portland OR

[irose]

Hi,

Going through a possible behcet's diagnosis and hoping to find a vasculitis support group in the Portland area. Let me know if anyone has any leads or lives in the area. I would be open to the possibility of starting one.

Thanks!

[PollySunshine]

Hi. I'm about 200 miles north of you but I'm looking for the same thing. I too am looking at this dx, as I await an appointment at the end of January with a Rheumatologist.

How are you doing with all of this?

[irose in reply to PollySunshine]

Hi! I am getting a second opinion from a Vascular Rhuematologist at OHSU. She specializes in Behcet's, so hoping she has some insight. I'm doing ok. Just try to take one day at a time and be thankful for prednisone. As much as I don't want to be on it, it helps me so much.

How long have you been dealing with this?

[PollySunshine in reply to irose]

I just read about Dr. Cailin Sibley at the OHSU Behcets department.

[UKADMIN Partner Behcet's Syndrome Society]

Do contact behcets.com for more info on support in your area in USA or behcetsdisease.org.uk for UK.