This is my first message to the group. I was diagnosed with ET 4 months ago and now I try to understand this strange disease.
When I discovered the group a few weeks ago it was an eye opener and I have learned so much by reading all your messages, so thank you for that.
At the moment I take 11 hydrea a week. My Hemotologist is very friendly but I now realise that he really hasn't told my a lot, am I CALR pos., JAK2 neg./pos. ? The possible side effects from the medication, the future prospects. At least now I know much more from reading your mails and I will be able to ask questions.
At the moment I haven't told anybody about my disease apart from my husband and children I wouldn't want the disease to dominate my life. So I'm very grateful to have found you all 😀