How many FND sufferers have had TBI?

[jlbiggs]

I've suffered from FND for 3 years now. I first had intermittent symptoms until a fall and then they were permanent. I had been active all my life and had multiple concussions while participating in sports. My symptoms were so severe at the onset that I was hospitalized for 6 months. I was then bedridden and wheelchair bound for an additional year. I now do water therapy as I can walk in the pool without assistance. I am doing all I can to recover or at least maintain the health I have now. Through all my research that you all know we have to do ourselves, I keep coming to the same resolution that TBI has to have some correlation. The question is how much? How many of you out there have had TBI?

[Maravilla]

🙋‍♀️concussion (with evidence of a bleed that wasn't found until 9 months later) after a car accident

[jlbiggs]

Thank you for your intelligent response. My intention for the post was to gather statistics for my research, but I would gladly converse with someone that is educated/experienced in this matter. I have no idea as to how many concussions I have suffered from, as well as 3 harsh whiplashes. I am looking into damage done to all the ligaments at the C1/atlas junction. There are many professional athletes in sports such as football, hockey, and even the repetitive heading in soccer that later in life experience FND symptoms.

There is such technology-it's called a functional MRI. I have had 3 MRI's in the last 3 years. The first within 2 months of my head injury and the second, Jan. 2018. Both read clear. The third one was Aug. 2018 in a seated position, which is still inconclusive. A functioning MRI might reveal what is truly going on, but insurance will not pay. I do not think it's so rare/undiscovered, but a secret the insurance company wants to keep. I am 50 years old and I believe that anyone brought up during this generation involved in any activity that suffered repetitive head blows, has a high propensity to developing FND. This would prove way too costly for any insurance company to admit.

[jlbiggs]

I agree with you 100%, except for the fact that I am more cynical than you because I believe all the agencies know what is wrong but want to feed us the diagnosis of FND because they can keep us in permanent limbo neither approving nor denying claims. Leaving us to be our only advocate to truly find out what is wrong and knowing many of us do not have the resources to do so. If they admitted to knowing what is wrong, it would cost millions in the retribution/care of individuals with our condition.