I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6 months into our relationship). It has been a rocky road full of doctor and hospital visits since then, and forever changing intermittent symptoms. He appeared to have gone into a period of "remission" for 4 months last year, however the FND symtoms soon returned, and a lot worse. Lately, he seems to have really gown downhill - his 'episodes' are much more frequent, intense and debilitating. Most days he struggles to walk/talk, zones out in 'eye rolling' fits and jerky reflexes,however, he tells me he feels different this time, cognitively like a smog of cloud is fogging his ability to think or focus, and he feels more fatigued than he ever did. Has anyone experienced this? We are starting to worry and think it could be a degenerative neurological condition?
Also, if there are any Australian carers out there - would love to hear how you manage. My fiance' has two daughters, so I have taken on the parental role, whilst also caring for him and working full time and I am only 28. We are marrying later this year and hoping to have a child of our own..... it's super tough