I know I have posted in this before but it seems so far no one else here has had this issue. I am going back to Neuro PT tomorrow so hopefully somethings can improve or maybe there won't be an answer. I have visual vertigo it has been one of my stranger symptoms. I have actually had this since childhood it has just became a bigger problem with FND. I have learned some new words because of this issue. Like after images, vestibular migraines( like I need yet another kind of migraine). It has affected my ability to drive a few times. Luckily when things have gotten bad I have had someone with me that could take over and drive so far. I never know what is going to cause problems so when they come up I have been making note of them so I can talk to my Neuro PT person and hopefully get help. For those that are new the more involved in PT you can be the better your results can be. Your provider needs all the info they can get to be able to help. At least that has been my experience. Things are coming up more often and a bit random so far. Some of it I am uncertain how related it is.
Visual issues: I know I have posted in... - Functional Neurol...
Visual issues
Hi Panther, whats visual vertigo?
My son experienced hallucinations and upside vision last November with dizziness (when the image flipped back around).
It is where in a visually rich environment you feel lightheaded, nauseous, dizzy, lose balance etc. There are ways to treat it. I think mine is FND related because your eyes and balance organs are telling the brain conflicting info. Also your brain has a disconnect somewhere as well. With the treatment they actually have you trigger the symptoms and get your body and brain to adjust to visual stimuli. My Neuro PT person says I have improved. Also I think if I went to a neuro opthalmologist they would find no reason for what I am experiencing.
Our Optician did a special test and all clear. However, he has got special computer/screen tinted glasses.
Whag does your Neuro PT say about weighted garments and compression.
It is possible I guess for that to be part of it but I am no expert. All I know is if I look up visual vertigo and go to eye doctors websites I can relate to the symptoms. I have not seen your son's on any list but it is a vision and brain problem so you could get unusual symptoms with FND that might not match the norm.
I have the same issue..
hi, I am reminded when I was first diagnosed with FND my neurologist sent me to ENT for tests lasted 3hrs with 3 different specialists, they found my vision ok unless I moved my head , when out my wife looks when we cross roads if I look left/ right I lose balance same if I look down but they don’t know what causes it as they tell me my inner ear is ok. My neurologist got the ten page report and put it down to the FND.My eyes are blurry in the morning and it takes about half an hour before they return to normal. Have also developed blepharitis which I call sticky eyes and have to clean them regularly with saline solution . Years ago had aggressive cancer on my right eyelid (started as a spot) grew and bled had surgery then found the cancer (didn’t get all) so had further surgery and then reconstruction now have one normal eye and one smaller eye (all good now) . It always seems FND affects so many different parts of the body. Any way that’s me, seem to have gone off topic sorry. Kevin
I’m not sure but I may have experienced that! I had an episode where I had a bunch of other symptoms but I also had vertigo and my eyes wouldn’t focus on reading any information. It made me nauseous to ride in the car and even sit up with my eyes open. I vomited for hours.
I personally do not believe visual issues are caused by FND. I have had similar issues and often when getting eye exam it will either be normal or more experienced ophthalmologist will recognize that I have inflammation.... If it were FND you wouldn't be experiencing inflammation or any obvious cause to explain the issue.... Unfortunately I think cases with symptoms of FND are too complex and time consuming for doctors to bother identifying the true root cause. I also experienced relief from these symptoms when prescribed and treated with steroids...
I couldn’t agree more with you. Drs are just being dismissive with everyone. My motor provoked potentials were positive and still neurologist send me away with fnd.. i also have visual vertigo since 2022.
This Fnd issues are devastating and drs are just its conversion disorder its anxiety etc
Nobody cares enough to find solutions or treatments.. Even top specialists for Fnd are more dismissive than the ones that are not specialists.. it is a tragic situation to be in it! A dead end ..
I can relate for sure. During an emg study around my knee area where I often lose mobility the computer made no response...there were two doctors in the room and instead of considering that as a sign the other Dr came over my body grabbed the electric needle and started to stab me multiple times very rough until he got the results on the computer.....I feel like lawyers could have a field day with cases like ours if they were present maybe doctors would be more accountable. It's easy to forget that even Drs are human and some may not be great at things like validation and accountability....which is detrimental for complicated medical issues.
