I dread summer

[Butterfly54]

Do any of you with BD have an allergy to the sun ie photosensitivity .

[magician]

Yes, I am very sensitive to sunlight.   Even indirect sunlight can make my face feel like it is burning.    

[Butterfly54 in reply to magician]

It`s a pain isn`t I get blisters even through glass so have to be very careful.I`m on exstremly high vitamin D tablets as my count was only 3,you could say non exisitantHave not been diagnosed yet I`m waiting for the appointment at the London hospital,been trying to tell myself I don`t have it but have a mouthful of ulcers and one down below.xx

[magician in reply to Butterfly54]

Oops, you are so much more sensitive to the sun than I am!.   So sorry to hear of your blisters.   I once had them, but I could say I deserved it because I went sunbathing (one and only one time!).    I could enjoy being under the sun in my younger years.   I had the blisters when I was 19.   Thereafter, I became increasingly photosensitive.

Wishing you a correct diagnosis.   Being told that we have this or that disease may not be a cause of happiness, but it at least points us towards the appropriate medical care.

Cheers and best wishes 

[lemonade1]

I have recently been diagnosed with Bechets, but have suffered from a condition called Polymoriphic Light Eruption ever since I can remember, whenever I go away on holiday during the summer I come out in a really painful rash. It usually starts on my toes and fingers and then spreads up my shins/arms but also if it is extremely powerful it also can spread all across my chest. Steroid cream over night usually helps slightly as well as taking some prednisalone. I had not made the connection between the bechets and this until now. I am in the process of being referred to the London Bechets clinic so I will bring this up with them when I see them and ask if it is connected. It is such a painful rash, it ruins most of my holidays I go on. 

[Marushka-k]

This post is very timely...

Is it possible that it's a medication side effect?

I had my first big flare of Behcet's in 2004, though it wasn't diagnosed until 2007, but just recently - only the last six months - I have become extremely sensitive to the sun. I can't go out at all during the day, and even the sun through the house window is unbearable. (I live in Australia so we do have a lot of sun!).

I have a patchy rash on my neck and chest, which goes down further than the neckline of my clothes. It usually just burns, but when I have spent too much time in the sun (in the car driving to the city), it does get itchy, and when I scratch it burns!  

I initially thought it might be a side effect of plaquenil (as it is mentioned as a side effect), so I stopped taking it six weeks ago. The photosensitivity hasn't got any better.....

[belle623]

Butterfly54

Yes😞 20 min in the sun exposed skin breaks out in leassions/sores, my headache tamps up and the whole flare up begins. Heat in general is horrid. My leggs and arms swell like crazy. I feel like i need to move to the North Pole or Greenland.  So hats, longs sleeves and I just ordered a Veskimo cooling vest to keep my body temp down. 

Hope you can some what of a pleasant summer xo

Ash

[Jaxxi]

I have found that since I have been on colchicine I burn more easily and the burns take a very long time to heal. 

[Michja]

If you are taking Azathiprin you have to be extremely careful of the sun at all times. I agree I burn easily on Colchicine too.