Posts - Behçet's UK | HealthUnlocked

Behçet's UK

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centre of excellence

out of interest if I am referred to a centre of excellence what are people’s experiences within the 3 centres? As I believe I’d have to make a choice of which...

out of interest if I am referred to a centre of excellence what are people’s exp...

Welsh92

•13 hours ago

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frustrated

Update from my appointment; So my consultant says he may be being over cautious regarding a diagnosis and won’t diagnose me yet as he wants to wait for...

Update from my appointment; So my consultant says he may be being over cautiou...

Welsh92

•13 hours ago

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Fatigue

I have fatigue since I was diagnosed with Behcet's, now within the past months it has intensified, I can barely do simple household tasks or work with the...

I have fatigue since I was diagnosed with Behcet's, now within the past months i...

maratxel

•5 days ago

5 Replies

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The BAD and BSR living guideline for managing people with Behçets

The British Association of Dermatologists and British Society for Rheumatology living guideline for managing people with Behçets 2024 has been co-published...

The British Association of Dermatologists and British Society for Rheumatology l...

UKADMIN

Partner•7 days ago

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Behçet's UK Conference & AGM - 19 October 2024 - Liverpool & Online

Our 2024 Conference and AGM will again be hybrid, and will take place on Saturday 19 October 2024 at the Holiday Inn City Centre Liverpool and online....

Our 2024 Conference and AGM will again be hybrid, and will take place on Saturda...

UKADMIN

Partner•12 days ago

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Incomplete Behcets?!

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as...

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! ...

TigerLily42

•13 days ago

10 Replies

Why I am getting frequent bruises?

I am on Azothioprine 50mg BD, Methylpredinisolone cyrrently 2mg daily( ranging from 16-8-4-2 mg over time) and Cochicine .5mg BD and few supplements since one...

I am on Azothioprine 50mg BD, Methylpredinisolone cyrrently 2mg daily( ranging f...

BoonG

•14 days ago

2 Replies

colchicine with DMARDS?

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks Steroids and to start Azathioprine. I have no instructions just to get a set...

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks...

CecilyParsley

•21 days ago

6 Replies

help please

hi I have been diagnosed with Behçet’s disease which I had never heard of before. Waiting now to see a further consultant. Any help or advice on this would be...

hi I have been diagnosed with Behçet’s disease which I had never heard of before...

bubble1975

•21 days ago

4 Replies

how long is the first appointment

Hi, I am due to attend my first appointment in the London hospital in a few weeks, We will be getting the coach there and back but we were wondering how long...

Hi, I am due to attend my first appointment in the London hospital in a few we...

Romania2023

•22 days ago

2 Replies

severe pain with no inflammatory markers

Hi everyone. Can anyone relate to this please? Briefly I had a surgery in early February and haemorrhaged afterwards. My left keg became very stiff and...

Hi everyone. Can anyone relate to this please? Briefly I had a surgery in earl...

CecilyParsley

•28 days ago

2 Replies

medication question

Hello, I have had Behcet's for the past 18 years and usually respond to steroids, colchicine and Otezla. Having inner ear issues, antibodies and heart...

Hello, I have had Behcet's for the past 18 years and usually respond to steroids...

FLFarm

•1 month ago

2 Replies

Newbie

Currently trying to seek diagnosis

Fedupfemale87

•2 months ago

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Skin Cancer, Azathioprine and Colchicine

Hi All I rather recently had my official DX of BD and they have recommended a reverse taper of Azathioprine starting low and increasing dramatically to dampen...

Hi All I rather recently had my official DX of BD and they have recommended a r...

CrochetGiraffe

•2 months ago

1 Reply

Behcet's muscle spasms??

Has anyone ever had muscle spasms with Behcet's? Just in the past several months I have had bad muscle spasms in my neck and this is new for me. Thank you!!

Has anyone ever had muscle spasms with Behcet's? Just in the past several month...

Psalm116

•2 months ago

9 Replies

Appointment expectations

Hi, I’m about to have my appointment at the COE Liverpool, really don’t know what to expect? Anyone have any advice?? thank you! 🙂

Hi, I’m about to have my appointment at the COE Liverpool, really don’t know wha...

Fluffycloudinthesky

•2 months ago

4 Replies

Labyrinthitis

Hi, I was dx in 2007 at age 35 but my first symptoms appeared at age 7. I’ve recently started having issues with Labrynthitis. Does anyone else suffer with...

