Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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Explaining Depths of Memory Loss

How do you explain to family and friends the extent of your memory loss? I struggle with both short term and long term memory. My memory has a lot of "blanks"....

How do you explain to family and friends the extent of your memory loss? I strug...

smilesontherun

•1 day ago

2 Replies

frustrated

does anyone else feel totally unsupported with fnd. Nothing seems available even a gp appointment is hard to get. Living with constant discomfort/pain and v...

does anyone else feel totally unsupported with fnd. Nothing seems available even...

Woollover

•1 day ago

5 Replies

Myasthenia Gravis?

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing, and recently I can only swallow liquids. I also experience muscle weakness,...

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing,...

gabesz

•2 days ago

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The world turning upside down and Hallucinations

My son experienced his vision turning upside down briefly then correcting itself and hallucinations (which he described in detail). Luckily he wasn't too...

My son experienced his vision turning upside down briefly then correcting itself...

Lady4

•2 days ago

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Throat constricting/breathing issues

Ok so this is a really new symptom for me and I’m freaked out. So about ten minutes ago I had like a really bad FND flare up/episode and one of the things that...

Ok so this is a really new symptom for me and I’m freaked out. So about ten minu...

ChaosCats

•3 days ago

13 Replies

A helmet of hope?

https://www.nottingham.ac.uk/news/brain-imaging-is-on-the-move-with-wearable-scanning-development#:~:text Could this mean more detailed diagnoses? more...

https://www.nottingham.ac.uk/news/brain-imaging-is-on-the-move-with-wearable-sca...

Shimmyaway

•4 days ago

2 Replies

Feeling very dizzy today

After attempting to do my garden yesterday I feel very light headed and dizzy I just want to sleep, it just proves that I can't do the simple things even when...

After attempting to do my garden yesterday I feel very light headed and dizzy I ...

Littlecook

•8 days ago

3 Replies

Vagal Nerve Stimulation

Hi, I've been having a really bad year after an infection I think was covid. I can't afford to be tested, so I can't be sure. I've started doing trans...

Hi, I've been having a really bad year after an infection I think was covid. I ...

thinkin

•9 days ago

3 Replies

Sleep apnea and fnd

Good morning dear FND friends I was just wondering if anyone suffers with sleep apnea along with FND , I understand that sleep apnea makes our condition a lot...

Good morning dear FND friends I was just wondering if anyone suffers with sleep...

Littlecook

•10 days ago

8 Replies

Bad day

The last couple of days have been particularly trying. I spent most of yesterday in bed & it seems like today is going to be the same. All this laying about is...

The last couple of days have been particularly trying. I spent most of yesterday...

Gypsy_67

•10 days ago

4 Replies

FMD ..

Hi So I have shared some success stories when my son had leg spasms/numbness and was laid up and then when his brain was distracted got up when about his...

Hi So I have shared some success stories when my son had leg spasms/numbness and...

Lady4

•10 days ago

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Work capability assessment

Would you believe I'm still waiting for my work capability assessment to come from the decision makers, I know everything was returned to them on the 22nd...

Would you believe I'm still waiting for my work capability assessment to come fr...

Littlecook

•10 days ago

3 Replies

New environments can be challenging so prepare ahead

Hi This was something a member posted on another site and how she envisaged the difficulties she may experience and had her "tools" sensory aids packed ready,...

Hi This was something a member posted on another site and how she envisaged the ...

Lady4

•10 days ago

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Functional Seizures

I live with functional seizures and I’m interested in connecting with anyone who lives with functional seizures as a symptom of FND. Thanks

I live with functional seizures and I’m interested in connecting with anyone who...

Calistar

•10 days ago

10 Replies

Happy Gypsy

Can I just say I'm so happy I found this site. I live in a tiny town in country Victoria Australia, population 2000. I am about the weirdest person here right...

Can I just say I'm so happy I found this site. I live in a tiny town in country ...

Gypsy_67

•11 days ago

2 Replies

Excessive saliva

Does anyone experience this, it's like my tongue sweats. Constantly having to swallow, especially during the night. Any suggestions on what to do? Moni

Does anyone experience this, it's like my tongue sweats. Constantly having to sw...

MONIREN

•11 days ago

1 Reply

throat swallowing and speech issues

I think I’m going bonkers. Can FND cause swallowing issues and a gravelly voice that comes and goes. It’s getting me down as tests are inconclusive but I don’t...

I think I’m going bonkers. Can FND cause swallowing issues and a gravelly voice ...

