Just joined!: Hi I'm a new member with 9 months... - Behçet's UK

Behçet's UK

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hoda_16 profile image
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Hi

I'm a new member with 9 months diagnosis of Behcet's, symptoms mouth ulcers, joint pain and erythema nodusom. Taking colchicine daily and prednisolon on flares.

Hope to find out alternative or additional remission methods and help where I can.

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hoda_16
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4 Replies
Jaxxi profile image
Jaxxi

Hello! And welcome. Are the colchicine and prednisolone helping? It takes several months for colchicine to show its full effects. I found it helpful for arthritis and ulcers but in the end the gastrointestinal effects were too much for me.

hoda_16 profile image
hoda_16 in reply to Jaxxi

Thanks Jaxxi! It probably helped but as my initial treatment was the commencement of colchicine and Prednisolon simultaneously and Prednisolon is more powerful, I can't actually say the exact effect of colchicine. I feel it has had a moderate effect on both ulcers and arthritis, however I had mild flareups while on colchicine alone (in stressful occasions).

With what dose do you sustain GI problems? I could tolerate upto 1.5 mg but now continuing 1mg.

JollyHS profile image
JollyHS

Hello Hoda_16, Hope you find help here. It has helped me to learn a lot more about our illness. Welcome. x

hoda_16 profile image
hoda_16 in reply to JollyHS

Thanks a lot dear JollyHS. I'm sure too that here we can learn useful tips and help each other to overcome the disease :-)

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