Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for April 2020

Hi I am new and have been diagnosed with ET Jak2

Hi Everyone, I am new here. I was diagnosed with ET JAK2 positive two weeks ago and am devastated. I wish it was a mistake but I am sure it is not. I am 44...

Hi Everyone, I am new here. I was diagnosed with ET JAK2 positive two weeks ago ...

•4 years ago

Letter to stay at home

Received my letter today

Received my letter today

•4 years ago

Something wonderful!

https://m.youtube.com/watch?v=j_JKtz_kz5s 😘

https://m.youtube.com/watch?v=j_JKtz_kz5s 😘

•4 years ago

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Medication

Hi everyone just wanted to ask if any have had problems with getting interferon 2a , my hematology doctor has informed me of this, so might have to change...

Hi everyone just wanted to ask if any have had problems with getting interferon ...

•4 years ago

RDW reading

Has anyone had the RDW number jump way out of the normal range will doing fairly okay with the rest?

Has anyone had the RDW number jump way out of the normal range will doing fairly...

•4 years ago

Letter received

Hi all, Just thought I'd let you know I've received the 'extremely vulnerable ' letter. I'm male, 59, PV, on hydroxy and aspirin but no additional problems....

Hi all, Just thought I'd let you know I've received the 'extremely vulnerable '...

•4 years ago

Scotland - NHS letters for MF?

Has anyone in Scotland with MF Intermediate 2 or High Risk and on Ruxolitinib had a letter from NHS Scotland about being extremely vulnerable? I emailed our...

Has anyone in Scotland with MF Intermediate 2 or High Risk and on Ruxolitinib ha...

•4 years ago

Final results

I got all my test results in and it’s. E T. I’m so grateful to my Lord it’s not more serious. Going to be taking Hydroxycarbamide. What should I expect now?...

I got all my test results in and it’s. E T. I’m so grateful to my Lord it’s not...

•4 years ago

Got a reply from GOV>Uk coronavirus support

It says " You registered as clinically extremely vulnerable, but had not received a letter from the NHS to confirm this. We'll share your details with the...

It says " You registered as clinically extremely vulnerable, but had not receive...

•4 years ago

DONATION APPEAL

MPN Voice is going to do its best to continue to serve the MPN community during the Coronavirus crisis. We will continue to be active on social media, to keep...

MPN Voice is going to do its best to continue to serve the MPN community during ...

Partner•4 years ago

Covid-19 help get food

A lot of people are posting about difficulty and worry over getting food / delivery slots ... I hope this helps... 1. Contact your local council Local U.K....

A lot of people are posting about difficulty and worry over getting food / deliv...

•4 years ago

COVID-19 & MYELOPROLIFERATIVE NEOPLASMS: FAQs & UPDATES from ASH_30.03.20

Post by MPN-MATE Admin » Wed Apr 01, 2020 1:04 pm Afternoon everyone... Just thought that you might all like to read and know what ASH is saying about...

Post by MPN-MATE Admin » Wed Apr 01, 2020 1:04 pm Afternoon everyone... Just th...

•4 years ago

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