Here we go again !: Hi friends im on a... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Here we go again !

123lisa profile image
26 Replies

Hi friends im on a funny again had a weeks break at least , but my cat was killed 2 days ago and low and behold this morning it creeps in, im writing this now as tomorrow I wont be able to spell talk and will be on a walking frame !

How are you doing today is anyone else in the funny club today xx

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123lisa profile image
123lisa
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26 Replies

Hi Lisa, so sorry to hear about your cat. Pets are a great comfort to us when we dont feel great. Well they are just great all the time really. I have 2 🐱

Iv overdone it this week with appointments. It's funny my neurophysio says I have no balance and weakness all over then I went to see another Physio for my back pain and she said I had bad posture and was tired exercising because I don't do enough!!!

She doesn't realise I used to get up every morning and do weights before going to work and other exercise. I was always on the go and that even a year ago I was able to have a stroll today I had to do one thing and I was so tired and in pain and legs wanting to stop working.

I'm still going with my dream of being able to give these specialists all of our symptoms for a week and make them live our lives then come back and speak to us. I don't mean that rudely I mean it genuinely.

I also this morning got up to non working legs and know I won't be doing much typing, brain is going to mush.

I hope your symptoms ease soon and for you cat

Om Mani Padme (Pemi) Hung

It's a mantra Buddhists say to pets to ensure they go onto a good life, regardless of religion.

If you are ever at the zoo iv heard monks go around and say it to all the animals. That I would love to see xxxx🤗🤗🤗🤗🤗

123lisa profile image
123lisa in reply to

Sounds like your going through a rough time its nice to know were not alone !

Thanks for your words for my kitty bless him so sad x

in reply to

Amallia.

Thanks for the daily mantra. I have dog and cat in house that I would be lost without. To a good life it is!

Disappointed though. I was hoping you meant it BOTH rudely and genuinely. I have many ugly thoughts for medicine.

Send me a mantra of forgiveness. Otherwise, I have to use the one above when I see the doctor today.

Dan

in reply to

Ok maybe I meant it a bit rudely, especially for those who think it's all in our heads or that I have amazing muscle tone and am fit and healthy, going for a jog right now 😂

You can use the above one. It encompasses all of the teachings of bhuddism, all 84,000

I say the first one to my cats every day. It was recommended by our monk as I asked him - people can mediate, pray etc to move onto a better next life but what about our pets. He told me to whisper the first mantra in their ears.

or the other short one is

Om Ami Dewa Hrih (Shri) they are both meant to inspire generosity, moral ethics, patience, diligence, meditation and wisdom.

I think I'm the most impatient person I know, and not the wisest so il be doing these mantras for another million lives.

You are also supposed to wish these onto other people so when you go to see your doc say an Om Ami Dewa Hrih as you are wishing them the same things. The point is that we wish others well even when we want to....

Il leave that to your imagination 😊

in reply to

Am..

I lost my follow up post. Excerpts:

You stealing the show today! I go with all of the above.

I will mumble the mantra to the doc today.

However, to set the "record" straight...

George Thorogood sang "One Bourbon, One Scotch, One Beer." Which was it's modified title. It was originally released by Amos Milburn in 1953 under the Title "One Scotch, One Bourbon, One Beer."

George Thorogood and The Delaware Destroyers released it in 1977.

It sums up Friday. Happy Day.

Dan / Seattle

in reply to

I wouldn't recommend saying it out loud to the doc they might think you are putting a spell on them and I give up on the music, I sing all the wrong words to songs very badly

in reply to

Am...

We are born from verse. It makes us the mortals that we are.

Dan

in reply to

Also surprised we didn't get a song from you I was thinking - I love my dog, by Cat Stevens

englishmumof2 profile image
englishmumof2

Hugs xxx

Hi Hun, I'm dreading my 2 cats and 3 dogs passing away of old age let alone a sudden death, unsure how I will cope for old age for them, my cats are 16 and 17 and I watch them and just hope they keep going, don't want to consider my life without them in it, am so sorry for the loss of your puss cat, they always love us no matter what, the loss has hit you hard, big hugs to you. I'm struggling today as appointment in London hospital yesterday that was cancelled then wasn't, letter sent us to wrong place in hospital, 2 massive seizures later was put in a quiet room, dr came 2 and half hours later saying he was waiting for me elsewhere. After arguing settled he agreed with professor Edwards that I need to be treated as an in patient. 1 more different hospital appointment in London and can hopefully go on long waiting list to go inpatient. 9 hours, travel, waiting, seizures, wrong letters, FND is bad enough without bad management from hospital. 🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗

englishmumof2 profile image
englishmumof2 in reply to

Hugs the trip to London is so hard! I'm glad they agreed to an inpatient treatment for youxxx

in reply to englishmumof2

Hi Hun, no agreement yet, 1 more appointment at another hospital in London to see whether they will put me on long waiting list for inpatient, yesterday's was another Nuero psychiatrist asking all same questions, past trauma, past illness, depression, etc. I have none of these so he recommended the same as professor Edwards. Next appointment in June, hopefully this one will get me on the waiting list. I think it's over a year waiting after they actually agree to put you on the list. Hope your ok, think of you often and your struggle. Xxxxxxx

englishmumof2 profile image
englishmumof2 in reply to

I saw the neuropsychologist he put me on anti depressants.... god I felt so awful... lost my

