Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,652 members • 2,948 posts

Sort posts by:

Hello

Hello Everyone, I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are so varied. Mine are mild but...

Hello Everyone, I have just joined this group and look forward to reading your ...

Trish_GlaucomaUK

•13 hours ago

Antidepressants and FND

Hello. I was wondering how many of you are taking anti depressants with FND. Have you found them helpful or the opposite?

Hello. I was wondering how many of you are taking anti depressants with FND. Hav...

•1 day ago

One of David Tuller's aims is to look into the actual rather than the reported misdiagnosis stats re FND. He is hugely supportive of ...

... people with FN(C)D (sometimes known as 'Medically Unexplained Symptoms') and looking into the misdiagnosis stats should, down the line, help to ensure that...

... people with FN(C)D (sometimes known as 'Medically Unexplained Symptoms') and...

•3 days ago

Want to take advantage of all our features? Just log in!

or

goose bumps and Anxiety

Do any of you suffer from anxiety? Iv been suffer with the same bumps in my left arm for many years, well before Covid. In that time, Iv noted a pattern....

Do any of you suffer from anxiety? Iv been suffer with the same bumps in my l...

MollyNamespetra

•5 days ago

Be the first to reply

How to practise Positive Thinking

I was reading this earlier and thought good advice in general but could help our Community members become more resilient in our times of adversity. "While...

I was reading this earlier and thought good advice in general but could help our...

•6 days ago

Be the first to reply

FND Stories

A video that was just shared, you are not alone, try and focus on the things that you can control: Hope: FND Stories (youtube.com) Another post I just read on...

A video that was just shared, you are not alone, try and focus on the things tha...

•6 days ago

Be the first to reply

FND rule in signs

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ Its at the bottom with other "rule in" signs which I tried to add.

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ ...

•9 days ago

Functional neurological disorder: Engaging patients in treatment

Apologises if posted somewhere before, but it was the date of this article and the recommended Care Model that caught my eye, I was searching for "rule in"...

Apologises if posted somewhere before, but it was the date of this article and t...

•9 days ago

Newly Diagnosed

Hi All, Last year I developed a chronic sinus infection (went on for 6 months in the end) that was misdiagnosed as an ear issue solely. The stress, months of...

Hi All, Last year I developed a chronic sinus infection (went on for 6 months i...

•9 days ago

recently diagnosed

hi all, I was recently diagnosed with FND after being admitted to the hospital with weakness/stiffness in my legs and my arm. My symptoms stated in early...

hi all, I was recently diagnosed with FND after being admitted to the hospital...

•13 days ago

frustrated

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I’m having symptoms of FND. I remember having my first seizure at 17 years old...

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I...

•14 days ago

Sensory Processing and PTSD

I found this article really interesting (yet to read it all, initially attracted to images):...

I found this article really interesting (yet to read it all, initially attracted...

•14 days ago

OT and FND - the therapist you should have on your team

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Following a sensory-based OT intervention, 62% of individuals with FND were...

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Foll...

•14 days ago

FND Research Article

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/news/2021/research/research-reveals-cause-mystery-condition/

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/...

•18 days ago

Hi there - are there any group meet ups in person please?

I am supporting someone who has FND and she would really like to meet other people who have this condition. I am just doing some investigating on her behalf....

I am supporting someone who has FND and she would really like to meet other peop...

•20 days ago

Autism Assessment

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2 years and on top of that the school are only assigned so many hours, so that...

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2...

•22 days ago

FND Awareness month

#fndawareness I just clicked on this and there are over 27k posts so far on Instagram, I really hope things change.

#fndawareness I just clicked on this and there are over 27k posts so far on Inst...

•22 days ago

Baclofen?

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for MS. This would be to address widespread pain. It works with GABA receptors. Has...

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for ...

•25 days ago

temperature fluctuations

Hi Recent diagnosis of FND. I have had a problem with my body being very hot to touch with flu like feeling, shaking and all over body pain. My cheeks are...

Hi Recent diagnosis of FND. I have had a problem with my body being very hot t...

•26 days ago

The Stress System

Loved this article and its metaphors: The stress system is made up of multiple interconnected brain-body systems—the autonomic nervous system,...

Loved this article and its metaphors: The stress system is made up of multiple ...

•26 days ago

An Inspirational Story, full of Hope: Maureen's Story

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for 12 years, and she uses learn't techniques to help her stop her symptoms in...

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for...

•27 days ago

Evidence-Based Mind-Body Interventions for Children and Adolescents with Functional Neurological Disorder

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%–95% of children if diagnosis and treatment are promptly delivered using a...

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%...

•28 days ago

FND SUCKS

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no...

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain...

•29 days ago

Hello

Hi there, this is my first post and I am not sure of where I should start. I feel very alone these days, I am always unedge when it comes to stress management...

Hi there, this is my first post and I am not sure of where I should start. I fee...

•29 days ago

Do you suffer from nf1 or 2

Good evening friends I was wondering if anyone suffers from the rare condition NF1 OR NF2 it would be lovely to chat to anyone who suffers from this...

Good evening friends I was wondering if anyone suffers from the rare condition...

•29 days ago

Therapist

Regarding my last post. I told my therapist what WE were going to talk about and the things that WE are going to deal with, and they all have to do with this...

Regarding my last post. I told my therapist what WE were going to talk about and...

•1 month ago

FND is NOT FAKING IT

Sharing this image of brain scans which shows what was happening in an FND patient's brain during symptoms (on the right), against the scan on the left where...

Sharing this image of brain scans which shows what was happening in an FND patie...

•1 month ago

Staying in rosa burden

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wondering how a day to day goes and do we have separate rooms as I'm worried of...

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wonder...

•1 month ago

Mad as Hell

Eventually had a letter following a telephone conversation with a Children's Psychiatrist. The letter said I diagnosed ASD - however, she suspected it and I...

Eventually had a letter following a telephone conversation with a Children's Psy...

•1 month ago

Feeling so fed up

I'm feeling so low I want answers to whats going on my stroke like symptoms are stopping me working as the care home doesn't know what's my diagnosis are to...

I'm feeling so low I want answers to whats going on my stroke like symptoms ar...

•1 month ago

Write a post or ask a question

Search posts

Pinned Posts

FND STIGMA SURVEY

New information video

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Newly Diagnosed(32)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug

Sep

Oct