So I'm on week 2 of exhaustion.... get up at 7 sort breakfasts , lunches kiddo to school! Walk dog an hr then sleep / rest 10-2.30.. get up get kids do dinner maybe play hide and seek..... but I'm so exhausted .. sleep all night... sleep all day... any body got anything that helps give you energy?? Going to start to shorten dog walk see if that helps! But I know you all understand the tiredness it's so hard to explain to anyone else.... I feel I'm lazy but I just can't at the moment....😴😴😴😴

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  • Hi Hun, have you picked where you are moving too, the lovely 😊 big garden home? The one good thing is that you can sleep 😴, not being able to sleep or not for long is just awful. I know you can't sleep your life away as you have children and moving etc, so much you have to deal with but for me, I would love to sleep my nights and days away, just slip away from pain and strange awake dreaming, Same awake like dream every night in a museum of all places. Every night, just don't understand it, how can I be awake with the same dream like museum. I don't think I've ever been to a museum to even think about it. Soooo weird. And unexplainable. Best wishes πŸ€—πŸ€—πŸ€—

  • Hello my friend.... we opted for the detached home and finger crossed it's ours... move date 1st June. I remember those days of no sleep.... mind racing .... very strange dreams as you drop in and out of the small amount of sleep..... now I can't stop sleeping. So today I'm not going to sleep as I do need to do things.... well that's the plan ! Oh and these hot flushes are so annoying...must try and remember to get to the gp! Have a better day πŸ˜΄πŸ˜΄πŸ˜€πŸΎπŸ•

  • Hi last week I was absolutely shattered , spent a few days in bed. I am trying a paleo diet and generally eating healthier foods. Yesterday was awful , today feeling spaced out again . I wish we could just plug into a socket and recharge as I haven't found anything yet that works. Hoping this week will be somewhat better for us both 😊 X

  • I feel you... so today I've pushed past the tiredness and am cleaning the house! Saw gp as my periods stopped 2 months ago and with these hot sweats and being so hot I'd be naked if I could! So I mentioned maybe early menopause but at 43 it would be strange but not impossible he said ! So off for blood tests for that and Che k my kidney function! Waiting till next week due to the cyber problems! Let them get up to date first! But he said it's a rule out if it's no menopause could just be FND.... argh I hope not can deal with no periods but this over heating is awful.... if I was a size 14 or smaller I could get away with short sleeves but I'm not so long sleeves it is 🀣😱😜

  • Hi mine also stopped last August when my system went into meltdown and seizures started. I also get one week when I sweat at night and feel hotter than normal , I am 48 , I've mentioned it but doctors aren't at all bothered and have just ignored it so far so it may well be another trait of fnd ?

  • Oh my gosh... really... wow then maybe it's that.... my jolts got really really bad tried meds no joy new meds worked wonders.. but no periods but the sweats.... well I'm glad my gp was like let's rule it out! But if it's the fnd what can be done??! Being this hot is milking me...and I love the heat... used to sunbath in baby oil in my younger years... today is lovely but I'm so hot I'm in just a tank top ... the odd breeze comes through the house!! But Plu side is I've cleaned the down stairs carpets! Oh and as I keep forgetting to order my meds they will bulk order 9 months with the pharmacy so it comes every month with out my intervention... πŸ˜œπŸ€—. Wonder if loosing weight wil help? My Freind just gave me detox tea! It tastes lovely... mmm idbetter put house bs k together before kids πŸ˜€πŸ˜‡πŸ€—πŸ€—πŸ€—

  • I guess like most things with this crazy condition it will eventually sort itself out and knowing our luck they will reappear at some awful time out of the blue! Just have to live in hope that some day soon our brain will make some sense of all this mayhem and our nerves will repair themselves enough for us to regain some sort of normality , big hugs for better days ahead πŸ€—

  • I'm feeling your pain

  • im the same at the moment balance is off to so im like a drunken sailor with a hangover i didnt have any enjoyment getting !!!

  • lol I'm like that when I wake up very disorienting πŸ˜‚

  • I get up and feel tired takes me ages to do one simple thing but i do laugh at my mistakes coz they are so silly !!

  • It's funny I was just giving my gardener advice on his little boy stuff we've learnt for our various therapists when it hit me... I should re-train and do this as a job!!! But I just don't have the energy... I will just share my knowledge for free xxxx unqualified knowledge of course 😱

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