Genital ulcers: Hi I’m currently waiting for a... - Behçet's UK

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Genital ulcers

Missyjasper profile image
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Hi

I’m currently waiting for a 1st appointment at the London centre but been told there is a 7/8 month wait 😭. I am 42 and suffered badly with mouth ulcer from a teenager.

In the last year I started getting genital ulcers. First few times just the odd one but in the last 3 months or so they are getting more persistent and more at a time.

It’s so painful. In the end I went to sexual health clinic just to rule out any STI even though I have not been sexually active for 3 years and never been diagnosed with an STI previously Dr’s kept saying oh it could be herpes so I wanted no matter how humiliating to rule that out. Tests all negative for STI. I did explain they never came up in blisters just straight ulcers.

I have eye issues and always had stomach issues and have had unexplained ulcers found in my bowel on colonoscopies which were biopsied.

Anyway my question really is how do people cope with the pain of the genital ulcers and what do people use? Can I ask for anything in particular? My GP has recently prescribed some Betamethasome cream. Is there anything else I can do/use?

TIA

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