Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,252 members • 4,332 posts

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ear issues

Hi I’m currently going through the diagnosis process. I have recently had terrible ear pain- possibly an infection and perforated ear drum. But only in the...

Hi I’m currently going through the diagnosis process. I have recently had terr...

Fluffycloudinthesky

•19 hours ago

1 Reply

Undiagnosed for years

hello , I’ve read many of your stories and whilst it is never good to hear of people suffering I’m heartened to read of symptoms that others experience very...

hello , I’ve read many of your stories and whilst it is never good to hear of pe...

Swimbler

•11 days ago

3 Replies

Bechets support pip

Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they...

Hi I was wondering if anybody is on pip or had won there win appeal.I have sever...

Tibz

•12 days ago

10 Replies

Want to take advantage of all our features? Just log in!

An idea, spread the story.

Hello, My dear friends, I believe that this community is huge and incredibly important. I have an idea that I hope we can all collaborate on implementing....

Hello, My dear friends, I believe that this community is huge and incredibly ...

BigSail

•16 days ago

Be the first to reply

Important, do not skip. next step?

(This community is huge, next step?) I found out the Reddit page and i wrote this massage, then i found this page and I wanted to post here again with more...

(This community is huge, next step?) I found out the Reddit page and i wrote t...

BigSail

•18 days ago

3 Replies

WE MUST CAMPAIGN

I am age 33 had bechets from a tennager, and it has completely ruined my life in every aspect from living a normal daily life to raising my children, I feel...

I am age 33 had bechets from a tennager, and it has completely ruined my life i...

RAJA_

•18 days ago

9 Replies

Colchicine

Hello, I’ve finally persuaded my GP to let me try colchicine for my mouth ulcers while I wait for a referral, and they’ve given me enough for 6 days. I’m 4...

Hello, I’ve finally persuaded my GP to let me try colchicine for my mouth ulcer...

Char_123

•19 days ago

6 Replies

Hi does anybody get pip

Hi I was wondering if anyone gets pip for this illness. As it is serious and nobody seems to be taking it serious. Thanks.

Hi I was wondering if anyone gets pip for this illness. As it is serious and nob...

Tibz

•27 days ago

2 Replies

lichen

Too much to tell.

lichen

•1 month ago

Be the first to reply

Genetic marker

Do you have to have the hla genetic marker to be diagnosed with behcets ?After testing i am negative for the gene but still getting symptoms, my rheumatologist...

Do you have to have the hla genetic marker to be diagnosed with behcets ?After t...

Amandajane64

•1 month ago

8 Replies

Bechets

Hi can you help me im struggling with bechets for a very long time im mentally physically emotionally fedup.I'm at the stage were I cannot eat now. Please can...

Hi can you help me im struggling with bechets for a very long time im mentally p...

Tibz

•1 month ago

16 Replies

Reactions to insect bites

Hi all. I joined here today and I'm learning so much. I have not been diagnosed but a rheumatologist mentioned about a year ago that I might be at the early...

Hi all. I joined here today and I'm learning so much. I have not been diagnosed ...

Helsybellsy

•1 month ago

5 Replies

Severe tendon pain

Hi everyone. I hope you are having a Happy Easter 🐣🐥🐤🍫 I would like to know if any of you have experienced really severe tendon pain? For a month niw my...

Hi everyone. I hope you are having a Happy Easter 🐣🐥🐤🍫 I would like to know...

CecilyParsley

•1 month ago

29 Replies

Bechets

I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was...

I am still very much at the beginning of my journey. I have suffered from mouth...

Mummyof7

•2 months ago

6 Replies

Referral to Liverpool CoE

Hi everyone, Just wanted say thanks to everyone that responded to my first post a few weeks back. It's been really helpful. My doctor has referred me to the...

Hi everyone, Just wanted say thanks to everyone that responded to my first post ...

TigerLily42

•2 months ago

3 Replies

Help me! behcet syndrome with tuberculosis

Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have...

Hello, I have had Behcet's disease for 10 years, which does not respond to treat...

Hulusi

•3 months ago

5 Replies

Is it Behcets?

I imagine lots of you like me have struggled to get a diagnosis, but I'm at the end of my tether! I've seen gastro and Max fax without joy, and I'm now so fed...

I imagine lots of you like me have struggled to get a diagnosis, but I'm at the ...