Hi, I was dx in 2007 at age 35 but my first symptoms appeared at age 7. I’ve rec...

Ktmc99

•2 months ago

8 Replies

First Post

Hello, I was diagnosed with Behcets many years ago, but, never started on immunotherapy as recommended. Over the years, I have been diagnosed with migraines,...

Hello, I was diagnosed with Behcets many years ago, but, never started on immun...

Coalbeach

•2 months ago

1 Reply

Be your own case manager

I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well...

I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interes...

SCMW

•2 months ago

6 Replies

Marina coil

Please can you share your experience with Marina coil if you have one.Does it effect symptoms? Does implantation cause any symptoms? Many thanks in advance.

Please can you share your experience with Marina coil if you have one.Does it ef...

Icefire

•2 months ago

9 Replies

Eye symptoms

Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A...

Has any one been told they have early onset macular degeneration? Also weak reti...

Missyjasper

•2 months ago

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Genital ulcers

Hi I’m currently waiting for a 1st appointment at the London centre but been told there is a 7/8 month wait 😭. I am 42 and suffered badly with mouth ulcer...

Hi I’m currently waiting for a 1st appointment at the London centre but been t...

Missyjasper

•2 months ago

21 Replies

Afraid to start Colchicine and Azathioprine for Behcet's

My son has just been diagnosed with Behcet's and prescribed colchicine and azathioprine. He is afraid to start taking them, fearing that the side effects will...

My son has just been diagnosed with Behcet's and prescribed colchicine and azath...

Ryokan

•3 months ago

11 Replies

infliximab

hi I have two autoimmune diseases Crohn’s and behcets and am being treated with infliximab but I wonder if anyone else on this treatment gets bad headaches.....

hi I have two autoimmune diseases Crohn’s and behcets and am being treated with ...

jennyjayne

•3 months ago

1 Reply

Help Please 🙏🏻

Hi everyone, I desperately need the advice of people who can understand my situation. I am afraid for the first time since I became ill in 1990 that I am at my...

Hi everyone, I desperately need the advice of people who can understand my situa...

CecilyParsley

•3 months ago

22 Replies

swelling around eyes/eyelids

has anyone experienced redness, swelling, burning and itching of the eyelids. This is a new symptom I have been experiencing since March and had a small flare...

has anyone experienced redness, swelling, burning and itching of the eyelids. T...

Lmurri23

•3 months ago

15 Replies

Genital ulcers reoccurring in same place after having sex... And problems after a deep tissue biopsy!

Hi all, I only posted recently regarding cervical ulcers and joint pain etc! But just have another question regarding genital ulcers and stuff down there!...

Hi all, I only posted recently regarding cervical ulcers and joint pain etc! But...

TigerLily42

•3 months ago

9 Replies

Dietary tips going through a flare

Hi, I have been recently diagnosed with Becehts Disease but still wait months to see a Rheumatologist. I am currently going through a difficult flare and the...

Hi, I have been recently diagnosed with Becehts Disease but still wait months to...

Gigi1999

•4 months ago

2 Replies

Waiting on

Waiting on CT scan results. Have had viral meningitis, have uveitis in right eye, constant headaches, joint pain, back pain, are people allowed to work and...

Waiting on CT scan results. Have had viral meningitis, have uveitis in right eye...

Chocolate79

•4 months ago

1 Reply

Cervical ulcers and joint pain- any advice?

Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer...

Hello, I am currently undiagnosed with Behcets disease and under the care of the...

TigerLily42

•4 months ago

4 Replies

Write a post or ask a question

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

centre of excellence

frustrated

Fatigue

The BAD and BSR living guideline for managing people with Behçets

Behçet's UK Conference & AGM - 19 October 2024 - Liverpool & Online

Incomplete Behcets?!

Why I am getting frequent bruises?

colchicine with DMARDS?

help please

how long is the first appointment

severe pain with no inflammatory markers

medication question

Newbie

Skin Cancer, Azathioprine and Colchicine

Behcet's muscle spasms??

Appointment expectations

Labyrinthitis

First Post

Be your own case manager

Marina coil

Eye symptoms

Genital ulcers

Afraid to start Colchicine and Azathioprine for Behcet's

infliximab

Help Please 🙏🏻

swelling around eyes/eyelids

Genital ulcers reoccurring in same place after having sex... And problems after a deep tissue biopsy!

Dietary tips going through a flare

Waiting on

Cervical ulcers and joint pain- any advice?

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