Posts - Behçet's UK | HealthUnlocked

Behçet's UK

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centre of excellence

out of interest if I am referred to a centre of excellence what are people’s exp...

frustrated

Update from my appointment; So my consultant says he may be being over cautiou...

Fatigue

I have fatigue since I was diagnosed with Behcet's, now within the past months i...
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The BAD and BSR living guideline for managing people with Behçets

The British Association of Dermatologists and British Society for Rheumatology l...
UKADMIN profile image
Partner

Behçet's UK Conference & AGM - 19 October 2024 - Liverpool & Online

Our 2024 Conference and AGM will again be hybrid, and will take place on Saturda...
UKADMIN profile image
Partner

Incomplete Behcets?!

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! ...
TigerLily42 profile image

Why I am getting frequent bruises?

I am on Azothioprine 50mg BD, Methylpredinisolone cyrrently 2mg daily( ranging f...
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colchicine with DMARDS?

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks...

help please

hi I have been diagnosed with Behçet’s disease which I had never heard of before...
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how long is the first appointment

Hi, I am due to attend my first appointment in the London hospital in a few we...
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severe pain with no inflammatory markers

Hi everyone. Can anyone relate to this please? Briefly I had a surgery in earl...

medication question

Hello, I have had Behcet's for the past 18 years and usually respond to steroids...
FLFarm profile image

Newbie

Currently trying to seek diagnosis

Skin Cancer, Azathioprine and Colchicine

Hi All I rather recently had my official DX of BD and they have recommended a r...
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Behcet's muscle spasms??

Has anyone ever had muscle spasms with Behcet's? Just in the past several month...
Psalm116 profile image

Appointment expectations

Hi, I’m about to have my appointment at the COE Liverpool, really don’t know wha...

Labyrinthitis

Hi, I was dx in 2007 at age 35 but my first symptoms appeared at age 7. I’ve rec...
Ktmc99 profile image

First Post

Hello, I was diagnosed with Behcets many years ago, but, never started on immun...
Coalbeach profile image

Be your own case manager

I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interes...
SCMW profile image

Marina coil

Please can you share your experience with Marina coil if you have one.Does it ef...
Icefire profile image

Eye symptoms

Has any one been told they have early onset macular degeneration? Also weak reti...

Genital ulcers

Hi I’m currently waiting for a 1st appointment at the London centre but been t...
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Afraid to start Colchicine and Azathioprine for Behcet's

My son has just been diagnosed with Behcet's and prescribed colchicine and azath...
Ryokan profile image

infliximab

hi I have two autoimmune diseases Crohn’s and behcets and am being treated with ...
jennyjayne profile image

Help Please 🙏🏻

Hi everyone, I desperately need the advice of people who can understand my situa...

swelling around eyes/eyelids

has anyone experienced redness, swelling, burning and itching of the eyelids. T...
Lmurri23 profile image

Genital ulcers reoccurring in same place after having sex... And problems after a deep tissue biopsy!

Hi all, I only posted recently regarding cervical ulcers and joint pain etc! But...
TigerLily42 profile image

Dietary tips going through a flare

Hi, I have been recently diagnosed with Becehts Disease but still wait months to...
Gigi1999 profile image

Waiting on

Waiting on CT scan results. Have had viral meningitis, have uveitis in right eye...
Chocolate79 profile image

Cervical ulcers and joint pain- any advice?

Hello, I am currently undiagnosed with Behcets disease and under the care of the...
TigerLily42 profile image
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