Frustrated

I was just diagnosed with Bechets in August...does this coincide with Hashimotos,Reynauds,Fibromyalgia,Rosacea,endometriosis,and neuropathy. Also does Agent Orange have anything to do with this. My father did 3 did tours in Vietnam during that time. No one in my family has the Bechets diagnosis. I'm curious because I am also the mom of a 17 year old son on the spectrum,epileptic and developmentally delayed.

Signed

Frustrated

2 Replies

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  • Hi and I'm afraid nobody knows everything about Behcets. My journey with this disease started over 30 years ago and it took me 10years before a doctor mentioned it. Back then there was so little information. Like you I and even the doctors wondered if it was something I had caught living in the Middle East and Africa. Now there is much more info, research, medications and doctors who specialise in this disease. I understand how you feel and searching for an answer but at this time there isn't one. We all come from different countries, different races, and have different symptoms and still nobody can find WHY. So my advice to you is to learn to accept this , stay strong and positive and get on with your life as much as you can. You will have bad days and also good days. This probably isn't what you wanted to hear but it is the truth of it. Take care and I wish you the best.

    Billi

  • Yes I don't think anyone can be certain about origin but the best they understand at the moment is it is just a genetic misfortune. But I do think it occurs in families with an 'auto immune profile' as I think of it. There are lots of auto immune issues in my family but no contact with anything like agent orange. X