Loobyloo1966

•13 days ago

11 Replies

Let’s shout it out! Please use equipment in FND if you need it!

Although I have added it as replies to other members post, I think this is a must watch video from Re-Active: https://m.youtube.com/watch?v=BW9ICMDMu64 It goes...

Although I have added it as replies to other members post, I think this is a mus...

Lady4

•14 days ago

2 Replies

Thankyou for replies

Hi everyone 👋. Thanks so much for all your replies to my previous post. I've had a really ordinary few days and couldn't possibly reply to you all so I...

Hi everyone 👋. Thanks so much for all your replies to my previous post. I've ha...

Gypsy_67

•15 days ago

4 Replies

Dizziness Article

Treatment of PPPD / Functional Dizziness: Specific treatment of PPPD takes time and there is no ‘quick fix’ but good recovery is certainly possible even after...

Treatment of PPPD / Functional Dizziness: Specific treatment of PPPD takes time...

Lady4

•15 days ago

2 Replies

Back to Life with FMD: Katie's Story

I was looking for a motor control success story and came across this Re-Active interview with Julie. At the end of it I heard Katie mention some speech therapy...

I was looking for a motor control success story and came across this Re-Active i...

Lady4

•15 days ago

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Not feeling well at all today

Feeling very poorly today , I just want to sleep and sleep 😴, very tired dizzy and unstable on my feet , it's a horrible feeling I don't know if it's from my...

Feeling very poorly today , I just want to sleep and sleep 😴, very tired dizzy...

Littlecook

•15 days ago

4 Replies

Breathless

Does anyone else get breathless with FND ? I've noticed a couple of time I'm panting even when just walking, I put it down to being unfit and my age . But it...

Does anyone else get breathless with FND ? I've noticed a couple of time I'm pan...

Littlecook

•16 days ago

31 Replies

I've not worked for 6 months .

It's been 6 months since I last worked at the care home, and it's looking more than likely I won't be going back to work , I'm still waiting for my work...

It's been 6 months since I last worked at the care home, and it's looking more ...

Littlecook

•16 days ago

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Looking for locals

I was just wondering if there's anybody else here from Australia?

Gypsy_67

•17 days ago

7 Replies

Twitching

G'day folks. I was diagnosed with FND a week ago and I've been reading about people having seizures. I don't have seizures, I just twitch from the time I wake...

G'day folks. I was diagnosed with FND a week ago and I've been reading about peo...

Gypsy_67

•17 days ago

15 Replies

Gardening today

I was feeling great when I got up this morning and I decided to do some gardening for our sons birthday party tomorrow, what a big mistake I was probably 10...

I was feeling great when I got up this morning and I decided to do some gardenin...

Littlecook

•18 days ago

2 Replies

Balance & Stability

Balance and Stability: Proprioception is closely linked to balance and stability. It provides feedback to the brain regarding body position and center of...

Balance and Stability: Proprioception is closely linked to balance and stability...

Lady4

•22 days ago

15 Replies

Anxiety hit the roof today.

We have just got home from a lovely two day break but as soon as I got home my anxiety hit the roof, my son who was looking after our cat just followed me...

We have just got home from a lovely two day break but as soon as I got home my a...

Littlecook

•22 days ago

5 Replies

A couple of days at a Shepherds hut in bridgenorth for wife's birthday.

Having a couple of days away at a Shepherds hut for my wife's 63rd birthday (Julie) all we have for our neighbours are sheep , heaven just sitting and relaxing...

Having a couple of days away at a Shepherds hut for my wife's 63rd birthday (Jul...

Littlecook

•23 days ago

2 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

Explaining Depths of Memory Loss

frustrated

Myasthenia Gravis?

The world turning upside down and Hallucinations

Throat constricting/breathing issues

A helmet of hope?

Feeling very dizzy today

Vagal Nerve Stimulation

Sleep apnea and fnd

Bad day

FMD ..

Work capability assessment

New environments can be challenging so prepare ahead

Functional Seizures

Happy Gypsy

Excessive saliva

throat swallowing and speech issues

Let’s shout it out! Please use equipment in FND if you need it!

Thankyou for replies

Dizziness Article

Back to Life with FMD: Katie's Story

Not feeling well at all today

Breathless

I've not worked for 6 months .

Looking for locals

Twitching

Gardening today

Balance & Stability

Anxiety hit the roof today.

A couple of days at a Shepherds hut in bridgenorth for wife's birthday.

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