Ireland

[KNAPPOGUE22]

I was diagnosed in march 2014 with fnd.hard to take in so confusing for me only 44.three children that are very worried about me.i suffer pain mostdays. I have numbness stiffness and weakness memory loss confusion dizziness. Waiting to see a new neurologists due to body muscle relapsing sleeping more.i loved walking not able for long distance anymore. Is this normal. Tired exhausted everyday.no energy. Does anyone else feel like this

regards LIZ

[Hidden]

Hi and welcome to this site.

I can tick yes to all of the above.

I was diagnosed last year but have had symptoms for 3 years. Waiting to see specialists now soon but had to independently contact consultants as wasn't receiving any treatment.

There is not a lot known about this disorder in the medical world.

Dr Jon Stone who is based is Edinburgh is one of the leading researchers. Are you in Ireland? Do you have a neurologist specialised in FND?

A lot of neurologists are not and that doesn't help.

There are a couple of websites the FND hope and neurosymptoms.org which was written by Jon Stone if you want to know a bit more but this is a really good site to meet people, ask questions, just have a chat or tell us if you are having a good or bad day.

We chat a lot on here so please join us. You are not alone and everyone has variations in conditions and treatments so it is interesting to see what works or doesn't work for others 😊

[KNAPPOGUE22 in reply to Hidden]

Thanks

[Hidden in reply to KNAPPOGUE22]

Liz are you from Ireland?????

[KNAPPOGUE22 in reply to Hidden]

Yes

[Hidden]

Liz.

Yes, you describe early stage symptoms that I experienced. It has evolved and become multi symptom battle for me but it varies greatly person to person.

Unfortunately, have found little help from medicine but I am from USA.

Please keep writing. This is a great community of support.

Dan / Seattle

[KNAPPOGUE22 in reply to Hidden]

Thanks

[Unicorns1977]

Hi Liz, just checking to see how you are getting on? I'm similar to you, from Ireland, 41, 2 kids. So interested to see how you are. I've had FND for many years. I have benefited hugely from psychotherapy in the last 2 years. Been well for months and months but having a wee set back now. These things happen.

[carrickgirl1 in reply to Unicorns1977]

Can I ask you if you got a specialist in Ireland if so can u tell me who please.

[Momofson]

I hope you have had lots of other tests before you accept a FND diagnosis. Have you had a complete thyroid check, with bloodwork including thyroid antibodies? Have you had vitamin D3 and B12 checked? Have you been checked for autoimmune encephalitis and sarcoidosis? So many other things to check before settling.