Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,680 members • 1,322 posts

All posts for June 2024

UCH DELAY

Hello, I was diagnosed with MSA last year but a 2nd neurologist disagreed and thought it was most likely some form of autonmic failure. I was referred to UCH...

Hello, I was diagnosed with MSA last year but a 2nd neurologist disagreed and th...

JulianB

•18 hours ago

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Gastroparesis as part of MSA

Hello all, I am new to this web community, but have been dealing with MSA directly since 11/22 when it was diagnosed, and with signs pointing towards it...

Hello all, I am new to this web community, but have been dealing with MSA dire...

robet1968

•19 hours ago

6 Replies

amantadine sulphate

Do you have any experience with amantadine sulphate (PK Merz)?

Jstbcs

•2 days ago

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Long post update (tube feeding)

Thank you for your replies, I am grateful for all of them! I couldn't do this the right way. :( On Friday afternoon I had to call the ambulance because she...

Thank you for your replies, I am grateful for all of them! I couldn't do this t...

Jstbcs

•2 days ago

6 Replies

Chuckle Time

The picture says it all

Paul_and_Sue_Wood

•4 days ago

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Long post with question about tube feeding from a newbie

Hi! I don't know why it took me so long to find this site, but it's a wonderful community. I would like to ask for your help and opinion. It will be long, I'm...

Hi! I don't know why it took me so long to find this site, but it's a wonderful ...

Jstbcs

•6 days ago

8 Replies

New test for Parkinson’s “could distinguish between” PD and MSA

Further work needed. https://www.thetimes.com/article/b209cc03-575c-49a5-a54c-497bb8b447e3?shareToken=1dbab053be9f009e5347d5a905ade877

Further work needed. https://www.thetimes.com/article/b209cc03-575c-49a5-a54c-49...

Janeyl

•7 days ago

1 Reply

Newbie

Just been diagnosed with opca, awaiting blood tests to determine type. Have a 24 year old daughter so hope it isn’t inherited! The consultant has strongly...

Just been diagnosed with opca, awaiting blood tests to determine type. Have a 24...

BoneyEm1972

•9 days ago

2 Replies

BBC radio Nottingham interview

Hi, just listened to this interview with MSA sufferer, Paul Ord and his MSA consultant at St Benedict's Hospice Dr Mark Lee. The MSA Trust has a link to it on...

Hi, just listened to this interview with MSA sufferer, Paul Ord and his MSA cons...

5456partner

•11 days ago

5 Replies

?? Vaginal dryness

is vaginal dryness a symptom of MSA ?? What is the best way to manage it? I’ve been suffering with irritation,pain and tenderness in and around the perineum...

is vaginal dryness a symptom of MSA ?? What is the best way to manage it? I’ve ...

Trudy2020

•12 days ago

2 Replies

Chuckle Time

A boy wants to ask a girl to prom, and he really likes her so he goes all out... He goes to the florist to buy some flowers, but the line is out the door. He...

A boy wants to ask a girl to prom, and he really likes her so he goes all out......

Paul_and_Sue_Wood

•18 days ago

3 Replies

update

I wanted to share the last 4 weeks with you. Jon developed the pneumonia and quickly followed sepsis. Jon is a DNR and wished to remain home. a temp of 40•...

I wanted to share the last 4 weeks with you. Jon developed the pneumonia and qu...

Kaye31

•18 days ago

9 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for June 2024

UCH DELAY

Gastroparesis as part of MSA

amantadine sulphate

Long post update (tube feeding)

Chuckle Time

Long post with question about tube feeding from a newbie

New test for Parkinson’s “could distinguish between” PD and MSA

Newbie

BBC radio Nottingham interview

?? Vaginal dryness

Chuckle Time

update

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive