Recently diagnosed: Hi just been diagnosed with... - Behçet's UK

Behçet's UK

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Recently diagnosed

Clairfay profile image
9 Replies

Hi just been diagnosed with bechets on Friday, are there any support groups in Bristol area ???

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Clairfay profile image
Clairfay
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9 Replies
sian35 profile image
sian35

Hi Clairfay - I live in bristol area too. i dont know of any support groups but do pm me. I am quite new to this area.

Kind regards,

Sian

JollyHS profile image
JollyHS

Hi I'm in the Bristol area. May be about to move but here for the moment. Also just been diagnosed very recently. I don't know of any groups here, I think there is one in Wales but not sure where.

sian35 profile image
sian35

Hi

Sorry to hear of your recent diagnosis - hope you get some treatment soon which works

Well thats 3 peole at least for a support group in the Bristol area! How about we meet up for a coffee in the New year as a starting point? WE could agree a date and also invite anyone else in the area to come along. i am always a bit nervous setting up social things vbut my son always says to go for it!

I have had behcets for a long time but only fairly recently diagnosed. I go to bristol eye hospital for my eye care and London COE as well. I only recently moved to Bristol area.

Kind regards,

Sian

Clairfay profile image
Clairfay in reply to sian35

Hi , yes let's arrange to meet in new year. I'm under the care of Bristol eye hospital too and bechets centre in Birmingham xx

JollyHS profile image
JollyHS in reply to sian35

Hello, I'm never a big fan of ging out of the house in winter! :) But you can count me in as long as it's day time. Any thoughts on where?

UKADMIN profile image
UKADMINPartnerBehcet's Syndrome Society

Hi all, great to see you may meet up in Bristol - fantastic! Let me know if you want us to advertise your meet up to others in the future? There is a meeting in south Wales and I can put you in touch with the coordinator - let me know info@behcetdisease.org.uk

x

JollyHS profile image
JollyHS in reply to UKADMIN

Thank you admin.

Dogwind profile image
Dogwind

Hi Clairfay

Another one under the Bristol Eye Hospital, don't live in Bristol but not to far away. let me know if you arrange a meet.

Ian

Aly-00 profile image
Aly-00

I thought I was the only one from Bristol :) does anyone go to Southmead hospital?

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