Headache

[Nanakoko]

Hello, Does anyone have an experience with harsh headache and dizziness?

[belle623]

Hi Naniko

I do, they are awedul I hope you are okay. I strap an ice pack my head lol and lay down. How do you handle them?

[Nanakoko in reply to belle623]

In fact i take colchicine but it doesn t help

[belle623 in reply to Nanakoko]

Have you ever tried Topiramate?

[Nanakoko in reply to belle623]

No.

[pete11]

Hi yes I get the most terrible migraines and normall headaches. They are the most painful things ever. I use amtriplyline everyday and use sumatriptan injections as when needed which to tell the truth is most days. The headaches are a normal syptom for me but other people are different. I hope you get yours sorted.

[Nanakoko in reply to pete11]

I took colchinice for 1 year, but I recently stopped because I found no benefit, i am asking if dizziness is a symptom of behchet

[Elamee in reply to Nanakoko]

Yes for me—quite dizzy. Not consistent.

[pete11]

Yes nanakoko I'm afraid it is a syptom.

[Nanakoko]

Thx all

[DevBabooa]

Yes unfortunately.

Ive had a constant 5yr headache which goes behind my eyes, down my neck and arm, through my scapula, down my spine where it forks into pelvis and legs. Ive had TIA symptoms too.

Its indescribable. The pain that is.

The too of my head is sore to touch, and even when using shades for light sensitivey, I get severe aches on each side of my jaw. (I have bilateral TMJ Dysfunction).

I suspect giant cell Arteritis.

After 37yrs or suffering I have my first appointment this Friday at The Bahcets Centre of Excellence at The Royal London Hospital.

SALVATION!

You most definitely are not alone 😁

[Elamee]

I have BD and recently started having night migraines, focused on one side and wake me up with debilitating pain. Medicine eventually works if I can get my sleepy self to take it. The next day feels like a hangover. Recommendations? I know that this is likely BD. However, it is a new symptom for me.