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Multiple System Atrophy Trust
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MSA Meeting

My husband and I are attending the MSA meeting tomorrow at Stanlake . It’s the f...

out of breath

hi my dad has gone into hospital as he seems really chesty and out of breath, e...

Ideas for a birthday present

Hello to you all, I hope that you have managed to have a good week. My dad is s...

New to the forum

My 68 year old husband was diagnosed with MSA April 2019 having first had parkin...

Multiple system atrophy

Does any one have this condition ?

PIP Assessment

We have a home visit for a PIP assessment coming up. Anyone with experience got ...

Not just Bladders, bums and blood pressure at the Three Counties Support Group!!

We had a good three counties support group meeting this week. In the end there ...

Three Counties Meeting Tomorrow

Forgot to let us know you want to come tomorrow...don't worry, just reply to thi...

Oramorph to help with breathing

Hi, after having a difficult week with her breathing the Drs have prescribed Ora...

New diagnosis

I was diagnosed with MSA in December 2018. I am 62 years old. I had plans for t...

Three Counties Support Group (Worcestershire, Gloucestershire, Herefordshire)

Tuesday 30th April, 1.30pm - 3:30pm Porsche Centre Tewkesbury, Shannon Way, Ashc...

MSA DILEMMA

Diagnosis of \"pd May of 2015 then in October 2017 the diagnosis was changed to ...

Dying

I would like know an idea of how my going to die ?,,..,cause I am petrified of d...

Love you and will miss u dad..

After 9 years of fight with MSA and other complications associated with it my de...

Balance problems with MSA

My son (aged 55) has MSA. His biggest problems are his balance and his speech....

MSA progression

Hi All, I hope that you are managing to enjoy the sunshine as much as possible. ...

Carers

Hi, just wondering if anyone has had any trouble finding carers for someone with...

Over 400 members - celebrate or be sad?

From a standing start 2 years ago, we now have over 400 members in this communit...

Fun times

What do people do to have some fun whilst living with MSA? We recently got a cat...

support meeting in standlake

we went to the support meeting in standlake yesterday , my dad joe (msa) my mum ...

Update from Border Betty

Hi everyone - I know my mum valued the updates people would add to this site alt...

Newbie

Hi there. I'm new to this site and finding my way about. My brother in law has b...

Global MSA Roadmap Meeting Recommendations

Not new but now free to view: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5772...

Rainy Day in Southern California

Hello All I have been perusing different web sites and support sites to find a g...

Another way of viewing the C4 programme

Maureen has MSA (multiple system atrophy), a neurological disorder with no known...

Channel 4 programme featuring MSA

https://www.facebook.com/273250047329/posts/10155790811997330/

Sleeping problem

Hello. My uncle 64 years old has been diagnosed with MSA two months ago. As you...

Three Counties Support Group...tomorrow!

The Gloucestershire/ Worcestershire/ Herefordshire Support Group is meeting tomo...

Serious reading...but interesting!

I was alerted by a post on the PSP HealthUnlocked community to a series of artic...

My thoughts are with you

I’m very sorry for your loss , my husband was diagnosed with MSA -C two weeks be...
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