Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for October 2021

Thursday Chuckle

There was once a squid who lived on a coral reef. One morning he woke up feeling very poorly. A shark came along and was going to eat him, but the squid said...

There was once a squid who lived on a coral reef. One morning he woke up feelin...

Paul_and_Sue_Wood

•3 years ago

2 Replies

Diagnosed today … scared for the future!

I received the news that I was looking at MSA, not what I expected as Datscan was normal however everything points to it. Explains a lot of what I am coping...

I received the news that I was looking at MSA, not what I expected as Datscan wa...

Bizzyissy

•3 years ago

7 Replies

Diagnosed Jan 21

Hi I was diagnosed in January this with MSA c. Up till then I just collapsing, very dizzy balance was a big problem with me no pains in the feet though. Lately...

Hi I was diagnosed in January this with MSA c. Up till then I just collapsing, v...

Cubbie

•3 years ago

3 Replies

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Legs spasms and catheter blockages

My Husband has slipped into an MSA diagnosis after being diagnosed with Parkinsons and then PSP. He is treated with dopermine still and we have noticed that...

My Husband has slipped into an MSA diagnosis after being diagnosed with Parkinso...

Primitivepotter

•3 years ago

16 Replies

Hell everyone

Hello everyone My farther has been treated for Parkinson’s since 2015 and has just been re diagnosed in October 2021 with M S A Any support group in the...

Hello everyone My farther has been treated for Parkinson’s since 2015 and has j...

Madden65

•3 years ago

3 Replies

MSA and me

Hi there. I was diagnosed with this in March and am trying to come to terms with this horrible illness. At the moment I still feel a bit like I have been hit...

Hi there. I was diagnosed with this in March and am trying to come to terms with...

Valpolly

•3 years ago

6 Replies

Have people managed to get advanced prescriptions?

Hi everyone. Looking for some advice please. My Mum has been in and out of hospital over the past year with UTI's. I'm sure many would agree that hospital is...

Hi everyone. Looking for some advice please. My Mum has been in and out of hospi...

Blubetty

•3 years ago

8 Replies

Thursday Chuckle

Two prawns were swimming around in the ocean. One called Justin and the other called Kristian. The prawns were constantly being harassed and threatened by...

Two prawns were swimming around in the ocean. One called Justin and the other ca...

Paul_and_Sue_Wood

•3 years ago

6 Replies

Scared about the future

Today I took part in a zoom meeting with the MSA trust. Other people taking part were at various stages of the disease and it really opened my eyes as to how...

Today I took part in a zoom meeting with the MSA trust. Other people taking part...

Redjune1

•3 years ago

15 Replies

Caretaker MSA wife india

My wife aged 54 intially detected with atypical Parkinsons in 2018 allopathic medicines did not intially worked so switched to alternative medication ie...

My wife aged 54 intially detected with atypical Parkinsons in 2018 allopathic me...

youcanwin

•3 years ago

5 Replies

Thursday Chuckle

A Mafia Godfather finds out that his bookkeeper, Guido, has cheated him out of $10,000,000. His bookkeeper is deaf and dumb. That was the reason he got...

A Mafia Godfather finds out that his bookkeeper, Guido, has cheated him out of ...

Paul_and_Sue_Wood

•3 years ago

4 Replies

Back pain

Hi Folks. I haven’t been on this site for a while because my condition has remained fairly stable, but recently I’ve been getting a constant pain in my lower...

Hi Folks. I haven’t been on this site for a while because my condition has remai...

NellyTF

•3 years ago

4 Replies

Bad sort of day

My husband was diagnosed in 2013 with probable MSA and we had many of the following years with minimal impact. Plenty of river cruises with friends and some...

My husband was diagnosed in 2013 with probable MSA and we had many of the follow...

Courgettegrower

•3 years ago

6 Replies

Vent

I’m struggling. Really struggling. I lost my husband almost 4 years ago on 23/12/17. He had a sudden heart attack and died right there on the bedroom floor. It...

I’m struggling. Really struggling. I lost my husband almost 4 years ago on 23/12...

Kaye31

•3 years ago

19 Replies

Thursday Chuckle

When my wife woke up this morning she asked me what I was doing on the laptop I told her I was looking for cheap flights She gave me a kiss and cooked bacon &...

When my wife woke up this morning she asked me what I was doing on the laptop I ...

Paul_and_Sue_Wood

•3 years ago

2 Replies

Heartbroken

My Alan mr perfect lost his battle with msa on the 24th sept I was fortunate to be holding his hand such a cruel disease rest in peace my darling till we meet...

My Alan mr perfect lost his battle with msa on the 24th sept I was fortunate to ...

Ruthi15

•3 years ago

22 Replies

Condolences

Dear Annie We are so sorry for your loss. So sad after such a long and Hapoy time together. Our hearts go out to you Sharon and Nick

Dear Annie We are so sorry for your loss. So sad after such a long and Hapoy tim...

Bailando

•3 years ago

1 Reply

Is there an alternative treatment to Sinemet ?

My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone...

My husband has been on Sinemet since July and there hasn’t been any improvement...

Redjune1

•3 years ago

4 Replies

Update help me and my sister x

I wrote a post last week and was so overwhelmed with all the responses and support so thank you all very much... Rebecca has been in hospital now for a month...

I wrote a post last week and was so overwhelmed with all the responses and suppo...

clairebaby123

•3 years ago

4 Replies

Nursing home invoice!

This morning I received an invoice from the council, the invoice was for over £5000 for around 4 weeks nursing care the care had been arranged for my dad, by...

This morning I received an invoice from the council, the invoice was for over £5...

Daniellep1

•3 years ago

9 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for October 2021

Thursday Chuckle

Diagnosed today … scared for the future!

Diagnosed Jan 21

Legs spasms and catheter blockages

Hell everyone

MSA and me

Have people managed to get advanced prescriptions?

Thursday Chuckle

Scared about the future

Caretaker MSA wife india

Thursday Chuckle

Back pain

Bad sort of day

Vent

Thursday Chuckle

Heartbroken

Condolences

Is there an alternative treatment to Sinemet ?

Update help me and my sister x

Nursing home invoice!

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive