Am i going mad

[bagpuss1963]

Are we all losing our mind according to some Drs. How do they know it's not MS all the signs and symptoms are the same as MS. I've even started losing bladder control. I cannot left my legs and my right arm. I have pins and needles hot aches, I shake some days I can't feed myself,I also have dystonia

I WOULD REALLY LIKE ANSWERS PLEASE.

[tabey]

Dear Bagpuss1963

Hi and i love the name btw 😀 i 100% agree with you. im the same with other stuff going on i been told im pre Ms ive been told nope its early stages ive been told is cis which leads in too ms then after complaining about the neurologist I get shipped off to Kings and all of a sudden it turns into neurological functional disorder.

have you had mri ,lumber punchure stuff like that done

im sorry your going through this horrible time and i agree its a scarey as hell but your not alone all ways here for a chat

[GentleFlower in reply to tabey]

Hahahaha I love the way you say “I’ve been shipped off to kings and it turns into neurological functional disorder” hilarious ain’t it just... this NHS you’re pushed and pulled all angles.. because they want to save money... money that’s not theirs but the tax payers like myself whose worked hard to be looked after at times like these but poor returns. 🙄

[pickleweed]

In MS, a person would tend to swing their leg around forward from the hip. In FND, a patient is more likely to drag their weak leg. FND can be diagnosed in limb weakness if the limb suddenly gains strength, like under distraction. Functional tremor can be diagnosed if the tremor changes during distraction, suggestion, or in rhythmic entrainment. The physical signs above don't diagnose FND with 100% certainty, but they can get close to 100%, like 95%.

[GentleFlower]

OOOOOH MY GOD!!!!! Hallelujah someone with a whole load of sense. I have the same problems, I find I cannot pee some days, hot aches too,some days I can’t feed myself too, my food has to be cut etc, pins and needles, cannot weight bear. Sometimes I think my brain is playing tricks and I try to walk and I just fall over all over the place like I’m drunk in love loool😂

I am so happy and over the moon to have found your post because I just wrote a response to another person saying exactly the same thing.. MS - I am almost certain it’s some kind of type of MS. I suffer motor weakness with the above mentioned symptoms, cannot remove clothes, have skin sensitivity and even to the light at times too. I have to just sit there like a vegetable. My iPhone is set to accessible touch ready for those horrible days I cannot press the home button.

I think the Dr’s are not telling us something here. They are in for saving NHS money but not helping us.

[GentleFlower]

Reading this has touched me and made me cry.

Sometimes I read other peoples stories on here and I just want to ignore when they are too long but yours I took the time to read as it was written perfectly, felt like you were talking right at me, the same exact things I struggle with on a day to day basis, so true, so real of what it is to have FND.

I cried only because FND is so hard, people never understand from being normal to becoming disabled and I could relate so much to everything you spoke of. The difficulties of cooking and eating, finding out the true colours of people...etc one has to just be so strong willed to get on with it, in whatever way they can.

I am just very lucky I have an amazing support network, my mother first of all at my every beck and call, I lost my fiancé when I became ill because he said he couldn’t accept everything even though I don’t accept it never asked him to but just to work together through it... wasn’t going to happen.

I have also met strangers who have become friends because they have a heart and are willing to help and want to help because of the type of person I am I guess, I’m a people person. I have made amazing friends...

I cannot thank God enough for putting me on the path he has, for y illness yes because things happen for a reason, not just to me but to all of us.

Of course I want my old 26 year old life back when I was diagnosed and became very unwell, now I’m 28 and I’m 23months into FND and about to start a course to become something great...

With FND it is what it is, Can’t ever accept it but can deal with it each day in the best way I can with those who love me for me no matter what.

Thank you so much for taking the time to write this.

It’s been and is emotional - FND

I wish you all the best and mean that from the heart. Hope you some say get back your old life too or better, a new life where you are well again

Love GentleFlower 😘🌹😘

[tabey]

Dear Bagpuss1963

I tottally agree with you 100%

I losted a huge part of my life to what ever this is my job id worked in the same place for over 17 years and loved things started too happend to me every day i felt like i was wearing armour,my tounge felt strange,numbness down one side of my face, my body was burning inside and i got horrible burning in tops of my legs but it felt like being stung by many wasps at the same time my balance went i could be walking along and then im on the floor all of these came on over a year some togther some not and they came and went some days i was kk others i was not then the hesdacres hit double vision cramps at night my body felt like i was attached to a tence machine which plesed it self when it sent a shock and at what setting i has a mri and a leison on the bran was found i had a week in hospital as i collased and that was terrible time i got accused of being depressed as i burst into tears after not being to get up walk to the bathroom with doing some zigzag zombie walk to the bathroom to get there a noitce it was to late id wet my self omg the shame i felt that day haunts me. i still get all this 2 years on i seen about 4 different neuros all said different things ms,cis,small brain tumour now i get i got too many symtoms for the size of the brain lieson so it must be FND then on next trip to see neuro who told me the above lauthed and said you cant have to many symtom for ms as it affect the body in many ways bur here is a website your be booked in to rehab but it take about a year to get in best of luck bye bye whar im waffling on about is it all comes down to money and % figures targets not patient care if u have ms u get access to all sorts of surport and fnd u get a website ' brilliant' sorry its turned into a moan i guess but i cant work it out iny head. non of us put this one bur we made to feel like we are and wasting theŕe time i cringe inside now if i have to doctor when are we going to be given a break.

so i tottaly get the feeling of losing it

tabe