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Multiple System Atrophy Trust

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Insight into my Mum's last few weeks

Hi, I've been on this chatroom for a few years now and my first post was desperately trying to work out what signs to look out for so i had an idea how much...

Hi, I've been on this chatroom for a few years now and my first post was despera...

Blubetty

•9 days ago

8 Replies

Excessive Sleeping

My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel...

My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is n...

binnyrox

•11 days ago

5 Replies

Chuckle time

A gent sat next to me on the train one day and pulled out his phone. After glancing at his phone he leans over to me shows me a picture and says "isn't she...

A gent sat next to me on the train one day and pulled out his phone. After glanc...

Paul_and_Sue_Wood

•12 days ago

5 Replies

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I wonder if anyone can help?Sit to stand .

I can only sit to stand with hubby’s help. I don’t have any balance and use an electric wheelchair downstairs and a walker upstairs. I still have strong legs...

I can only sit to stand with hubby’s help. I don’t have any balance and use an e...

Monkeyfeet1

•13 days ago

14 Replies

powered wheelchair?,

Hi, does anyone use a powered wheelchair.? which model? Any tips much appreciated. Thanks, chin

Hi, does anyone use a powered wheelchair.? which model? Any tips much appreci...

Trudy2020

•13 days ago

5 Replies

I've lost my deepest love and soulmate

It’s with huge sadness I'm letting you know that after a severe bout of pneumonia Jackie, my deepest love and soulmate, passed away in my arms on Wednesday....

It’s with huge sadness I'm letting you know that after a severe bout of pneumoni...

Yanno

•14 days ago

26 Replies

midodrine

Hi everyone my husband has hypertension one of the symptoms of MSA and been taking fludrocortisone. It hasn’t helped so the doctor wants to change it and try...

Hi everyone my husband has hypertension one of the symptoms of MSA and been taki...

Bamboot

•16 days ago

11 Replies

Breathing problems

Hiya everyone I am new here. My wife have MSA-c for a few years She recently have a severe breathing issue. She breathes heavily and making a sound like...

Hiya everyone I am new here. My wife have MSA-c for a few years She recentl...

unclekin

•16 days ago

5 Replies

muckle feet

quickie, does anyone else get swollen feet?

esj20

•17 days ago

4 Replies

Last post

I don`t post on here too often but have had some good advise and information from you all in the past. I am sad to say that Graham passed away on Sunday,. He...

I don`t post on here too often but have had some good advise and information fro...

mandg

•17 days ago

12 Replies

Anyone similar age

I was diagnosed with msa-c end of January last year aged 43. Took a couple of years to find out my issues I was having but I was wondering if anyone on here...

I was diagnosed with msa-c end of January last year aged 43. Took a couple of ye...

Lewiskendall

•20 days ago

4 Replies

Help!

Does anyone know of a gp or...who specializes in msa-in the south coast of nsw, australia???tia

Does anyone know of a gp or...who specializes in msa-in the south coast of nsw,...

covidnoel

•23 days ago

2 Replies

uplifting mood

My husband is in a really low mood recently, due to his deteriorating MSA-C. I am wondering if anyone has been prescribed anything to lift their mood. He was...

My husband is in a really low mood recently, due to his deteriorating MSA-C. I a...

Lassie1331

•1 month ago

6 Replies

Chuckle time

A man starts work at London zoo. It’s a big zoo so they give him a golf buggy to drive between the different parts of the site. Anyway, he’s in the bird house....

A man starts work at London zoo. It’s a big zoo so they give him a golf buggy to...

Paul_and_Sue_Wood

•1 month ago

2 Replies

First Post.

My wife was diagnosed with Parkinson's in September 2023 but on seeing a neurologist last week he says she might have msa.She's been on madopar since September...

My wife was diagnosed with Parkinson's in September 2023 but on seeing a neurolo...

Seasider12

•1 month ago

12 Replies

peg feeding, pros and cons

Hi fellow members Been a little while since I posted on here and that’s because I’ve been busy living each day while I can. I am 75 years old and was...

Hi fellow members Been a little while since I posted on here and that’s becaus...

Madauntie

•1 month ago

8 Replies

Advice needed

Hello,My brother is in mid 40s and recently diagnosed with MSA, three years ago he was diagnosed with Parkinson after contracting COVID-19. I have read with...

