I have just returned from the Birmingham CoE having got my diagnosis. I have been unwell on and off since childhood with Behcets-type symptoms, but it has taken until now to put all the pieces together. I am 56.
I was diagnosed with Chronic Fatigue Syndrome in 2000, although I was not confident it was correct as ulcers, spots, rashes and bruises didn't seem to fit. So, whilst I am relieved that we finally know what is up with me after all this time, I also feel a lot of anger and some sorrow for the young woman I once was, who was treated as mentally ill because she made such a big deal about ulcers, zits, aches and pains, headaches, constant diarrhoea and feeling tired all the time.
I have to say, though, that the treatment I had in Birmingham today was beyond excellent. What a great bunch of people, who seemed determined to make me go home feeling better than when I went in, whatever the outcome. It is so reassuring - not just for me but also for my wonderful husband, who has had to put up with my 'mystery illness' for 15 years - to feel that at last I am in good hands.