Ramp Up ... CRASH Cycle

[TheLarryAndy]

It is ALMOST Friday...Much love to you all! Keep pressing on one day at a time! Suuuubbbbsscrrriiiibbbe

youtu.be/hDFHAhq2JyQ(Not working as expected?)

[cgarff]

OH my gosh, I totally get what you are saying. I am right there with you girl! I have the.. I can do it moments, totally over due it because I feel good for a moment, then I hit that wall, and am completely useless or have more issues afterwards.

In fact I did it yesterday. I got busy doing some yardwork yesterday, felt good to get it going and try to get it all done. Then all of a sudden hit the wall. I thought I could take it easy for a while and try and relax. I thought I could go and take a bath, and try to relax my sore tight muscles from overdoing it. I sat there, and watched a movie on my tablet, and near the end of the movie my body started jerking or jumping which lead into me having 12 seizures in the tub. It totally took me out for the rest of the night, and I had a horrible night. I am hoping for a better day, but so far, I am just done!

You are totally not alone though. This sucks. I keep thinking that I will be able to tell when I should take it easy, but hey, I feel good, I want to be the old me, I want to be able to get things done.. So I over do it, and regret it afterwards. Sure it is nice to have things done, but oh my gosh, does it have to come with such a cost?

I heard once from a therapists that lives near me, that you shouldn't do a "To Do" list, because that just becomes depressing, and you become way to hard on yourself. I really feel that with this disability. So she suggested to change that list to a "Ta Da" list. Instead of feeling bad that you only got a few things done, turn it around, and celebrate the things that you were able to do.

For instance.. I was able to get up and get out of bed.. I was able to take a shower, and maybe do some laundry.. I was able to wash some dishes. All "Ta Da's".. Because you were able to do something. We can't be superwoman all the time, we have to take it easy, give ourselves time, try our best not to over do it, and hope that we haven't, and maybe learn from what we did wrong. For some reason I haven't figured that one out because I keep overdoing it, and then pay for it later.

I wish you the best, and hope that you can figure it out. Love the video, I am super jealous you can talk! This disorder really screws up my voice as well, and the only time I can get that many words out all at once is when my voice is hoarse. I love those moments.

Best of luck to you

Cheryl

[Hidden in reply to cgarff]

I agree I do a pat myself on the back, really because I have no one else to do it. But sometimes you do something then think later that was quite impressive and I never gave myself credit at the time.

I'm all for the Ta Da list 😊

[TheLarryAndy in reply to Hidden]

Nice

I love that!

[TheLarryAndy in reply to cgarff]

Sorry it took so long to respond! I got locked out of my unlocked account. Hahaha. I'll read when awake!