My friend Pat
Friendofpat9 days ago
Patricia has been diagnosed with MSA in her mid 50s. Until recently she was still able to get around but had to give up driving. Does anyone...
Support Group Meetings
phamwales19 days ago
Gill is now in year 12 of this terrible condition. I attended a support group, on the Wirral, for the first time this week.
It was a tremendo...
2 Replies7 Likes
Teresa520 days ago
Hi all I have m s a and I eat little and drink both a little but I seem to be getting
Fatter all the time is this part
Of the m s a ?
Ohmdotcoma month ago
Hi I was diagnosed with MSA in August this year and went for Stem cell treatment in September. I was told to be patient and wait until at l...
Gone, but finally at peace.
Shelliec77a month ago
On Monday 5th November my mum took her last breath. She had needed 24 hour care and was in total pain for the last year. She was with family...
new to this, help
MARG1902 months ago
hi ,my name is margaret and 2 weeks ago i was diagnosed with M S A !!! I live in south wales, my Gp has never heard of the disease,im only...
8 Replies1 Like
Greater Manchester Support Group. Monday 8th October
Diane8312 months ago
We have our next meeting on Monday at 1.30pm with MSA Trust Nurse Katie Rigg attending.
St Andrews Church, Hope Centre, 27 Tattersall Ave, B...
2 Replies1 Like
Three Counties support group - Cakes, cuppa enjoyed by all along with advocacy and abdominal binders!
Yanno3 months ago
We had an excellent meeting yesterday at the Three Counties Support Group (Worcestershire/Herefordshire/Gloucestershire). There were 12 of ...
4 Replies2 Likes
michellendak3 months ago
Hi everyone! My name is Michelle and I was diagnosed with parkinson's disease a year and a half ago after a crazy decline in health over a y...
Just back from northern scotland
FredaE3 months ago
Poolewe from the subtropical gardens at Inverewe in Wester Ross
A chat, coffee, cuppa tea & cake - Next Tuesday 25th September if you live close to the Three Counties
Don't forget....If you have an interest in MSA and live in "The Three Counties" of Gloucestershire, Herefordshire or Worcestershire (or can ...
5 Replies1 Like
vocaliser803 months ago
Do other MSA sufferers also have serious balance problems? Is there anything that can help in any way?
g2gem3 months ago
Wondering if anyone has any experience of passing out in the night? My Dad has had a few episodes where he gets up in the night and then pas...
Anyone in the north of Scotland dealing with MSA?
Hi there, my Dad has MSA and I've spent hours on here reading about peoples experiences. In a way it is hard that people have such a varie...
10 Replies1 Like
East Midlands Support Group
Alisonleicssupport3 months ago
A warm welcome.....and cakes await to anyone wishing to share problems/suggestions and speak with Emma at this weeks meeting.
Be the first to reply1 Like
Just starting this MSA journey
Marsha283 months ago
Supporting my mum from afar. Glad to have found a community that understands the lows and highs.
Wishing everyone the very best memories.
Just like buses...
Janeyl3 months ago
The potential treatment candidates arrive together...
1 Reply1 Like
A potential treatment...
My late husband participated in Phase 2 trials for this potential medication, so I am delighted to hear that it has the green light to proce...
6 Replies1 Like
MSA people who live with this
greenvelvet3 months ago
hi looking to talk with people who are connected with MSA
17 Replies1 Like
Let's have a chat! New date set for Worcestershire/Gloucestershire/Herefordshire Support Group
If you have an interest in MSA and live in "The Three Counties" of Gloucestershire, Herefordshire or Worcestershire (or can travel there!) c...
My Journey with MSA!
Neillpedro3 months ago
This is my journey. Living with the very rare MSA (Multiple System Atrophy) disease has so many challenges both personally and for those aro...
3 Replies1 Like
My journey with MSA
Introducing myself -Terri & Anthony USA (fairfax va)
Tbird01124 months ago
Hi all, I’m the wife and 24 hr caregiver for my husband 54. He has been experiencing Neurodegenerative symptoms for over 4 years now. They f...
B3 Nicotinamide Riboside studies
Has anyone else been reading up on this? I’d like to know more
age of onset with other factors
rt4rtl4 months ago
I've read studies which suggest MSA has the greatest prevalence in the 50-60 age bracket, and I've read other studies which suggest the inci...
Gloucestershire/Worcestershire/Herefordshire Support Group postponed!
Yanno5 months ago
This seems to a popular month to go on holiday and do other exciting things and so most of our Group cannot make the planned meeting for nex...
BorderBetty5 months ago
My loved husband died in January and I had to come down south to a new nursing home. The chaos is dying down now. My voice is going and ty...
11 Replies3 Likes
This sounds encouraging
Babowen8985 months ago
Greater Manchester Support Group meeting Mon 9th July
Diane8315 months ago
Hi anyone within reach of Bolton. Our next support group meeting is next Monday at Bolton Hospice Day Therapy Unit 1.30 - 3.30pm. Refreshmen...
4 Replies1 Like
Worcestershire/Herefordshire/Gloucestershire - Cakes, Cuppa and a Chat - Tuesday 24th July
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