Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for June 2023

The Path Forward?

Hi, My father has advanced MSA. He is bed-bound and cannot sit up on his own. Although he still gets rehab, the muscle loss from so much time in bed has made...

Hi, My father has advanced MSA. He is bed-bound and cannot sit up on his own. A...

•10 months ago

Thursday Chuckle

A young jogger is running through his local park one morning and sees an elderly man sitting on a bench, crying his eyes out."Are you okay, old timer?" asks...

A young jogger is running through his local park one morning and sees an elderly...

Paul_and_Sue_Wood

•10 months ago

Frank

Sadly I lost my partner Frank to this awful disease March 28th he was only 53 when he passed away and it broke my heart. He was an amazing Man one could ever...

Sadly I lost my partner Frank to this awful disease March 28th he was only 53 wh...

•10 months ago

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Coping

Hi can I ask how you all cope if working full time and being a carer ? I am exhausted and watching my husband suffer from this terrible disease is...

Hi can I ask how you all cope if working full time and being a carer ? I am exha...

•10 months ago

Chuckle time

Cringe worthy Duck walks into a bar “Hey barman, got any duck seed?” Barman “nope, sorry” The duck leaves Following day the duck is back “Hey barman,...

Cringe worthy Duck walks into a bar “Hey barman, got any duck seed?” Barman ...

Paul_and_Sue_Wood

•10 months ago

Frank

MSA is just an awful disease I had to watch my Partner and beloved Frank slowly getting worse and then taken away from me devastated that I have lost him, he...

MSA is just an awful disease I had to watch my Partner and beloved Frank slowly ...

•10 months ago

journey to hell

what a shite journey this is! husband is 52, I’m 50. Just got married. Hoists being installed. I mean, what the hell. Things are so so tough. Trying our...

what a shite journey this is! husband is 52, I’m 50. Just got married. Hoists...

•10 months ago

A retirement we couldn’t have imagined.

SJ started losing his balance and having difficulty walking early 2019. After a few blood tests with no answers GP told him ‘well you are in your sixties now,...

SJ started losing his balance and having difficulty walking early 2019. After a...

•10 months ago

gabapentin

hi. I have msa c I take 600 mg a day of gabapentin for nerve pain recently. I’ve developed a red itchy rash on my chest. I’m wondering if anyone else of had...

hi. I have msa c I take 600 mg a day of gabapentin for nerve pain recently. I’v...

•10 months ago

Change of diagnosis!

I have been in hospital for 10 day’s following a stroke scare. They have now decided that it’s no longer MSA but FND ) Functional neurological disorder. He...

I have been in hospital for 10 day’s following a stroke scare. They have now de...

•11 months ago

Thursday Chuckle

There are two identical twin brothers that live together. One happens to be a well-respected dentist, and the other can't seem to keep a job. Instead of...

There are two identical twin brothers that live together. One happens to be a we...

Paul_and_Sue_Wood

•11 months ago

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Support for carers

Hello all, I’m Jane: my husband had MSA(P) and I shudder to think how I might have coped before social media. I was all over the place looking for...

Hello all, I’m Jane: my husband had MSA(P) and I shudder to think how I might ha...

•11 months ago

Mum newly diagnosed with MSA-P and we are all struggling

Hello everyone I hope you don’t mind me starting a post, I’ve never really used a forum before so I am very unsure if this is the correct place to post. My...

Hello everyone I hope you don’t mind me starting a post, I’ve never really use...

•11 months ago

Pain with catheter

Hi, I don't know if anyone else has similar experience to my husband and can offer any advice, we will continue to seek medical help too, but don't seem to be...

Hi, I don't know if anyone else has similar experience to my husband and can off...

•11 months ago

Thursday Chuckle

A man on his Harley motorcycle was riding along a California beach when suddenly the sky clouded above his head and, in a booming voice, the Lord said,...

A man on his Harley motorcycle was riding along a California beach when suddenly...

Paul_and_Sue_Wood

•11 months ago

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Clinical Trials

Hello Just wondering if anyone has considered clinical trials? I volunteered for this one...

Hello Just wondering if anyone has considered clinical trials? I volunteer...

•11 months ago

Thank you everyone

MSA is completely pants, I'm sure we'll all agree although, I'm finding everyone's questions, replies and support invaluable on here so, I'm going to make a...

MSA is completely pants, I'm sure we'll all agree although, I'm finding everyone...

•11 months ago

Involuntary nasal dripping when eating

Does anyone else have this? I think it may have a name - Gustatory Rhinitis! My poor husband cannot enjoy any meal without his nose dripping involuntarily into...

Does anyone else have this? I think it may have a name - Gustatory Rhinitis! My ...

•11 months ago

balance and falls

hi I haven’t been on here for a while, over the last few months I’ve been loosing the use of my legs and falling, is that normal progression with the...

hi I haven’t been on here for a while, over the last few months I’ve been loos...

•11 months ago

Think of a lovely sandy beach!

Now think of how to walk safely (if not elegantly!) on one! Posted for a fellow MSA sufferer who is currently on holiday in Italy and is struggling to stay...

Now think of how to walk safely (if not elegantly!) on one! Posted for a fellow ...

•11 months ago

Bloody eyesight

hello all having Just spent a small fortune on new glasses ( equivalent to the governments handouts to their friends during Covid for PPE) I now find my...

hello all having Just spent a small fortune on new glasses ( equivalent to the ...

•11 months ago

Thursday Chuckle

A woman decided to give herself a big treat for her 70th birthday by staying overnight in a really nice hotel. When she checked out the next morning, the desk...

A woman decided to give herself a big treat for her 70th birthday by staying ove...

Paul_and_Sue_Wood

•11 months ago

saliva

Does anyone produce copious amounts of saliva? Does anyone have a jaw that freezes up and feels like it's swollen (like an allergic reaction)?

Does anyone produce copious amounts of saliva? Does anyone have a jaw that fr...

•11 months ago

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