Help: I feel so alone and isolated... - Functional Neurol...

Functional Neurological Disorder - FND Hope

6,114 members3,373 posts

Help

Derrian profile image
2 Replies

I feel so alone and isolated . Where who can help . For over 20 yrs I have been in and out of hospital with strokes and TIAS my face droops and feels numb all down my right side. After having 11 TIAS a doctor said abruptly it is in your mind. This blew my mind. Over the following 2 yrs I got more Dr's opinions finally !! A full explanation I have FND . But what now . It explains the anxiety the numbness the deverstating toilet issues and the disassociation I do daily . But I can't live like this. I get extremely anxious when I go out side my comfort zone. If I can pay £35 each time I CAN HAVE MORE SESSIONS WITH a councilor . I don't have it . I feel like I don't exsist .

Written by
Derrian profile image
Derrian
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Chihuahua_crazy profile image
Chihuahua_crazy

Hi Derrian.

I don’t know an awful lot about FND as I’m newly diagnosed.

What I do know about is the isolation, loneliness!

My advice is to keep posting on here. Everyone Iv spoken to has been amazing. And most of all they all know what we are going through.

Over the last 10 years Iv lost all my friends. One by one!

My mum and my two daughters are my rocks.

This message probably isn’t much help. But I wanted you to know your not alone.

pickleweed profile image
pickleweed

For anxiety, try reading or listening to a book such as "It’s Not All in Your Head How Worrying about Your Health Could Be Making You Sick—and What You Can Do about It".

Breathing exercises help with anxiety. When you exhale, say "Sh........sh........sh.........." or "Sssssssssssssssss". Or count while you breathe slowly.

Try to think of anxiety as "excitement". Doing yoga may help with anxiety. Listening to meditations from Headspace or Calm may help. Playing Youtube bedtime meditations during the day can help with anxiety, such as youtube.com/watch?v=RFREYlH...

Not what you're looking for?

You may also like...

I'm lonely and scared

After so many doctors appointments to try to get a terminal diagnosis from being so disabled and...
ToesKnees profile image

It seems like blindness, but is most likely all in your head.

Not fully what the doctor said but close enough. I have had vision loss after hitting my head. Went...

I am unsure on recent events, seizures Epileptic vacant, or FND seizures, or something else?

The last week I have been getting a strange sensation in the whole of my body. It is hard to talk...
Kersjones profile image

Doctors appointment

I've got my doctors appointment on Wednesday , I need to try and tell her how I feel and what's...
Littlecook profile image

Almost 18 years walking alone with no diagnosis to my vocal tic disorder.

Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder....

Moderation team

See all
FND_ profile image
FND_Administrator
1fnd profile image
1fndAdministrator
hope4fnd profile image
hope4fndModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.