Emwb

•3 months ago

4 Replies

Infusion port

Hey all, does anyone with Behcet's have any experience with getting an infusion port (port-a-cath?) For their infusions? I'm having infusions every 4 weeks...

Hey all, does anyone with Behcet's have any experience with getting an infusion ...

Matillymoo

•3 months ago

2 Replies

Strep throat or bechets?

Strep throat? im 35 been coping with bechets symptoms since 8 but my mother said first signs were 2 or 3 years old years of trial error meds ...im wondering if...

Strep throat? im 35 been coping with bechets symptoms since 8 but my mother said...

Hurtssogoodhanot

•3 months ago

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Suspected Bechets - affecting me mentally & physically

Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with...

Hello, So sorry for the long post! So my doctor believes I have Bechets and I am...

TigerLily42

•3 months ago

13 Replies

Anyone with behcet's taking rinvoq?

I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a...

I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective ...

FrancisB

•3 months ago

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Is it Behcet’s?

Hello! I’m hoping I can get some advice to see if I’m barking up the right tree.. I’m 25 female and I’ve been suffering with mouth ulcers for the last 18...

Hello! I’m hoping I can get some advice to see if I’m barking up the right tree....

Char_123

•4 months ago

13 Replies

Last call for Secukinumab in Behçet’s trial

The closing date for patients wishing to take part in the Secukinumab in Behçet’s trial is the end of this month. Please visit our website to find out more...

The closing date for patients wishing to take part in the Secukinumab in Behçet’...

UKADMIN

Partner•4 months ago

Be the first to reply

vestibular Disorder

SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone MY QUESTIONS 1.Do you/have you experienced vertigo? 2. What treatment did...

SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone ...

magician

•4 months ago

8 Replies

PIP Claim

I am supporting a friend who has severe symptoms. If they do very much on a good day, they suffer. We are looking for information, stories on successful PIP...

I am supporting a friend who has severe symptoms. If they do very much on a good...

SianAubrey

•4 months ago

8 Replies

Gastroenterologists with Behcets experience

I’ve had gastro symptoms as long as I can remember and do believe it is Behcets associated. I’ve had IBS diagnosed as a child since then, you’ll see my other...

I’ve had gastro symptoms as long as I can remember and do believe it is Behcets ...

SCMW

•5 months ago

6 Replies

Posterior segment vitreous cells

Just wanted to check in with the community, after 5-6 years of diagnosis on my most recent check with a COE I was told I had the above and its current state...

Just wanted to check in with the community, after 5-6 years of diagnosis on my m...

SCMW

•5 months ago

1 Reply

Begging for correct diagnosis

Hi everyone, my post will be long, so thanks in advance for taking your time to read. I feel hopeless and losing my hope to live and enjoy a life, reading some...

Hi everyone, my post will be long, so thanks in advance for taking your time to ...

Nares87

•5 months ago

3 Replies

Infected Nasal Sore

Hi everyone, has anyone ever had a nasal sore become badly infected? I felt I had a sinus infection a few months ago. I went to the chemist and they refused...

Hi everyone, has anyone ever had a nasal sore become badly infected? I felt I h...

CecilyParsley

•5 months ago

13 Replies

What do you eat when you're having a flare up?

Hi Behcets fam... I need breakfast/lunch/dinner inspiration for when I have several ulcers in my mouth and have to used topical medication to numb the pain....

Hi Behcets fam... I need breakfast/lunch/dinner inspiration for when I have sev...

jaquarius

•6 months ago

2 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

ear issues

Undiagnosed for years

Bechets support pip

An idea, spread the story.

Important, do not skip. next step?

WE MUST CAMPAIGN

Colchicine

Hi does anybody get pip

lichen

Genetic marker

Bechets

Reactions to insect bites

Severe tendon pain

Bechets

Referral to Liverpool CoE

Help me! behcet syndrome with tuberculosis

Is it Behcets?

Infusion port

Strep throat or bechets?

Suspected Bechets - affecting me mentally & physically

Anyone with behcet's taking rinvoq?

Is it Behcet’s?

Last call for Secukinumab in Behçet’s trial

vestibular Disorder

PIP Claim

Gastroenterologists with Behcets experience

Posterior segment vitreous cells

Begging for correct diagnosis

Infected Nasal Sore

What do you eat when you're having a flare up?

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive