Acceptance?

[Nicoleblack123]

Has anyone found that while reading about their symptoms/FND, they become worse? I have purchased a few books which have been recommended for understanding my FND; I cannot seem to get through even a page without seizing up, becoming very overwhelmed and then eventually having convulsions.

I wonder if anyone has experienced a similar thing?

The book list I am trying (and failing!!) to get through, in case it might be helpful for anyone:

The Body Keeps the Score: mind, brain and body in the transformation of trauma

When the Body Says No: the cost of hidden stress

It Didn't Start with You: how inherited family trauma shapes who we are and how to end the cycle

Overcoming Functional Neurological Symptoms: a 5 areas approach

Dissociation Resource Guide

Psychogenic Non-epileptic seizures: a guide

[Mic67]

Hi, I am also reading The body keeps the score. I take it in small chunks and dont experience any extra symptoms but cant take in too much info at a time so take it in small chunks.

I am also looking fw to receiving another book I just ordered 'Doing Harm;The Truth About How Bad Medicine and Lazy Science Leave Women Misdiagnosed and Sick' !

[Nicoleblack123 in reply to Mic67]

Yes..it seems that pacing is important with this too. Thanks for the recommendation 👍

[Mygeordiebud]

It’s most likely that you are getting stressed reading the book and this can cause your symptoms to become worse as stress is a trigger.

[Mat08]

Hey everyone I can't even read a chapter of hansel and gretal with out ending up on the floor looking like I am bieng stun gunned so please just take your time and to be honest do you think your answers lay in the pages of books, start writing your own books, if that makes sense create your own pages it helps me when someone reads to me my daughter fills this roll perfectly then paragraphs can be dissected and spoke about I hope this helps big respect mat

[Browninger]

Yes! It is characteristic of the condition. I have noticed it more when I am explaining to people what FND is all about. As the discussion continues my speech is more affected with stutter, stammer and word loss, and I talk more slowly. If the discussion is longer the myoclonic spasms and distonia present themselves.

[Nicoleblack123 in reply to Browninger]

For some reason I stopped getting notifications for replys. I just happened to log back in and see this Thank you for your insight, hoping it gets better for you soon.