Mojo so I came off them after 6 weeks. I'm ok kind of plodding... 7weeks to move... still no council help so I'm just going to find a private rental that is decor I like , has a walk in shower, easy maintenance garden, no carpets, an office for husbands job and sons games, and a garage or shed for other son to build in.... oh that's also long term and accepts pets....oh and close to the kids school... 2 viewings tomorrow not perfect but at least no carpets!! Exhausted been sleeping lots.... employed someone to iron ... lol washing machines broken... waiting on parts... do not to many disasters this week! Thank you as always for your listening ears/eyes and your timely advice and kind words 🤗

in reply to englishmumof2

Hi Englishmumof2 and Lisa Anne.

Maybe the docs think if we load them up with antidepressants it will keep them away.

I'm sick of the psychological psychobabble, I appreciate some need psychological support but for me I feel some docs behaviour and having the term FND could drive you to depression.

englishmumof2 profile image
englishmumof2 in reply to

He was hoping it would lower my anxiety which it did but I couldn't function... my new ssri has really helped with my jolts though! And yes fnd can cause the depression 😀

in reply to englishmumof2

He wouldn't give me anything yesterday which is good as the extensive list of medication I've been given over past two years, none have worked over then made me extremely ill through side effects, first year I went Down to 6 and half stone from 10 and a half. Tramadol and Diazepan are all I can have. Plus I take B something and magnesium from advice from this website. FND is enough to live with without horrendous side effects and don't alleviate any symptoms. Xxx

englishmumof2 profile image
englishmumof2 in reply to

Yes I'm always checking side effects before taking meds... I can handle most things but not feeling sick or loosing my mojo! I'm lucky pains not that bad at the moment ! I've not heard of a medicine to help memory yet!! 😜

123lisa profile image
123lisa in reply to

God that sounds awful it's bad enough having to go to London let alone all that aswellx

123lisa.

Losing family pets is one of toughest times in life. I hope pain subsides and that you feel better.

Dan / Seattle

englishmumof2 profile image
englishmumof2 in reply to

We lost one of our dogs in November to cancer! It was quick as he was ok Thursday the Friday didn't want to walk, took him to the vet who said high fever and all lymph mode up... so cancer... he lasted till the Monday but the biopsy confirmed there was nothing they could do. It was the hardest thing but the kindest to let him go. Following on though... I'm hoping this will make you smile.....

So kids were devastated.... they wanted the dogs ashes so I said it takes a week.... I bought a box to put them in. Then I made a fire in the garden with paper and put them in the box..... the funny bit is next.....my 14 yr old...

A few days later school calls...

School: Mrs Johnson .. erm ... well Ethan brought his dog to school today....

Me: Oh no....

School : well we've taken it off him as he really can't have dogs ashes at school..

Me: ha ha ha..

School: we said maybe he can bring the dog collar.

Me: I'm sorry.... ha ha.... but... ha ha ha... it's burnt paper not dogs ashes.... haha hahahaha

School: hahahahaha, thank god we were worried hahahaha.... the office girls will be happy ...

Me: I've got loads of similar stories.

School: that's hilarious... hahaha... can we call you each week just for a laugh?

Me: yes of course!

I'm glad I know my kids well as I knew there was 110% chance one of the boys would take the dogs ashes into school 🤗

in reply to englishmumof2

Bless them, my last and he was my first own dog, he had aggressive cancer, gone in ten days, layered with him as he went to sleep but wouldn't keep ashes as knew I wouldn't move on if I had them, ten years on have 3 gorgeous labradoodles. I'm glad it ended funny for you, we all need a good laugh to keep us going. 🤗🤗🤗🤗🤗🤗🤗

englishmumof2 profile image
englishmumof2 in reply to

I love Labradoodles... I've got a cockapoo! I couldn't have Sams ashes as I'd cry each time I look at them! But my sons don't know ... lol they even took them to our last holiday 🤣😂😅😝🤗 to show him the beach... oh and scattered some at our local park!

in reply to englishmumof2

Children are so resilient, and so accepting, and very funny 😂 when not meaning too.

englishmumof2 profile image
englishmumof2 in reply to

My youngest has autism and he's very black and white... when my father in law died he just stated "that's ok he's not in pain any more"

My eldest is also on the spectrum and ADHD but also has emotional difficulties so everything is a drama and end of the world! Constantly saying he wants to commit suicide!! He often has suicidal thoughts for no reason! C'est la vie! But he can also be very funny (unfortunately he's often inappropriate ) 😝

in reply to englishmumof2

My friends son has Asperger and she said to him sit and wait for me to come home so he didn't worry as she had an appointment, but he sat on step and wouldn't move till she came home, although not funny she has to be so careful what she says as he takes it literally. Bless him.

123lisa profile image
123lisa in reply to englishmumof2

Yes that made me chuckle thank you 😀

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