I was diagnosed with FND almost 2 years ago now. I've had a multitude of symptoms but most have resolved going through an OT/PT program at Mayo. I had, for the most part, regained most of my functioning up until about 6 months ago. Now the symptoms are different than anything I had dealt with previously. I've apparently started sleep walking now, I'm dropping things constantly, at work at home everywhere, so much to the point a coworker asked me if I'd had a stroke. I'm forgetting things way more than I ever used to, like leaving my keys at home about a dozen times. A lot of these things point to Parkinson's but the neurologist doesn't seem to think so but also agrees that they don't fit within the realm of FND. I'm kind of at a loss right now, while these symptoms don't necessarily have an impact on day to day function I'm concerned that this isn't FND and maybe Parkinson's or something else.
Perhaps not FND : I was diagnosed with... - Functional Neurol...
Perhaps not FND
You could check out the 'rule in' signs on Jon Stone's website, neurosymptoms.org.uk and ask your neurologist about them ..if he hasn't used them already to help get you a diagnosis.
That doesn't help, I've already been diagnosed with FND. My neurologist(the same one who diagnosed FND) is compartmentalizing the individual symptoms and trying to rationalize each one rather looking at it collectively. He's saying I have carpal tunnel because I'm dropping things.
Hi, have you been tested for B12 dificiency? I have similar symptoms you described and they have resolved with b12 injections. I would look into this as it may help, good luck on your journey
Yes, I have been tested for vitamin deficiencies, and no I do not have a any deficiency. I'm a fairly strict carnivore and have been for the last 3 years. A vitamin deficiency was the first thing my GP tested for when I first presented with symptoms. I take a methylated b-complex daily.
I know from experience that if it doesn't affect your day to day functioning they ignore it as not important.
I have actually had them ignore my teenagers symptoms even if it had an impact on day to day functioning and decide it was just normal teenage stuff. But in my experience mine and my teenagers medical stuff is a combo of multiple things.
Hi, I have the shortest short term memory. I leave my car running get out and wonder why I can't lock it. I can hold stuff and find it on the floor, I'm not even aware I let go of it. When I have a bad patch my spacial awareness goes, I find it hard to park the car. I shut my head in the car door twice, in one week! So sounds like my symptoms. Hopefully they will ease up as well.
Hi, again I would also recommend you check your B12 levels, I sldd sad I have /had some of your symptoms that were resolved/reduced with B12 injections
I don't think sleep walking is considered to be part of FND and although I have seen it associated with Parkinson's it can also happen for many other reasons (some people with migraine have had sleep studies done because of sleep walking) and any decent neurologist should be concerned about new symptoms and not just ascribe them to FND. Likewise there are lots of conditions that could cause you to drop things (loss of fine motor skills is also fairly common in migraine and other conditions including Mal de Debarquement Syndrome (not that I'm suggesting you have MdDS, just that these symptoms are fairly common). Have you been tested for carpel tunnel? I think it's a reasonably straight forward test.
Forgetting things is also common for a lot of people with migraine and vestibular conditions (including vestibular migraine) so if you experience any loss of balance or motion sensations then that could be the reason for that and there is good information about cognitive vestibular interactions on the VeDA site. Once I knew why it was happening, I found it less bothersome and my GP understands it too, bless her.
I hope you get the answers and support you need and if it turns out you've been misdiagnosed with FND (treatment is meant to start with an open and transparent two way conversation so if that didn't happen I'd ask why not) I hope you will be able to get help with getting it recorded as an official misdiagnosis (since I know this isn't easy to do).
I am diagnosed FND fibromyalgia osteoarthritis all in same year, but FND it’s misdiagnosed for so many other ilnesses,
My so called FND went off the chart and as you think I thought the same, but my FND diagnosis blanket covered anything a suggested at gp surgery I said about possible PA and family history
I am normal range b12 and have always been from start but it felt like do or die, went to a beauty clinic for my first b12 injection (but definitely not saying to receptionist it was because I felt like I was dying) after this I am self injecting b12 as my family members are PA diagnosed…it truly has made a difference , I’ve spent hours looking more into it , I think we all go to the specialist at different times through our diseases so show up different symptoms with out early intervention , we are waiting and some of are bodies are maybe running on b12 empty …( likes a car ),there’s even different mutations of genes we can have if that’s how you say it that stop absorption so people can’t digest it and need to bypass that with injections, but there are even sprays drops
I’m early only this year trying b12 and a few weeks trying but it’s lifted the impending doom feeling , there’s a feeling back that I could possibly do something I haven’t been able to do for months even years (I’m serious) I’m not running around yet as others have said when reading about b12 or moving fast but there really is a difference to my mind and body and function, I’m not saying it’s magic but I should have looked into b12 years ago
I am still having all my other tests along to way to rule out other things but for some I think b12 is a huge possibility
Looking up b12 symptoms changed how I’m helping myself because I felt hopeless and was going around in vicious circles
I’m not saying this is for everyone, but a glimmer of hope is better than my feeling of hopelessness I had
This year was the first time I realised people on the nhs are fighting for b12 injection for health reasons and survival they are not legal to buy for ilnesses but can readily get them for beauty
also b12 is mentioned on Parkinson’s sites as being beneficial but I haven’t looked as much into this as I’ve concentrated on my families illnesses and connection’s to b12 , but it’s definitely all worth a look
hi, I am now 7 years into my FND (walking, talking and memory) in the early years went to a FND seminar at my hospital and was told that some people recover, I learnt to walk again but only to 60-65% of normal. And it plateaued, my neurologist firstly told me it would resolve itself in 60% of people unfortunately I was in the 40% .. I am currently under sleep clinic (neurology) they found low b12 and low folate so had injections and pills for that, found my apneas were mainly caused by opiates, so can’t use them for pain. After re-test diagnosed with PLMD. I have tremors in my hands and was referred 2 years ago to another neurologist for Parkinson’s determined it was part of my FND (functional tremor). I was referred to another neurologist as my right hand was clawing up and they did electrical nerve tests and found carpal tunnel and cubital nerve problems, 1 nerve gets trapped in the wrist and another nerve gets trapped at the elbow ( on observation for this). I do drop things and have cut my hand and my foot. I find there is a lack of coordination between what I see and what my brain tells me to do, I find when out I can walk into objects even though I know they are there, also stairs are a problem although I know they are 6” to 8” I can never judge so now I do them 1 at a time coming down I was taught to point my toes down feel the step as well as look. Sorry went off topic, my sleep neurologist ordered a Datscan (nuclear medicine) to confirm I don’t have Parkinson’s (all clear) actually said unremarkable lol. Because my memory is very bad and I can forget what I’m doing and forget life in general but can remember almost all things medical they have put it down as part of my FND. I do insist on testing or seeing a specialist if I have new symptoms . Hope you find answers good luck. Kevin
Temperature sensory changes FND symptom? Confused!
Diagnosed with FND Yesterday
Fnd 
FND, adrenal issues?
