I started to write my story in summary but my word count was somewhat high to say the least. It is impossible to summarise this disorder, how it started, how it affected you and how you largely recovered from it. I may still post it (after some editing).
Anyway, hi! I found this group over a year ago during one of my endless searches to learn all that I could about this bizarre disorder I'd been diagnosed with.
A lot of the posts mention stress. I'd like to say that we can logically try to justify a stress response from one thing and dismiss another as being uncalled for. This is our downfall. Emotions are not always logical. They are not always rational. We don't beat ourselves up about dreams we have had because our reactions in them were not 'right' or our feelings were misplaced.
We should embrace our feelings, reflect on them, learn from them, move forward from/with them.
We should be selfish at times, put our own needs before other people's, not worry about how other people might react in certain situations.
And if they do, if all our worries came to light then what? What's the worst that could happen really?
A lot of people have mentioned their happy childhoods and previously happy lives therefore don't understand why this has happened to them.
My first point is that it doesn't always matter what happened, it's when it happened. By when I am referring to the various developmental stages we go through as neurologically and emotionally advanced mammals. Take the author of Peter Pan (I forget his name - apologies) who developed stress induced dwarfism after his brother died and his mother effectively neglected him. Had this happened in adulthood, he would likely have grown 'full size', for want of a better term, and been able to deal with the stresses as an emotionally mature adult.
I understand this is an extreme case but I believe something, now as an adult deemed irrelevant, could have contributed to having FND.
That is not to say that I believe childhood stress is the only cause. Or that there even is a singular cause.
I don't know how significant it was to my recovery, but I started to take fluoxetine, an antidepressant, as I heard it can help with FND. I'd like to note I did not consider myself to be depressed.
It took me years to recover from my movement disorder and tremor but I did it.
I believe there is hope for all of us, whether it's a full recovery or simply ways to ease our symptoms.
It's a long and bumpy road, you take 1 step forward and 20 steps back.
My heart goes out to everyone affected by this disorder, in whatever form.
Thanks for reading,