CHANGE OF DATE for the webinar for MPN patients ... - MPN Voice

MPN Voice

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CHANGE OF DATE for the webinar for MPN patients relating to government guidance on COVID-19

Mazcd
MazcdAdministrator

CHANGE OF DATE for the Webinar for MPN patients relating to government guidance on COVID-19

The date of the webinar has been changed to Wednesday 29th April, 3 – 4 pm (BST London)

If you have already registered for the webinar you should have received an updated registration confirmation email to inform you of the change of date.

The capacity for people joining the webinar has also been increased, therefore if you tried to register but were unsuccessful, you can now REGISTER

us02web.zoom.us/webinar/reg...

If the maximum capacity is reached again and you are unable to join the webinar on Wednesday 29th April you can also watch it live on Leukaemia Care’s Facebook page facebook.com/LeukaemiaCare/

The webinar will record automatically on the Leukaemia Care Facebook page and will remain there so it can be watched at any time. A video of the webinar will also be available on the MPN Voice website later this week.

What is the webinar about?

MPN Voice is working with Leukaemia Care to share the government guidance on COVID-19 and how this relates to MPN patients. We will be joined by consultant haematologists Professor Claire Harrison and Professor Adam Mead and clinical nurse specialists Yvonne Francis and Claire Woodley.

You will also have an opportunity to raise your questions to the panellists.

When: Wednesday 29th April, 2020 03:00 PM (BST London)

Topic: MPN and Coronavirus (COVID-19)

To join the webinar: REGISTER us02web.zoom.us/webinar/reg...

After registering, you will receive a confirmation email containing information about joining the webinar.

This webinar is available to everyone, regardless of location, just be aware of the time difference in your country.

We would like to thank Leukaemia Care for their support, help and assistance with this webinar.

39 Replies

Hi Maz. Can those of us in other countries watch? I’m in the USA and am very interested in gaining some good medical knowledge about this. Thanks. Katie

Mazcd
MazcdAdministrator in reply to katiewalsh

Hi Katie, yes absolutely you can, anyone can join wherever they live. Best wishes, Maz

katiewalsh
katiewalsh in reply to Mazcd

Thanks, MAZ. Hope you’re doing well. Katie

Mazcd
MazcdAdministrator in reply to katiewalsh

Thank you Katie, I am well, hope all ok with you over there. Maz x

Thanks very much for this - I am all registered 😀

Thanks Maz, looking forward to it! Best Wishes x

Thanks for this Maz, have registered.

Thanks Maz. I have registered

I’ve never participated in a webinar, is it a simple process for attendees ? Do I need any additional technology support for instance?

EmeraldA
EmeraldA in reply to mhos61

Looks like it is on Zoom. So all you need is that, good enough wifi at home and sound (that will be ur speakers and a built in mic). A camera is also handy for Zoom - but that's just so that people can see you - not always used. If you are using a laptop or handheld device. They will have have these. :) any query just say.

EmeraldA
EmeraldA in reply to EmeraldA

support.zoom.us/hc/en-us/ar....

This is a link to help familiarise yourself with it. It's easy once u know how. Like everything else :)

mhos61
mhos61 in reply to EmeraldA

Thanks. I have an iPad. I will take a look at the link. 🤗

EmeraldA
EmeraldA in reply to mhos61

You should be sorted if u have an iPad. Great

EleanorPV
EleanorPV in reply to mhos61

Can do it on your phone.

This is a great idea Maz. All Registered. Can't wait to hear the latest thoughts from the specialists. It's good to get the chance to hear directly from them.

Thank you

I have registered. Thanks!

Me too

Hi Maz, I was just wondering if this was able to be recorded and put up as a link for those of us that are unable to participate🤔.

Mazcd
MazcdAdministrator in reply to Vtr1000

I am not sure but very probably, I will check and let you know.

Hi Maz, thank you.🙂

Hi Maz, I was also enquiring whether this will be recorded for those of us unable to take part.

Thank you.

Mazcd
MazcdAdministrator in reply to flog

Yes, it will be available to watch on the Leukaemia Care Facebook page live on the day and as a recording to watch whenever you want to, and it will also be available on the MPN Voice website later in the week. Maz

facebook.com/LeukaemiaCare/

Just had joining instructions. They say 29th April at 3pm not 28th. Can you confirm which is correct please?

Thanks

Joe

Mazcd
MazcdAdministrator in reply to Joerp

Hi Joe, I am checking this. Maz

piggie50
piggie50 in reply to Mazcd

Hi Maz,

The first e mail. Received on Friday said 28th. Today I received an ‘updated ‘ e mail which said 29th.

Judy xx

Mazcd
MazcdAdministrator in reply to Joerp

Hi Joe, I can confirm the date has been changed, I am now going to put out an update. Maz

Mazcd
MazcdAdministrator

Hi Judy, yes the date has been changed, I have just received details, and also capacity has been increased for people joining, I am now going to update the forum. Best wishes, Maz

Is this one replacing tomorrow's seminar? I haven't heard anything.

Mazcd
MazcdAdministrator in reply to Cassie11

Hi Cassie, yes it is, if you had already registered for the Tue webinar you should have received another email to confirm the date on Wed, can you check the confirmation emails you have received. Best wishes, Maz

It's ok, I've found it thanks.

Good morning Maz. I have registered for the webinar which was due for. 28th April at 3pm. Howevr, I see this has been changed to 29th is tomorrow. I cannot see a change of link, and did not receive a further message? am I still on the list? thanks Janice.

Hello again, I found my link change, Sorry for querying!! Janice

Mazcd
MazcdAdministrator in reply to bruddery

Hi Janice, no probs, Maz

Hi Maz absolutely brilliant webinar, many questions were answered. As usual a fantastic array of extremely knowledgeable specialists on the panel. thank you so much for helping to organise this, Janice

Mazcd
MazcdAdministrator in reply to bruddery

thank you Janice

Thank you to all involved

Look forward to more in the future

I found the webinar informative and, to a great extent, reassuring.

Maz - any chance of getting copies of the slides used? One thing that has been annoying me is the incapability of the authorities to come up with recovery figures, without which we can't possibly know what the state of affairs is - it's like trying to tell who's winning a football match when you only know how many goals one side has scored - and one of prof Harrison's slides, I seem to remember, had some such information.

Mazcd
MazcdAdministrator in reply to friendofpiglet

Hi friendofpiglet, glad that you enjoyed the webinar, we were very pleased with how many people were watching and have since watched the video. With regards to the slides, I am sorry but they cannot be shared. Best wishes, Maz

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