Fuzzy: I’m really struggling today! I... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Fuzzy

Chihuahua_crazy profile image
8 Replies

I’m really struggling today! I can’t seem to focus my mind on anything. And it’s so loud in my head. Not a hum like tinnitus. But loud pressure. I feel like everything is rushing past me. I can feel my anxiety getting worse as I’m now holding my breath without even realising.

I’m so tired these days.

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Chihuahua_crazy
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8 Replies
tabey profile image
tabey

Dear Chihuahua_crazy

Its ok your going to be ok i send a hug with this message.

it sounds horrible and i understand about loudness i freak out in busy rooms i just have to take a moment and try to breath and carm myself down

this is one hell of a condition we all share.

tabe

Chihuahua_crazy profile image
Chihuahua_crazy in reply totabey

Thank you tabey. Sending hugs back!

My body hurts from head to toes. Feel like I could burst at any moment!

Yes I have to agree. This condition sucks! X

tabey profile image
tabey in reply toChihuahua_crazy

when i have that horrible pressure build up inside me i normally have a small dose of oramorph and it really does take the edge off the pain

no one can understand the pain or how it feels and that with the loudness and pressure in the head just sounds horrible.

I'm always happy to talk

tabe x

Chihuahua_crazy profile image
Chihuahua_crazy in reply totabey

I struggling to explain to my family how I’m feeling. Especially when it comes to the pressure. A loud or quiet room is torture!

Iv weeded myself off the fast acting morphine because every time I saw my dr about my symptoms, she blamed it on the morphine! So I had to show her it wasn’t the case!

Anyway I think bed may be the answer here.

Thanks again tabey x

in reply toChihuahua_crazy

Bed is not the answer. This disorder does suck! Which one doesn't lol. Now who said you can be in bed letting this run your life eh? I got out of bed today even if I can't walk right. I have had small movements while drinking coffee. I had an attack and dropped to the kitchen floor. I should give up the entire day. Oh well the Cadillac Im working on can sit there and not being diagnosed.

I know its just how you feel. I feel it too. But people like my wife help pick me up for another day. Now im picking you up. Come on. Can you tell me why you chose your screen name? I chose mine to share my birth year and that im male.

I live in the states where are you in the world? Our healthcare system sucks. Its like 400 us dollars for regular insurance. Only 2 to 3 knowledgable talk therapists I came across and they are nice people but to see them i'd have to payfrom 100 dollars to even 3, just to see them. Us gov insurance Im not covered because our income is just above the minimum and once I get a job Ill need to keep paying money just to have insurance and also keep paying for dr visits and prescriptions in which I dont even know works.

Thats my shitty time here and now whats yours? Besides FND.

My funniest symptom moment was when I tried to run when my legs didn't work right, I looked so drunk.

Joanna36 profile image
Joanna36

I have this terribly. I know exactly how you feel. I have small fibre neuropathy and autonomic dysfunction which explains it for me. I also react to a vast number of things due to last cell activation disease.

Have you ever tried antihistamines? They can dumb down the sensory overload and are also what we all use to try manage our mast cell probs x

Joanna36 profile image
Joanna36 in reply toJoanna36

Mast cell activation*

Derrian profile image
Derrian

Hello there . I know that feeling sweetie . Like somone is pulling your ears back straining to hear and understand/ prosess what you are trying to think. Then you are so drained . Look for a quiet place in your head.

Sorry it is a bad day I send you a peace and calm hug.x

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