I am in abject shock that an fnd group exists and hope it is simply a way for all of those so terribly misdiagnosed to share experiences and suggestions to help identify the true nature of your suffering.
I have watched a number of videos now care of the wonferful Jon Stone- fnd champion/ hero to all! I am absolutely flabbergasted. Many of the problems his patients describe are just like mine - I have ehlers danlos syndrome, multiple autoimmune illnesses including sjogrens which can do a real number on your autonomic system. The damage or changes to the autonomic nervous system ( very real physiological changes) can explain so many of the problems attributed to this fnd nonsense.
I was given the most ridiculous of ridiculous explanations for my suffering and metaphors such as soldiers feeling pain after battle when there was no injury due to ptsd. I had to go alone and pursue every test going to prove what was happening to me. I have my proof now. It was not easy. I was almost convinced myself it was all part of some functional nonsense.
Happy to chat if anyone likes to about this!
Just to confirm that for all my auto immune diseases i am seronegative. No evidence at all in bloodwork which makes things very difficult and will lead to constant fob offs in some cases.