Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for February 2021

Med alternatives for muscle spasms?

Hi everyone so I’m still trying to get things resolved with Mums meds. So far this week I’ve talked to the MSA nurse, the OH person, her consultant (stroke...

Hi everyone so I’m still trying to get things resolved with Mums meds. So far t...

Wildshire

•4 years ago

8 Replies

Living with MSA

Hi, My Name is Bruce Lane I'm 66 years young! My partner Janice (Jan) is 54 years young I'm Jan's Carer she has MSA she is now very ill she is not in pain...

Hi, My Name is Bruce Lane I'm 66 years young! My partner Janice (Jan) is 54 year...

Bruce7

•4 years ago

21 Replies

Rant about GP

Update: Amazingly the GP has now changed his diagnosis , agreed he is CEV and sent his details to the vaccination centre. Unfortunately the vaccine centre...

Update: Amazingly the GP has now changed his diagnosis , agreed he is CEV and se...

Rafaina

•4 years ago

11 Replies

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School MSA Survey

Hi Everyone, we have been very busy navigating the changes to my husbands MSA and also raising our children. Some days are more challenging than others, but I...

Hi Everyone, we have been very busy navigating the changes to my husbands MSA an...

LaCrosse87

•4 years ago

33 Replies

Hi!

Mum was diagnosed with Parkinson’s Disease in 2018 but the medication she was prescribed has really not been helping. In January she saw her consultant again...

Mum was diagnosed with Parkinson’s Disease in 2018 but the medication she was pr...

Wildshire

•4 years ago

11 Replies

Pain relief?

Which techniques does everyone utilise when the pain gets too bad and the meds just aren’t doing the trick? Mum has been in severe pain with her shoulder for...

Which techniques does everyone utilise when the pain gets too bad and the meds j...

Wildshire

•4 years ago

4 Replies

My husband seemed to have passed out!

Hi everyone, has anyone had experience of this. I think it could be linked to a drop in blood pressure, but I'm not sure. Over a 45 minute period i tried in...

Hi everyone, has anyone had experience of this. I think it could be linked to a ...

Hidden

•4 years ago

8 Replies

Breathing problems

Hello, I have decided to join this group in order to try and solve questions we were never able to get answers to while my husband was alive. I lost him in...

Hello, I have decided to join this group in order to try and solve questions we ...

Maiyasnan

•4 years ago

15 Replies

Diagnosis Confirmed

So the neurologist confirmed the MSA-C diagnosis for my husband, Bart, yesterday. Even though she was leaning in that direction, everything else seems to have...

So the neurologist confirmed the MSA-C diagnosis for my husband, Bart, yesterday...

CanAmK

•4 years ago

13 Replies

Spinal fluid?

Hi everyone! Martin is still in hospital having tests - day 11. Yesterday they gave him an epidural and took samples of spinal fluid which they had trouble...

Hi everyone! Martin is still in hospital having tests - day 11. Yesterday they ...

Floosie5uk

•4 years ago

6 Replies

COVID Vaccination

has anyone had their COVID vaccination and it has affected them at all in regards to their MSA ?

has anyone had their COVID vaccination and it has affected them at all in regard...

Nichod100

•4 years ago

14 Replies

New here

Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of 65. He has since became progressively worse, he is currently in hospital after...

Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of...

Lm12345

•4 years ago

9 Replies

Apres body dryer

Has any one had one of these installed. Are they any good?

dfo1569

•4 years ago

2 Replies

Food glorious food

Hi everyone, listening to your conversations about food, my wife is obsessed with ice cream, just can’t seem to get enough, she would simply live on it if I...

Hi everyone, listening to your conversations about food, my wife is obsessed wit...

Oliverwindsor

•4 years ago

3 Replies

4 Counties (GL/HR/OX/WR) Support Group Meeting - Tomorrow, Wednesday 3rd February at 2pm

Just a reminder that it's the 4 Counties MSA Digital Support Group meeting this Wednesday 3rd February. The support group is for anyone living in the 4...

Just a reminder that it's the 4 Counties MSA Digital Support Group meeting this ...

Yanno

•4 years ago

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spring is coming

Snowdrops from my old home liking it here

FredaE

•4 years ago

5 Replies

Problems with Eating in MSA.

My wife has been diagnosed MSA following a diagnosis of Parkinsons. Finding savoury food that she will eat is a real problem and she has lost a lot of weight....

My wife has been diagnosed MSA following a diagnosis of Parkinsons. Finding savo...

Chris215

•4 years ago

17 Replies

Ppi

Anyone who is worried about ppi If you been diagnosed with msa You will get allowances for life 10 years ago filled forms for ppi They refuse us ppi And we...

Anyone who is worried about ppi If you been diagnosed with msa You will get al...

bluenose100

•4 years ago

8 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for February 2021

Med alternatives for muscle spasms?

Living with MSA

Rant about GP

School MSA Survey

Hi!

Pain relief?

My husband seemed to have passed out!

Breathing problems

Diagnosis Confirmed

Spinal fluid?

COVID Vaccination

New here

Apres body dryer

Food glorious food

4 Counties (GL/HR/OX/WR) Support Group Meeting - Tomorrow, Wednesday 3rd February at 2pm

spring is coming

Problems with Eating in MSA.

Ppi

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive