Thankyou for replies

[Gypsy_67]

Hi everyone 👋. Thanks so much for all your replies to my previous post. I've had a really ordinary few days and couldn't possibly reply to you all so I thought I'd do a big one. I really appreciate hearing from you all, I don't feel like such a freak. Prior to diagnosis my sister Kath got really sick of me calling myself idiot and various swear words for twitching etc, she didn't like the negative self talk. She decided the diagnosis was weird sh*t in my brain and it's name was Ed. Ed is the hyena in The Lion King with his tongue hanging out the side of his mouth and isn't all there. So now I tell Ed he's an idiot etc not me. Now we laugh about Ed and he gets blamed for every silly thing I do. The point of this story is don't be to hard on yourselves. Get your own Ed so this rubbish doesn't define you, it's seperate to who you are. I don't know if I'm explaining this very well, but you guys helped me and I'm just trying to return the compliment.

[Lady4]

Makes sense to me and if you can laugh about it and not get too anxious (as this can heighten symptoms) the more the better. Check out my last success story post and maybe your speech therapy might uae a similar technique.

Plus don't dwell on how your life may be (catastrophising) just deal with the here and now. Your positive outlook will help lots. Think about when we were children, if we fell we got right back up and tried again.

[Gypsy_67 in reply to Lady4]

I do my best to keep laughing and I've demanded that all my loved ones make fun of me because I hate seeing them upset too. If we can all laugh at Ed together, life is good.

[Lady4 in reply to Gypsy_67]

And maybe catastrophising isn't the correct terminology, more: "unrealistic and pessimistic forecast of the future"

Sometimes FND symptoms makes people slow down and then they have time to re-evaluate whats important in their lives, like a member I met on "Re-Active" last year.

[Littlecook]

Well done , it sounds like you have picked up since I last messaged you keep going .