Roaming symptoms

I've had FND/Conversion for over 18 years now and always develop new symptoms...The latest is my left foot going numb. I kind of laugh now because I think anyone without FND would be running to the doctor....To me it's just a new little thing...I've suffered from myoclonic siezures/dystonia, severe pain moving from my legs to my right arm, aphonia and a whole host of neuropsychiatric symptoms they have no name for...I still get all the symptoms to varying degrees, it seems to be one thing or another all the time..Usually pain or movement. Just wondering if anyone else gets roaming symptoms lie I do?

I've kind of given up on doctors over the years unless I get some new weird symptom that lasts for more than 2 weeks severe and chronic...Hang in there..Thanks

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  • "I kind of laugh now because I think anyone without FND would be running to the doctor....To me it's just a new little thing."

    Yes. Exactly.

  • Hi there!

    Yes, my wife Kim gets different symptoms from day to day and she finds that temperature change can bring on new symptoms too.

    Keep smiling ๐Ÿ˜Š and walking on!

    Tony & Kim

  • Hey there,

    I'm the same I get new symptom and sit and think erm do I go to gp or just get on with it lol so I just get on with it... I'd live in the gp office otherwise ! Like today my hearts pounding, headache, sickness, odd feeling in my head, hand shakes, anyone else would be "help me what's going on", us .. ok I need to slow down ... lol the numbness is an odd one! I often find my whole left leg feels numb especially when I walk a long time! I get numb hands but that's carpal tunnel apparently... need another eye test as I know it's going again... on the plus side we have each other on this forum to support and understanding ๐Ÿ˜

  • Hi Kadaffy, I've got the roaming pain, over 2 years now, it can like you pop up anywhere, I too no longer go to hospital, dr, or call ambulance. The things that have been said to my partner about me as they don't realise I can hear and understand them while locked up in agony are to my heartbreaking and not true, when I keep getting asked where pain is, it's anywhere, and too different degrees. I just sit at home and suffer through it until my body or brain lets it go. 18 years you've suffered (I am so sorry ๐Ÿ˜ for your suffering) 2 years is slowly getting to me, pain day and night is sometimes unbearable, I carry on with small hope that one day I will get help and for my partner who watches me suffer day after day. Today is horrendous it's just everywhere from my feet up to behind my ears. There is no reason why today is worse and that is so frustrating, how to avoid this agony when I don't know why today so bad, my partner thinks I'm crying but it's my eyes watering in pain, best wishes from Lisa-anne

  • So I have read somewhere that FND is like the game of "whack a mole". Which I truly believe it is. You think you get rid of one symptom, and another pops up. You work on that ine, and another pops up. Then all of a sudden. Several of them pop up and you are just doing your best to whack them all down, which becomes the what feels like an un-ending battle.

    Like you say, we can't just run to the go any time another pops up because we would become their love in tennant.

    We just have to keep playing this game, and hope that some day we can get the biggest hammer possible to whack them all down once and for all.

    Best of luck to you.

    Cheryl

  • Whack a mole. EXACTLY. Once you figure out workarounds your subconscious finds something new to confound you with. That's why it's so helpful to have a bagful of tricks and coping mechanisms to deal with the beast.

  • Love the whack a mole, is so true, very good description and funny ๐Ÿ˜‚. Today is better day and appreciate a laugh, thank you cgarff, you've made my day. ๐Ÿ˜†๐Ÿ˜†๐Ÿ˜†๐Ÿ˜†

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