Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for March 2023

Thursday Chuckle

One day a biker dies and finds himself in hell. As he is wallowing in despair, he has his first meeting with the devil… Satan: “Why so glum?” Biker: “What do...

One day a biker dies and finds himself in hell. As he is wallowing in despair, h...

Paul_and_Sue_Wood

•1 year ago

painful toes

hi, I was diagnosed with Parkinson’s in2020. This changed to MSA-P in 2022 . My main problem is no balance and unsteady walking.I use a walker.I have very...

hi, I was diagnosed with Parkinson’s in2020. This changed to MSA-P in 2022 . My ...

•1 year ago

Thursday chuckle

A woman brought a very limp duck into a veterinary surgeon. As she laid her pet on the table, the vet pulled out his stethoscope and listened to the bird’s...

A woman brought a very limp duck into a veterinary surgeon. As she laid her pet ...

Paul_and_Sue_Wood

•1 year ago

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Holiday planning

My wife wants to do a holiday abroad on a cruise later this year, but I'm wondering if anyone on here can point me in the direction of insurance in the UK...

My wife wants to do a holiday abroad on a cruise later this year, but I'm wonder...

•1 year ago

CBD oil/gumming Etc

Hello, now I know I'm pretty new to the group as my wife was diagnosed on 12th March but given a PSP diagnosis from 29th Jan but she's had the symptoms for a...

Hello, now I know I'm pretty new to the group as my wife was diagnosed on 12th M...

•1 year ago

Muscle weakness

Hello everyone, I am so sorry to ask for some of your time. I am a 36 year old but my health has declined greatly in the last 8 months. A lot of simple...

Hello everyone, I am so sorry to ask for some of your time. I am a 36 year ol...

•1 year ago

Thursday chuckle

An Elderly Woman Gets Pulled Over For Speeding...Older Woman: Is there a problem, Officer? Traffic Cop: Yes ma'am, I'm afraid you were speeding. Older Woman:...

An Elderly Woman Gets Pulled Over For Speeding...Older Woman: Is there a problem...

Paul_and_Sue_Wood

•1 year ago

Journey of Confusion

My wife's journey of confusion started on the 29th Jan 2023 when FINALLY she was diagnosed with Atypical Parkinsonism - Likely Progressive Supranuclear Palsy,...

My wife's journey of confusion started on the 29th Jan 2023 when FINALLY she was...

•1 year ago

INTERVIEWING AND EVALUATING CARERS

We have found a local self-employed carer who is available for 2 or more hours a day. Thinking of giving her a trial contract for maybe 4 weeks. Haven't met...

We have found a local self-employed carer who is available for 2 or more hours a...

•1 year ago

aspiration pneumonia and trouble swallowing

Hello all! My father (74) has MSA. We know since last november.until then we thought it was Parkinsons disease. We think the first symptoms showed up as early...

Hello all! My father (74) has MSA. We know since last november.until then we th...

•1 year ago

MSA affected by Covid

My husband who is 5 years into this dreadful condition is currently in hospital due to COVID affecting his unstable blood pressure. Yesterday was such an awful...

My husband who is 5 years into this dreadful condition is currently in hospital ...

•1 year ago

Thursday chuckle

In a crowded city at a busy bus stop, a woman who was waiting for a bus was wearing a tight leather skirt. As the bus stopped and it was her turn to get on,...

In a crowded city at a busy bus stop, a woman who was waiting for a bus was wear...

Paul_and_Sue_Wood

•1 year ago

research article from 2018: Continuous glucose monitoring can disclose glucose fluctuation in advanced Parkinsonian syndromes

here's the link to the full article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6322050/ A small study of non-diabetic elderly people with advanced MSA,...

here's the link to the full article - https://www.ncbi.nlm.nih.gov/pmc/article...

•1 year ago

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Free at last!

Well almost, transport should be here in 10 minutes. Can't wait to get home. Not one person in the whole hospital knows or wants to know about MSA with the...

Well almost, transport should be here in 10 minutes. Can't wait to get home. ...

•1 year ago

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any advice welcome

morning my hwp is going to atypical clinic on Wednesday - since christmas his blood pressure so very low I have to be at his back to catch him, bowel...

morning my hwp is going to atypical clinic on Wednesday - since christmas his bl...

•1 year ago

Working life and Careers

Morning all, Just a quick question; of those diagnosed with MSA do you still work, full or part-time? Thanks

Morning all, Just a quick question; of those diagnosed with MSA do you still...

•1 year ago

MSA STOLE MY PERSONALITY BUT NOW IT HAS ACCOMPLICES

Work stopped, hobbies stopped, talking compromised, smiling impaired,etc,etc. so many aspects of my former normal life has gone I feel like MSA stole my...

Work stopped, hobbies stopped, talking compromised, smiling impaired,etc,etc. so...

•1 year ago

The passing of my wife

It is with great sadness my Susan passed away today a 2pm. She was 64 has had MSA for the last 5years . Susan was14 and I was 15 years old when we had our...

It is with great sadness my Susan passed away today a 2pm. She was 64 has had MS...

•1 year ago

Always look on the bright side of life : de dumm de dumdy de dum de dum

Ś 🎵look it cld have been worseand worse....I cld have sung it to you🎶After my disastrous attempt to get out of bed on Friday I was determined to do it...

Ś 🎵look it cld have been worseand worse....I cld have sung it to you🎶After ...

•1 year ago

Thursday Chuckle

A woman, cranky because her husband was late coming home again, decided to leave a note, saying, "I've had enough and have left you. Don't bother coming...

A woman, cranky because her husband was late coming home again, decided to leave...

Paul_and_Sue_Wood

•1 year ago

Head support

Hi, my husband really struggles sitting on a dining chair for longer than about 15 to 20 minutes. That's fine when we 're at home or at friends, he can just...

Hi, my husband really struggles sitting on a dining chair for longer than about ...

•1 year ago

Bugger it didn't mean to do that now I'm in the dog-house ...

I'd be interested to know if yoou have an animal and dooes it helpWe have a black 8yr old cockapoo named Barney who is a complete nutcase and...

I'd be interested to know if yoou have an animal and dooes it helpWe h...

•1 year ago

Just curious(Tales from the Dog-house)???????

Being bored silly stuck here in hospital for almost a month again I've been scrolling back thru old posts and have noticed that a lot of us have an...

Being bored silly stuck here in hospital for almost a month again I've been ...

•1 year ago

New Book

Hi just ordered this book from Amazon may be a good and helpful read

Hi just ordered this book from Amazon may be a good and helpful read

•1 year ago

MotoMed Leg exerciser wanted

Is there anyone who has a Motomed leg exerciser which they no longer use? We're looking to get one for Jackie and just wondered if by chance anyone had one...

Is there anyone who has a Motomed leg exerciser which they no longer use? We're...

•1 year ago

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