My tests are positive for inflammation my evoked potentials also positive and still i have Fnd… if they cant find a clear answer its anxiety or conversion disorder! Every day for me its a challenge i cant even do basic stuff anymore and instead of searching for the cause or solutions its fnd.. ok i got treatment for fnd and got worse.. i really dont have no words anymore for this circus 😏
I am sorry for what you are experiencing. I would definitely agree with you that what you have might not be FND. When we get tested for things the tests usually come back saying everything is normal there is no problems. No inflammation, no positive results or very few. The only thing my blood work has shown was a positive ANA. Which is very vague and when I went to a rheumatologist they did all there tests asked all their questions and couldn't help me.
I have to strongly disagree with your assessment. I haven't yet gone to a neuro opthalmologist yet but I am trying out the eye exercises my Neuro PT gives me to see if I can improve symptoms. The vision and brain are very connected and when that connection has problems you get all kinds of symptoms which is what is happening because of FND. I did a lot of testing with my Neuro PT person yesterday. I wish every FND patient could see her. She is all about figuring outs things for me to improve things.
Yes I'm very aware. I actually studied neuroscience throughout my graduate studies....the thing is FND is diagnosed based on tests and findings being negative yet most of us do not have that experience and our tests do come back showing something is structurally happening...just because science has yet to discover technology that can detect it is no reason to assume otherwise. Some doctors are becoming increasingly more aware of the fact that there are damages just not that are being found by today's tests and measures but most doctors still treat people as though it is all just mental illness conversion disorders, in fact some doctors will not even acknowledge functional neurological disorder at all and still say it's conversion disorder. If you are finding good care and doctors that are not abusive and dismissive to you that is absolutely great but 100% if tests are showing seizure activity or inflammation and doctors are stamping someone with FND it causes incredible harm. I have multiple family member in the past two years I have watched go through this who are currently deceased now because they ended up having metastisized cancer that was beyond treatment after being told year after year that they just had Fibromyalgia or FND and no one bothered to diagnose their actual cancer... now they are no longer alive and passed before age 60.... I'm watching people suffer and die because they are being dismissed so I take it seriously when doctors fail to treat, diagnose and evaluate properly and according to guidelines. It's easier for doctors to put a label of FND on someone and never follow up with them again or just say they need talk therapy when actually they have signs and symptoms that require medical intervention and treatment and timely....
I totally agree with you. I did struggle at first to make sure I was properly diagnosed. I know it does happen. Fortunately my doctors have been thorough and treatment has mostly gone well.
It's great you are getting treatment and help. I know for me I'm with doctors consistently in disagreement...one says I have anxiety and then my cardiologist gets incredibly upset and says why are they giving you medicine for anxiety when you have a heart condition.... Then I end up in the hospital with tachycardia or prolonged QT and they say "we don't know what caused it" (it was the medication by the way)....After 15 years of this I'm becoming fully disabled and therapy year after year has not helped ..physical therapists keep telling me they don't understand why I'm getting physical therapy because I need the neurological disease treated (consistently I'm told I have MS by physical therapists and primary care doctors but not the actual neurologist)....my spine has been degenerative since my early 20's but yet now almost at age 40 they look at my spine and say it's normal aging and don't seem to care my spine has been that way for 15 years.... Gosh I'm sorry this is hard to even talk about. It's so important to have good doctors that listen and will investigate. I truly hope your journey is better than mine has been. I wouldn't wish this or any illness like it on anyone. I'm grateful for this community because I think sometimes it's the only way we can recognize how prevalent these things are and it's helpful to know we are not alone in any struggle and also that there can be that diamond in the tough doctor that finally sees you and hears you enough to help.
These visual changes caused my license to be revoked and I haven’t driven in 5 years. This is my first time hearing anyone else mention it so I thought it was just me! My symptoms were diagnosed as Complex Migraine w/Aura. I’ve never heard the term visual vertigo but it makes sense considering the way I experience it. Things in the background and in my periphery are always moving. I suffered from full on vertigo for 6 months straight but after it calmed down, my vision remained unsteady.
My visual changes have grown recently, where I see bright white flashes of light in my periphery and see “floaters” randomly. I’ve had my eyes examined and aside from my usual near-sightedness, nothing was detected. My neurologist, as always, has no answers. I really wish I could do something to treat it because it is alarming.
The Dr literally shut down .... 
visual disturbances and eye problems
Does anyone have issues with their Jaw and Ears Hurting from FND Attacks?
