Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for November 2022

New drug

Does anyone know if the new trial drug LECANEMAB does anything to help MSA??Thanks

Does anyone know if the new trial drug LECANEMAB does anything to help MSA??Than...

Baxter3

•2 years ago

9 Replies

MSA C

Does anyone out there with MSA C have more problems with the Cognitive side of things, aside from the usual issues going on ie balance, swallowing, speech etc...

Does anyone out there with MSA C have more problems with the Cognitive side of t...

mandg

•2 years ago

12 Replies

Thursday Chuckle

A young boy enters a barber shop and the barber whispers to his customer, "This is the dumbest kid in the world. Watch while I prove it to you."The barber puts...

A young boy enters a barber shop and the barber whispers to his customer, "This ...

Paul_and_Sue_Wood

•2 years ago

2 Replies

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Midodrine

Hi,Does anyone have experience of using Midodrine for controlling blood pressure? Last night's 999 call out where his BP had dropped to 53 over 30 means we...

Hi,Does anyone have experience of using Midodrine for controlling blood pressure...

Honghua

•2 years ago

11 Replies

Covid & flu vaccinations

Good morning all, Just had an appointment through from doctor’s pharmacy requesting attendance for both vaccinations. Read a few stories of people with MSA...

Good morning all, Just had an appointment through from doctor’s pharmacy reques...

BCFC100

•2 years ago

5 Replies

Does this mean I have MSA?

Hello all, having had 12 months of tests, scans and examinations I was referred to another neurologist specialising in neurodegenerative diseases for her...

Hello all, having had 12 months of tests, scans and examinations I was referred ...

Rodjc

•2 years ago

22 Replies

Thursday Chuckle

A New York attorney representing a wealthy art collector called his client and said to him, “Saul, I have some good news and I have some bad news.”The art...

A New York attorney representing a wealthy art collector called his client and s...

Paul_and_Sue_Wood

•2 years ago

5 Replies

The battle lost!!

It's with regret that I write to say my darling Peter passed away on the 11/11/22. He died peacefully and comfortably surrounded by our children, his parents...

It's with regret that I write to say my darling Peter passed away on the 11/11/2...

Hidden

•2 years ago

21 Replies

Thursday Chuckle

So there was this man in Bulgaria who drove trains for a living. He loved his job. Driving a train had been his dream ever since he was a child. He loved to...

So there was this man in Bulgaria who drove trains for a living. He loved his j...

Paul_and_Sue_Wood

•2 years ago

2 Replies

Introducing myself

I’m a caregiver to my husband, who was diagnosed with Striatonigral Degeneration in 2007.

I’m a caregiver to my husband, who was diagnosed with Striatonigral Degeneration...

Become

•2 years ago

3 Replies

Mum now at peace...

Mum passed away very peacefully on Wednesday night. I hope you don't mind the honesty of this post but I hope our experience may help another family. Mum...

Mum passed away very peacefully on Wednesday night. I hope you don't mind the ...

TK-67

•2 years ago

23 Replies

Thursday Chuckle

On the way there, he tells his driver that looks a bit like him: "I'm sick of all these conferences. I always say the same things over and over!" The driver...

On the way there, he tells his driver that looks a bit like him: "I'm sick of a...

Paul_and_Sue_Wood

•2 years ago

1 Reply

Anthing else I should do?

Hi, I was diagnosed with Cerebellar Atrophy/Unknown Ataxia in Apr '22, & "strong suggestions indications (from MRI etc) it's MSA-C" (which I'd suspected...

Hi, I was diagnosed with Cerebellar Atrophy/Unknown Ataxia in Apr '22, & "stron...

Frenchoak

•2 years ago

25 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for November 2022

New drug

MSA C

Thursday Chuckle

Midodrine

Covid & flu vaccinations

Does this mean I have MSA?

Thursday Chuckle

The battle lost!!

Thursday Chuckle

Introducing myself

Mum now at peace...

Thursday Chuckle

﻿Anthing else I should do?

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive

Anthing else I should do?