posted last week regarding my neighbours who live in six households who vis...

PhilReade

•4 years ago

18 Replies

More garden

My raised beds which are planted with red and white onions, carrots, beetroot and leeks. Behind that I have different herbs. All easy to maintain when my...

My raised beds which are planted with red and white onions, carrots, beetroot an...

Aime

•4 years ago

9 Replies

The fish

We have four goldfish in the pond. We have to keep it covered unfortunately as the seagulls pinch the fish! The fish have just eaten the last of the frog...

We have four goldfish in the pond. We have to keep it covered unfortunately as ...

Aime

•4 years ago

14 Replies

My garden

Hi guys, I know I'm really fortunate but I wanted to share some of my garden with you in the hope it cheers you up. Kindest regards Aime xx😻😻 Ps more photos...

Hi guys, I know I'm really fortunate but I wanted to share some of my garden wit...

Aime

•4 years ago

26 Replies

Covid 19 support

Hi all, hope you are all well. Just a note to say that I have not heard anything from anyone regarding isolation until yesterday when my heamtologist secretary...

Hi all, hope you are all well. Just a note to say that I have not heard anything...

Hydrox

•4 years ago

4 Replies

I AM vulnerable!

Have just received a very welcome ‘basic groceries’ package from the government. I am very surprised as my doctor’s surgery won’t recognise me as vulnerable...

Have just received a very welcome ‘basic groceries’ package from the government....

Garstongal

•4 years ago

4 Replies

Staying Positive

With managing the need to socially distance or isolate, we all have challenges to stay positive and focused on the things that matter. Managing our MPNs and...

With managing the need to socially distance or isolate, we all have challenges t...

hunter5582

•4 years ago

8 Replies

What about Curcuma?

Hi! Have you any of you know about the benefits of Curmuma to patients of MF?

MarPapa

•4 years ago

10 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for April 2020

CHANGE OF DATE for the webinar for MPN patients relating to government guidance on COVID-19

Blood in urine?

Switching Meds is making me CRAZY!!!

And here he is

Yippee ok to walk Bertie

Miss Aime!

Covid 19

Biopsy for Dx essential thrombocytomia

Are we allowed to take vitamin D supplements alongside medications such as warfarin and hydroxycarbamide?

My campions

A lovely poem

Join The 2.6 Challenge – a fundraising challenge that everyone can be involved in

More info on blood clots and Covid

Essential thrombocytopenia

Essential thrombocytopenia

Miss Aime

Crafts

Trouble getting blood test appointment

Apparently not at all vulnerable

Animals

Spoilt birds!

Received letter telling me to shield, after working on front line!

Neighbours

More garden

The fish

My garden

Covid 19 support

I AM vulnerable!

Staying Positive

What about Curcuma?

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