Just back from northern scotland
FredaE3 days ago
Poolewe from the subtropical gardens at Inverewe in Wester Ross
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A chat, coffee, cuppa tea & cake - Next Tuesday 25th September if you live close to the Three Counties
Yanno3 days ago
Don't forget....If you have an interest in MSA and live in "The Three Counties" of Gloucestershire, Herefordshire or Worcestershire (or can ...
5 Replies1 Like
vocaliser804 days ago
Do other MSA sufferers also have serious balance problems? Is there anything that can help in any way?
g2gem6 days ago
Wondering if anyone has any experience of passing out in the night? My Dad has had a few episodes where he gets up in the night and then pas...
Anyone in the north of Scotland dealing with MSA?
g2gem11 days ago
Hi there, my Dad has MSA and I've spent hours on here reading about peoples experiences. In a way it is hard that people have such a varie...
9 Replies1 Like
East Midlands Support Group
Alisonleicssupport13 days ago
A warm welcome.....and cakes await to anyone wishing to share problems/suggestions and speak with Emma at this weeks meeting.
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Just starting this MSA journey
Marsha2813 days ago
Supporting my mum from afar. Glad to have found a community that understands the lows and highs.
Wishing everyone the very best memories.
Just like buses...
Janeyl14 days ago
The potential treatment candidates arrive together...
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A potential treatment...
My late husband participated in Phase 2 trials for this potential medication, so I am delighted to hear that it has the green light to proce...
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MSA people who live with this
greenvelvet17 days ago
hi looking to talk with people who are connected with MSA
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Let's have a chat! New date set for Worcestershire/Gloucestershire/Herefordshire Support Group
Yanno17 days ago
If you have an interest in MSA and live in "The Three Counties" of Gloucestershire, Herefordshire or Worcestershire (or can travel there!) c...
My Journey with MSA!
Neillpedro22 days ago
This is my journey. Living with the very rare MSA (Multiple System Atrophy) disease has so many challenges both personally and for those aro...
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My journey with MSA
Neillpedro23 days ago
Introducing myself -Terri & Anthony USA (fairfax va)
Tbird01122 months ago
Hi all, I’m the wife and 24 hr caregiver for my husband 54. He has been experiencing Neurodegenerative symptoms for over 4 years now. They f...
B3 Nicotinamide Riboside studies
Has anyone else been reading up on this? I’d like to know more
age of onset with other factors
rt4rtl2 months ago
I've read studies which suggest MSA has the greatest prevalence in the 50-60 age bracket, and I've read other studies which suggest the inci...
Gloucestershire/Worcestershire/Herefordshire Support Group postponed!
Yanno2 months ago
This seems to a popular month to go on holiday and do other exciting things and so most of our Group cannot make the planned meeting for nex...
BorderBetty2 months ago
My loved husband died in January and I had to come down south to a new nursing home. The chaos is dying down now. My voice is going and ty...
11 Replies3 Likes
This sounds encouraging
Babowen8983 months ago
Greater Manchester Support Group meeting Mon 9th July
Diane8313 months ago
Hi anyone within reach of Bolton. Our next support group meeting is next Monday at Bolton Hospice Day Therapy Unit 1.30 - 3.30pm. Refreshmen...
4 Replies1 Like
Worcestershire/Herefordshire/Gloucestershire - Cakes, Cuppa and a Chat - Tuesday 24th July
Yanno3 months ago
More from Prof Gregor Wenning et al...
Janeyl3 months ago
This time on what distinguishes atypical Parkinsonism (eg MSA) from Parkinson’s Disease.
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Gregor Wenning on NOH
Not sure if this link will work, but I follow Professor Wenning on Facebook and thought that some may find it informative, if a little techn...
My partners just been diagnosed msa
Ssandyy3 months agoPOPULAR
My partner is 69 in August this yr was having problems for over a yr and just last wk was diagnosed with msa. I just don’t know what to expe...
Bathroom design advice
partypants3 months ago
We are in the middle of a redesign/extension to our house ( partially for my future needs ) and would appreciate some advice from o...
Pushpak_Roy3 months ago
Hi. I am really surprised and great full to know about the MSA trust. My father is a MSA patient for last 8 years. We stay at India and were...
DS1500 & PIP
Spookytookey3 months ago
My dad has MSA and he has really deteriorated in the last 6 months.
He applied for, and was granted PIP (after a mandatory reconsideration) o...
Airman7553 months ago
Just tried to get doctors appointment first available 17th July this is just wrong
Hi thought some of you might be interested my younger daughter and myself took part in the Great Midlands Fun Run to raise funds and awarene...
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