Sorry all, I just need to vent here..
I was all excited to participate in another study for The NIH under Neurobiology of psychogenic movement disorder and non-epileptic seizures. I have been able to do 2 other parts of this study before now, but my resent results from my 3 day ambulatory EEG came back with me having not only non epileptic seizures with the FND, but epileptic seizures during movements, when I'm not moving, and while sleeping according to my Neuro. I have to start taking an anti-epileptic medication now. Because of the epileptiform issues, and the new medication, I was just told that I am no longer eligible to participate in this study. AAAAHHHHHH! I am so sick of this stupid disorder and all of its twists and turns and disappointments. So much for being honest.. darn it. I love being able to be part of these studies and have the opportunity to help provide information about FND in hopes that it will help them to find answers.
Oh well, maybe there will be one in the future that will involve both non epileptic and epileptic seizures. crossing my fingers. I want to help get the answers for us all. I want this to end!
oh well. maybe next time. keeping up the fight! :o(