centre of excellence

[Welsh92]

out of interest if I am referred to a centre of excellence what are people’s experiences within the 3 centres? As I believe I’d have to make a choice of which one I’d want to attend.

[Sherlock11]

I have been attending Aintree CoE since 2018. The care I have had from all staff members over the years has been exceptional. The helpline run mainly by Sarah the nurse consultant is your first contact if you need help in between appointments or you just need advice. I have found Sarah always returns my calls really quickly and if needed asks you to attend. As Behcet's is such a rare illness it's great to attend somewhere where everyone understands the condition.

[Welsh92 in reply to Sherlock11]

Thank you so much for your reply. Was you diagnosed before going there?