Good day. My name is Joanne and i come from Malaysia. I am sorry if i make grammar mistake as my English is not good.
My hubby was done medical check up last month and we found that high platelet ~ 1200. The next day, we went to Gleneagles Hospital in Singapore to seek for heamotologist's advise. My hubby did a lots of blood test and confirmed JAK 2 negative, BRC-leukemia negative. Doctor suggested him to do another mutation test and found out it is actually CARL gene mutation. At first, doctor plan to prescribe him aspirin but before that doctor do another ris-co factor test and found that he is not suitable to take aspirin (the result is low and she afraid will cause internal bleeding). Due to his platelet is around 1200 and he is just 44 years old, he don't have any symptom of high blood pressure and heart attack issue so doctor categorized him as low risk category without prescribe any medicine for him. Doctor advise him drink at least 3 liters water per day, exercise and take more vegetables and meanwhile just observe and monitor his condition.
After i know he has this type of sickness, i very worried and cried everyday. I worried he will leave me anytime. We married 3 years and my baby just 1 year old. I felt very hopeless now. When i know that if more than 1500 doctor will give him oral chemo medicine, my heart very pain as he is not cancer patient why he need to take this medicine. A lots of why why why in my brain.I bought a lots of supplement (Shaklee product) for him to boost up his immune system and currently he also tried chinese herb to prevent stroke since there is no other medicine for him.
I found this community from internet when i tried to search the information to help him. Can anyone from here who has similar symptom and problem with my hubby can share your experience with me?
I need your advise for the following questions:-
a.) Is there any other method to prevent the platelet increase other than take oral chemo medicine?
b.) Can he still live as normal life span? As we actually plan to have second baby and i worried he will leave me any time.
c.) What is the item that i need to take precaution as he is under observation now?
d.) Will my son also suffer this sickness in future (CARL gene mutation)? How to prevent?
e.) Did anyone from here try to use chinese herbal to cure this sickness?
f.) Why gene will mutate? by food or environment? or born natural?
g.) How frequent you go to do the follow up blood test? 1 month or 3 months? will it raise suddenly within 1 or 2 weeks?
h.) Can he still travel as his job need to travel to China, Australia, and other Asia country. Is there any risk if he take flight?
Appreciate if you can help me.
Thank you very much.