Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for January 2022

A cruel game of cat and mouse .

On Friday morning I had a gut feeling Richard was unwell . I did his OBS and still felt a little unsure . His urine output was a third of his usual amount...

On Friday morning I had a gut feeling Richard was unwell . I did his OBS and st...

•2 years ago

Not eating

Would be so grateful for some advice, will be taking my husband to see neurologist on Thursday he is eating very little and not drinking apart from small...

Would be so grateful for some advice, will be taking my husband to see neurolog...

•2 years ago

Thursday Chuckle

A park ranger was giving a talk to a party of hikers setting off on a trail through the Rockies. He said "Bears can be dangerous, of course, but remember that...

A park ranger was giving a talk to a party of hikers setting off on a trail thro...

Paul_and_Sue_Wood

•2 years ago

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Ian Jackson

It is with regret that I have to tell that Ian died earlier today. Quite unexpected following a choking attack yesterday at dinner. He was enjoying a yoghurt,...

It is with regret that I have to tell that Ian died earlier today. Quite unexpec...

Courgettegrower

•2 years ago

''Locking'' hands

Morning àll - cue music to Dixon of Dock Green!! Showing my age again! For the làst 2 or 3 months my right thumb has occasionally twisted round ìnto mý palm...

Morning àll - cue music to Dixon of Dock Green!! Showing my age again! For th...

•2 years ago

In the hope it might help someone (forgot to say )

My husband Richard uses a NIV at night and in the morning . This takes out carbon dioxide from his lungs . Mainly because of this I have an appointment summary...

My husband Richard uses a NIV at night and in the morning . This takes out carbo...

•2 years ago

In the hope it may help someone

I have learned quite a lot over the last 3 years and thought it may help someone . I know some family members already will know and practise some of my...

I have learned quite a lot over the last 3 years and thought it may help someone...

•2 years ago

High Blood Pressure

Morning all, a question? Reading the MSA factsheets is says that Low Blood Pressure is feature of MSA, but my husband seems to be having high blood pressure...

Morning all, a question? Reading the MSA factsheets is says that Low Blood Press...

•2 years ago

Cramps, unable to move and falls

Hello, I wondered if anyone experiences this? My husband is now getting painful cramps in his neck, they can travel down his spine. His head gradually sinks...

Hello, I wondered if anyone experiences this? My husband is now getting painful ...

•2 years ago

A small success

I have been in communication with our County Council Council Tax office asking for our banding to be reduced due to alterations for a disabled resident. Today...

I have been in communication with our County Council Council Tax office asking f...

Courgettegrower

•2 years ago

Thursday Chuckle

The pastor asked if anyone in the congregation would like to express praise for answered prayers. Suzie Smith stood and walked to the podium. She said, "I have...

The pastor asked if anyone in the congregation would like to express praise for ...

Paul_and_Sue_Wood

•2 years ago

Keep your fingers crossed for me!!

Ambulance on its way again! I said I wasn't going back again but I can't just lie here and bleed to dèath. This is following abdo surgery x2 in 2020. Been in...

Ambulance on its way again! I said I wasn't going back again but I can't just l...

•2 years ago

Scared

Hi, my husband was diagnosed with MSA yesterday after being treated for Parkinson’s disease for 2 years. I am so scared for him and wonder what the future may...

Hi, my husband was diagnosed with MSA yesterday after being treated for Parkinso...

•2 years ago

Thursday Chuckle

How To Give A Pill To A Cat Or Dog How To Give A Cat A Pill 1. Pick up cat and cradle it in the crook of your left arm as if holding a baby. Position right...

How To Give A Pill To A Cat Or Dog How To Give A Cat A Pill 1. Pick up cat and c...

Paul_and_Sue_Wood

•2 years ago

Thank you all for your comments.

Hi, thank you so much for your replies to my PEG question. I hear what you are all saying in both respects, however, she is still only in her 50’s and still...

Hi, thank you so much for your replies to my PEG question. I hear what you are a...

•2 years ago

Thursday Chuckles....

Thoughts for us "youngsters" in 2022. 1. When one door closes and another door opens, you are probably in prison. 2. To me, "drink responsibly" means don't...

Thoughts for us "youngsters" in 2022. 1. When one door closes and another door...

Paul_and_Sue_Wood

•2 years ago

PEG feeding

Hello, been talking to our nurse who informed us that we need to consider PEG feeding for my wife. She is scared to death! How bad is it really? I’m sure...

Hello, been talking to our nurse who informed us that we need to consider PEG fe...

•2 years ago

MSA meetings for Cornwall

Morning can any one tell me when the Next msa Meeting is for Cornwall as I missed the last one stay safe

Morning can any one tell me when the Next msa Meeting is for Cornwall as I miss...

•2 years ago

Cough, cough, cough plus throat clearing and odd noises .

I am gradually being driven totally bonkers by Ian‘s continual cough cough cough, grunting moaning or two absolutely no avail. It is actually driving me mad so...

I am gradually being driven totally bonkers by Ian‘s continual cough cough cough...

Courgettegrower

•2 years ago

Pins and needles

Hi, can anyone help? We are currently experiencing tightness in the head and pins and needles. Also very very unsteady on foot. Any words of wisdom out...

Hi, can anyone help? We are currently experiencing tightness in the head and pin...

•2 years ago

Happy New Year to members of the 4 Counties MSA Support Group (OX,WR, HR, GL)

As members will all be aware, we meet for the first time in this New Year on Wednesday (5th) at 2pm - the usual Zoom link will get you there. If you live in...

As members will all be aware, we meet for the first time in this New Year on Wed...

•2 years ago

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