The CUE1, created by Charco Neurotech, is being used by former BBC technology correspondent Rory Cellan-Jones

[Soco74]

I've been reading some articles about this piece of equipment that you stick to your chest. It's supposed to help with freezing in Parkinson's patients. I was wondering if it would help those of us that have the same Parkinisms of balance and freezing. It's not cheep, has any tried it are nows more about it.

[Gill-C]

Not cheap, but they do allow you to return it and obtain a refund if it doesn’t work - within, I think, the first six months.

I did look into it and was quite tempted, but have not yet tried it (I have MSA).

[Terrier58]

Hi there. My late husband tried it for about 3 months he had MSA C and was pretty wobbly but still mobile at the time he tried it. Unfortunately it didn’t work for him in terms of improving balance but he did say he felt he slept better with it. We returned it at the end of the trial but Charco were collecting information on patients with neurological conditions other than straight Parkinson’s so worth getting in touch with them and asking if they have more trial info now for MSA.

[Seasider12 in reply to Terrier58]

My wife tried it but unfortunately it didn't work for her. We bought it second hand and sold it to a lady who had great results with it.

[Frenchoak]

I trialled a friends for a while; made a difference day one as regards energy levels and I was walking faster, but perhaps it was a "good day" anyway as from then on I felt it made no difference ! Isn't there a Research Study or trial of it 🤔 maybe try it before spending a lot of money for something that may not work for you. See msa trust Research pages on their website . I have early stages of MSA-C by the way! Good luck looking into it for you 🤞

[Soco74]

Thanks for all the info, I think I'll see if they wilI let me try one out. I have MSA(P) with terrible gait, balance and high/ low blood pressure problems