Hello,My brother is in mid 40s and recently diagnosed with MSA, three years ago ...

Sarah106

•1 month ago

7 Replies

Newbie

Hi, just introducing my self and hoping for some to understand this MSA. I am a retired Senior Police Crime Scene Manager, aged 74. Diagnosed with...

Hi, just introducing my self and hoping for some to understand this MSA. I am a...

Soco74

•1 month ago

11 Replies

Newbie

Hi A little introduction from myself and my husband. We've been with the group for nearly a year now but this is the 1st time We've posted anything. My...

Hi A little introduction from myself and my husband. We've been with the group ...

SandieH64

•1 month ago

2 Replies

Chuckle Time

Three buddies die in a car crash and they go to heaven for an orientation. They are all asked, "When you are in your casket and friends and family are mourning...

Three buddies die in a car crash and they go to heaven for an orientation. They ...

Paul_and_Sue_Wood

•1 month ago

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Proud carer

I am the main carer to my husband who was diagnosed with MSA - C in 2021 though suffered symptoms for 5 years before that. He’s now immobile with many other...

I am the main carer to my husband who was diagnosed with MSA - C in 2021 though ...

Lassie1331

•1 month ago

4 Replies

Confused 😕

I've been wobbly since about 2019, when I also noticed my typing speed of 90 wpm slowing down and my writing become messy. I've been to a GP several times,...

I've been wobbly since about 2019, when I also noticed my typing speed of 90 wpm...

Frenchoak

•1 month ago

10 Replies

Turmoil

Husband is being discharged from.the National Neuro today (or tomorrow, or who knows..... depends on transport), after 3 weeks of investigations. Anyway we've...

Husband is being discharged from.the National Neuro today (or tomorrow, or who k...

Schmall

•1 month ago

7 Replies

End has come

Hi - with a heavy heart tell you that TC died on Sunday 3rd March. We managed to keep him at home, as he wanted, and it was peaceful at the end. I know that...

Hi - with a heavy heart tell you that TC died on Sunday 3rd March. We managed to...

GreenJo

•1 month ago

6 Replies

big changes

Hi Does anyone know when things are getting near finale stage as I’m so worried about it , Les has been so unwell since Christmas, The hospice have got him on...

Hi Does anyone know when things are getting near finale stage as I’m so worried...

DeeMilo25

•1 month ago

3 Replies

Times up!

Hello everyone, I have been on this journey with my wife now since 2016. She is, or would have been 60 on the 22nd of this month. I’m writing this note now...

Hello everyone, I have been on this journey with my wife now since 2016. She is,...

Oliverwindsor

•1 month ago

21 Replies

wet feet

dose any one with m s a have the feeling of wet feet they are not wet but when I walk feels like wet socks regards Chris

dose any one with m s a have the feeling of wet feet they are not wet but when I...

butlin

•1 month ago

4 Replies

Chest infections

Hi all, I was diagnosed with MSA in 2019 although unexplained neurological symptoms long before that. Recently, last year and this I have had chest infections...

Hi all, I was diagnosed with MSA in 2019 although unexplained neurological symp...

GHG_

•2 months ago

6 Replies

Chuckle Time

A WIFE Sends a Message to Her HUSBAND WIFE: “Honey, please don't forget to buy bread when you're coming home from work and lest I forget... Your girlfriend...

A WIFE Sends a Message to Her HUSBAND WIFE: “Honey, please don't forget to buy ...

Paul_and_Sue_Wood

•2 months ago

1 Reply

Dry mouth

Up to now G has had a lot of saliva to deal with, not necessarily sucsessfully. However these last few days things have changed and reversed, so now his...

Up to now G has had a lot of saliva to deal with, not necessarily sucsessfully. ...

mandg

•2 months ago

1 Reply

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

Insight into my Mum's last few weeks

Excessive Sleeping

Chuckle time

I wonder if anyone can help?Sit to stand .

powered wheelchair?,

I've lost my deepest love and soulmate

midodrine

Breathing problems

muckle feet

Last post

Anyone similar age

Help!

uplifting mood

Chuckle time

First Post.

peg feeding, pros and cons

Advice needed

Newbie

Newbie

Chuckle Time

Proud carer

Confused 😕

Turmoil

End has come

big changes

Times up!

wet feet

Chest infections

Chuckle Time

Dry mouth

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive