Posts - MPN Voice | HealthUnlocked

MPN Voice

10,998 members•15,378 posts

All posts for January 2025

Interferon and Immune suppressants

I have ET (+ bone marrow fibrosis). I changed from Anagrelide then back to Hydroxycarbomide (which I don't get on with at all so they just tried it again) to...

I have ET (+ bone marrow fibrosis). I changed from Anagrelide then back to Hydr...

•4 minutes ago

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Hi. I was diagnosed approx. 2 yr ago with ET, Jak2.

No bone marrow biopsy, started on HU immediately. Would I be considered too old to start an interferon drug?

No bone marrow biopsy, started on HU immediately. Would I be considered too ol...

•15 hours ago

More awful experiences

My Hgb was down to 57 ( yes fifty seven), I was sent to Edinburgh as an emergency and I had a unit of packed red blood cells which brought it up to eighty...

My Hgb was down to 57 ( yes fifty seven), I was sent to Edinburgh as an emergenc...

nellietheelephamt

•18 hours ago

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Symptoms after stopping Interferon?

I have ET with JAK2 mutation. With the shortage of Pegylated Interferon my Haematologist stopped giving me any medication except for Clopidogrel. My last...

I have ET with JAK2 mutation. With the shortage of Pegylated Interferon my Haem...

•19 hours ago

Zurich claim, ET JAK2 positive

Hello everyone, does anyone made a claim with Zurich under critical illness for et jak2? I'm waiting and feel anxious about this, anyone been declined? I'm...

Hello everyone, does anyone made a claim with Zurich under critical illness for ...

•2 days ago

Stomach bug

Just wondering, if anyone has had the dreadful stomach bug over Christmas? This is the 1st time, I have had a bug after starting hydrea and I feel it is taking...

Just wondering, if anyone has had the dreadful stomach bug over Christmas? This ...

•2 days ago

Jkenn

Hi just been put on ruxitnib but platelets are still 1340 i had blood clot last year in my neck and arm and both lungs my platelets have been over 1000 for...

Hi just been put on ruxitnib but platelets are still 1340 i had blood clot last...

•2 days ago

More on High Dose IFN Trial

A recent post discussed the trial in China on the high dose protocol for Besremi. The discussion focused mostly on VAF (mutation) results. The other...

A recent post discussed the trial in China on the high dose protocol for Besremi...

•3 days ago

Can't log in

Help please .Can't log in on my Samsung mobile for last couple of days . Fine on Samsung tablet . Tried changing password...

Help please .Can't log in on my Samsung mobile for last couple of days . Fine on...

•4 days ago

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Recently diagnosed with Essential Thrombocythaemia

My 76 yr.old husband has been diagnosed with this and soon will have to start treatment with Hydroxyurea. He had no symptoms and the diagnosis was found after...

My 76 yr.old husband has been diagnosed with this and soon will have to start tr...

•4 days ago

a cold hanging on!

Happy New Year to one and all! Quick question. I' ve had PV for 16 years and have now been taking ruxolitinib for 5 months, which I know lowers immunity. I...

Happy New Year to one and all! Quick question. I' ve had PV for 16 years and ha...

Volunteer•4 days ago

PV and Vertigo

high MCV levels, polycythemia Vera, and vertigo. On aspirin and HU. Please tell me your experiences with these symptoms and how you treated them. Thank...

high MCV levels, polycythemia Vera, and vertigo. On aspirin and HU. Please te...

•4 days ago