More from Prof Gregor Wenning et al...
Janeyl14 hours ago
This time on what distinguishes atypical Parkinsonism (eg MSA) from Parkinson’s Disease.
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Gregor Wenning on NOH
Janeyla day ago
Not sure if this link will work, but I follow Professor Wenning on Facebook and thought that some may find it informative, if a little techn...
2 Replies1 Like
My partners just been diagnosed msa
Ssandyy6 days ago
My partner is 69 in August this yr was having problems for over a yr and just last wk was diagnosed with msa. I just don’t know what to expe...
Bathroom design advice
partypants7 days ago
We are in the middle of a redesign/extension to our house ( partially for my future needs ) and would appreciate some advice from o...
Pushpak_Roy7 days ago
Hi. I am really surprised and great full to know about the MSA trust. My father is a MSA patient for last 8 years. We stay at India and were...
DS1500 & PIP
Spookytookey8 days ago
My dad has MSA and he has really deteriorated in the last 6 months.
He applied for, and was granted PIP (after a mandatory reconsideration) o...
Airman75510 days ago
Just tried to get doctors appointment first available 17th July this is just wrong
Airman75511 days ago
Hi thought some of you might be interested my younger daughter and myself took part in the Great Midlands Fun Run to raise funds and awarene...
Airman75512 days ago
14 Replies3 Likes
Rankin6315 days ago
Went to the MSA meeting at Inverurie yesterday and found it most beneficial. Topics covered were how MSA affects different people, indiges...
Chat and cuppa on Hertfordshire/Beds/Bucks borders
FredaE2 months ago
The next meeting of the Herts group is on Wednesday May 23rd at the Hospice of St Francis Berkhamsted from 2 -4
Samantha will be coming and a...
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NHS Continuing Care
tingates2 months agoPOPULAR
Thought i would start a dedicated thread for this subject.
I wrote a about the continuing care (cc) application we had made a couple of week...
33 Replies2 Likes
Chat and a cuppa - Worcestershire, Gloucestershire & Herefordshire - Wednesday 25th April
Yanno2 months ago
Looking forward to seeing those that can make it on Wednesday. We are expecting about 16 people - not to late to join us if you haven't sig...
3 Replies1 Like
kimmi_872 months ago
My names kim and im from bedfordshire, my mum has recently been diagnosed with MSA, i came across this forum while doing a few ...
Be careful where you shop
Airman7552 months ago
This is a warning please please do not buy from a company called CareCo.
The sales staff are wonderful but if you have a problem the so call...
Fatigue/lack of energy
Gerdy2 months ago
When I look at the MSA symptons, I don't see fatigue or lack of energy mentioned. I would like to do more things in a day but I h...
Greater Manchester support group
Diane8312 months ago
Next Wednesday 25th April 1.30 - 3.30pm is the Greater Manchester Support Group, meeting in Bolton. We have the Trust Nurses coming along an...
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If you have an interest in MSA and live in "The Three Counties" - Gloucestershire, Herefordshire or Worcestershire (or can travel there!) co...
9 Replies2 Likes
LynneK683 months ago
Well that’s it for me it’s finally beaten me I’ve had to take Ill health retirement and give up the job I loved and worked hard at. I alread...
13 Replies2 Likes
Gerdy3 months ago
Hi dear people, I understand from previous posts some of you get clonazepam for sleeping, in what dosage? I was taking Zyprexa and slept wel...
budsey3 months ago
Has anyone had Botox in their jaw and d it improve their speech. I ask because l get a very stiff jaw which makes it impossible to speak.
7 Replies1 Like
What. Are the stages of Msa?
Dchovan3 months ago
What are the stages of MSA? How fast has it progressed for you.?
New to this..MSA versus ALS
Schoolpatrollady3 months ago
My husband was diagnosed with MSA. Does MSA and ALS have the same symptoms?
Alisonleicssupport3 months ago
I am looking at doing an abseil down Spinnaker tower in Portsmouth later in the year. There is the option to do bulk option for charities. J...
6 Replies1 Like
Can I have your opinion please?
jeeves194 months agoPOPULAR
Hello all. I recently posted this on my 'home site' (PD) and thought that I'd gauge opinion from the MSA community. Thanks for listening:
ilhana4 months ago
I have seen many Drs in the past 2 months and what I am taking and prayer seems at last to work , sleeping better and more energy. Keto diet...
HollyBee514 months ago
I was diagnosed with MSA In 2012 and have been learning more about it since then. I look forward to learning what insights this group has...
Msa Meeting Glasgow
Cory04074 months ago
Just wanted to let you know that we have a meeting on Thursday 22nd February at 1.30pm - 3.30pm at Alexandra Court Care Home, 332 Ed...
AnjiP4 months ago
i have a friend recently diagnosed with motor neurone disease (oct 2017) she is 62 and already unable to speak clearly or eat (fed through a...
Rankin634 months ago
I have just been to an MSA Meeting in Inverurie. Topics discussed were symptoms of MSA, Support services, diet, preventing falls and holiday...
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