I am a 63 year old woman in the United States and have been diagnosed with Myelofibrosis. Had a bone marrow biopsy and it is 70 to 90 percent compromised. I will be starting Jakafi on Tuesday, waiting for it to come in the mail from insurance company. I am extremely fatigued, lost 30 pounds, bruise easily, stomach problems every day and headaches. Also positive for JAK2 /617F gene mutations, (I think they are the correct numbers, also enlarged spleen and liver.
Looking for encouraging words, I am pretty scared and wondering what the future holds. I have a great dr who knew from the first visit what I had but had to run tests and do biopsy to confirm. Confirmation meeting was yesterday.
Thank you all for listening and I wish you all well.