Blood in urine?: Last night I started having blood... - MPN Voice

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Blood in urine?

lizzziep profile image
21 Replies

Last night I started having blood in my urine, I took a sample in to the doctors (easier said than done) I’ve had a message to say there’s no sign of infection so they’ve sent it to the lab for further testing, which is quite worrying. Obviously at the moment there’s a bit of a back log in the lab, so don’t know when I’ll get the results. I don’t have any other symptoms, a bit of a niggle deep in my tummy, but nothing else. I wondered if anyone else had had this as a reaction to medication or something else? I’m on Anagrelide and aspirin, plus co-codamol for my arthritis. My platelets etc are ok, had my check up Wednesday. I was anaemic and on iron tablets but my counts have come back up so off the iron tablets now.

I’d appreciate any advice.

Thanks

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lizzziep
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21 Replies
Aime profile image
Aime

Hi Lizzie, sorry to hear you’re worried. Have you eaten or drank anything which could affect your urine? Silly question probably but have seen it happen. If not, why don’t you give doc a ring back and ask what they are testing for. At least an explanation may help your worries. Keep in touch and let us know how you get on. E hugs Aime xx😻😻

lizzziep profile image
lizzziep in reply toAime

Thanks, but no haven’t had anything to colour the urine and doctors did say definitely blood in it. I tried phoning doctors back but doctor had gone and all receptionist knew was that the sample had been sent to the lab for further tests. So it will be a long weekend worrying what they’re going to say. I do know someone with bladder cancer whose only symptom was blood in urine, which is why I am so worried. I’ll post when I know anything. X

Aime profile image
Aime in reply tolizzziep

Ok Lizzie, but I know a couple of folk who had infections with blood in their urine so dont assume it's bad news.xx E hugs.xxx

Hizak profile image
Hizak

I had an episode of this a few months ago. I passed blood in decreasing amounts for 3 consecutive days. There's nothing unusual in having your blood sent off for testing. The tests found nothing. After going through all the other possibilities the GP and I agreed it was probably down to over exertion (I'd been doing too much digging in the garden and got over tired. ) Lesson learned, slowed down, no repeat episodes since.

lizzziep profile image
lizzziep in reply toHizak

Thank you, I haven't ben overdoing it, probably more like under doing! Fingers crossed it will go away on it's own. In the past I have had polyps which caused bleeding in my womb and my colon, I have no idea whether you can get them in your bladder as well.

Cassie11 profile image
Cassie11 in reply tolizzziep

You can probably get cysts in your bladder. Hope you are okay.

lizzziep profile image
lizzziep in reply toCassie11

Thank you. Still awaiting lab results, but my water has been clear since saturday morning.

Cassie11 profile image
Cassie11 in reply tolizzziep

Fingers crossed.

PhilReade profile image
PhilReade

Hi I had this a haemateura they called it two Christmas ago was in A&E was doing it over two days had camera and everything was ok

Sometimes you get small intestine bleed they told me on Clopidogrel and asprin

I’m on Apixiban now and ok

Don’t worry

Phil

Cassie11 profile image
Cassie11

Hi. Hopefully it's just a one off but the lab are right in doing further tests, just try not to worry.

jillydabrat profile image
jillydabrat

Hi Lizzie, so sorry you are having this worry on top of everything else. You are as wise as everybody else when it comes to avoiding Dr Google. I hope you don’t have to worrying a weekend, even though I know you will. I am keep everything crossed for you my lovely. Take care xxxx

lizzziep profile image
lizzziep in reply tojillydabrat

Thank you, so far today my water has been clear, hopefully that will carry on, maybe I've had a bladder stone, I'll see what the lab rsults are on Monday. x

Wyebird profile image
Wyebird

Isn’t it awful when you are concerned and your hands are tied. I do hope nothing sinister is going on . Fingers crossed you get good results soon

Val_P profile image
Val_P

I also had that a few years ago. They said It was due to my body needing to get rid of excess platelets and my spleen being unable to cope with the amount. Apparently your body finds an alternative rubbish disposal method which in my case was through the kidneys. Hence visible blood in wee. It did eventually sort itself out. Our bodies are amazing machines. However it is still important that you are checked for anything else that could cause it.

lizzziep profile image
lizzziep

Thank you, hopefully it's nothing awful, I think having ET makes you worried at the best of times and when anything else crops up it's hard not to get carried away!

azaelea profile image
azaelea

Hi Lizzie, sorry to hear of your worry. I'm sure things will be alright. When I had a urinary infection a year ago there was blood in my wee but all cleared with antibiotics. I'm also having a worrying weekend as I've had black tarry motions yesterday which indicate bleeding somewhere in the upper intestines. I'm waiting to see if it clears over weekend but will ring GP's to see what to do if it continues. I read in the aspirin leaflet that it can cause intestinal bleeding. Perhaps it can also affect the urinary tract. I have ET also but haven't had my blood tested since 20th February when platelets were up. I'm only on aspirin at moment. Haematologist was going to put me on Anagrelide at next appointment. It's a worry when we can't get answers and I dread having to visit the hospital at the moment. Hoping you get your results very quickly and all is well. Best wishes, Fran

lizzziep profile image
lizzziep in reply toazaelea

With having ET I think we worry so much about side effects and getting other things as well. You can get tarry stools through different foods, also iron tablets or supplements and aspirin . I had the camera up an down ( they rinsed it under the tap in between 😱) they found a polyp and removed it, no problems since. Scary at the time though! I’m on Anagrelide, my platelets are in normal levels at the moment.

My water has been clear, so far, today, got to wait for lab results though.

Stay safe and hope all goes well for you x

azaelea profile image
azaelea in reply tolizzziep

Thanks for your reply Lizzie. You stay safe too and hope your results are fine. By the way I just had a colonoscopy in January and all was clear apart from Diverticulosis which I've had for ten years. It could be that causing bleeding but I haven't got the usual left sided groin pain. Will wait and see. xx Fran

lizzziep profile image
lizzziep in reply toazaelea

I’ve got diverticulitis too! Aren’t we in some fun clubs 😁

Mufftreacs profile image
Mufftreacs

Hi Lizzie,

I was on Anagrelide and aspirin last year. The same thing happened to me. Blood in my urine. I stopped taking aspirin for a while and it stopped. However, Anagrelide did not bring my platelets down as expected so I was changed to Busulfan.

This did the trick for my platelets but my consultant was not happy with this long term.

I now inject Peg interferon once a week and find I am coping quite well. My platelets are actually a bit low at the moment but it’s early days.

All the best. Hope this helps.

Kate

lizzziep profile image
lizzziep in reply toMufftreacs

I’ve been on Anagrelide and aspirin for a few years and not had this before, however I’d been on hydroxy for over 3 years when I developed a reaction to that. I’ll have to see what GP says and then contact haematology and see what they say. This started Thursday, after I’d had a telephone consultation on Wednesday and told them all was well !

Stay safex

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