I just wanted to share some good news. My recent scans have come back all clear again! I had an MRI head and paid for a private PET scan for body.
I was originally diagnosed in 2014 , aged 43, and was told it was incurable, inoperable and terminal. Since then I have had four rounds of chemo (Cisplatin, Pemetrexed) followed by radical radiotherapy to chest and neck. I then amazingly became eligible for surgery and had a right upper lobectomy in summer 2015.
My scans were then all clear until November 2017 when a malignant node was found in my neck. I had a complete neck dissection followed by radiotherapy to the area. My scans have now been clear since finishing this treatment in March last year.
The only systemic treatment I have had is the original chemo in 2014 and my oncologist is hopeful that the recurrence in my neck may have always been there as it is in the original treatment field - this would still give me the hope that it wasn’t spread but just a node that didn’t get fully blasted the first time round.
I thought I would post to give newly diagnosed people some good news and hope. There are many more treatments coming available for people with lung cancer now as well so hopefully the survival rates will continue to improve.
With love and best wishes to you all