Behcet's Syndrome Society
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Painful vein / blood vessels on lip

Painful vein / blood vessels on lip

Has anyone else experienced painful blood vessel or vein on the lips? Seeing the rheumatologist tomorrow as follow up to my September appointment wondering should I mention it? I have a December appointment at the centre of excellence and will be taking my iPad with a slideshow of all the ulcerated parts I've suffered over past 6 months.

3 Replies

How did you get on? This is a link to our Factsheet on mouth ulcers


Hi , UKADMIN sorry I only just noticed your reply!

I have been Diagnosed with incomplete behcets , Sod's law - I had only photos of my ulceration, then literally 3 days later I had an outbreak of ulcers under the tongue (on the frenulum), bottom of mouth under tongue and also on gum line & lips.

Luckily my GP spoke with me over the phone and has now put soluble steroids on repeat prescription, so at least I have a stock of them to use as mouthwash.

The scalp lesions were considered not to be specially related as such, (but they will see what the dermatologist concludes when I see her in 2 weeks time) but I did post my scalp picture on here and others have had , or suffered the same.

Makes you wonder if it's a variation of the illness that hasn't been considered or discovered yet?

The surgeon taking the punch biopsy commented that she would say it's definetly behcets related , from her past experience.

So I await the results. I understand there's nothing different in what I have been diagnosed with and potentially the scalp lumps/sores redefining the diagnosis into full Behçet's as far as treatment is concerned, as we all know there's no magic cure, just medication to treat the symptoms.


Good luck with your forthcoming appointments and keep in touch.


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